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  Recent & Current  
MDA/ALS Newsletter v9 n4 April 2004
( current issue )
Studies Strengthen Role of Glutamate, Abnormal RNA · Opening Our Hearts & Lives ·Book Shows How to Extend the Joy of Dining · ALS Research Roundup ·VEGF Deficiency Implicated in Second Disease ·Smoking Is Likely ALS Risk Factor ·Biomarker Study Begins· Novartis Study Full ·ALS Online ·Sidewalks and Happiness·Letter to the Editor: Thanks For Leg Story·Stay in Control by Making Advance Directives ·Michael deKruif: Enjoying the Ride
[Cover image, ALS 8-1]
MDA/ALS Newsletter v9 n3 March 2004
)
Houston Couple Named to Co-Chair MDA ALS Division· New Studies Support Roles of Inflammation, Oxidative Stress in ALS ·10 Tips for New ALS Patients ·Coach Finds Strength in Family and Football ·Plan Ahead for Disability With a Power of Attorney ·More On Leg Swelling ·ALS Online· ALS Online ·A New Life With ALS - Thanks for a Life-Changing Year
 
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v9 n2 February 2004
Don't Let Leg Swelling Go Untreated· Blood Clot Warning Signs ·Treatment for Leg Swelling in ALS ·ALS Research Roundup ·Study of New Compound Open ·Writing About Events May Lower Caregiver Stress ·Internet Sites: Keep Them Simple, Reliable, Caregivers Say Mississippi Mayor Joins Fight Against ALS · ALS Online ·Naturally Speaking - Voice Synthesis Study Advances · AAC News: DynaVox Systems Buys Enkidu Research ·A New Life With ALS - Making Peace With Circumstances · ALS In The News
 
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v9 n1 January 2004
‘Freedom to Live Life to the Fullest’· ALS Research Roundup ·Stem Cells Help Regrow Nerves in Rats ·Spinal Fluid Changes Appear Specific to ALS ·Double the Determination ·St. Louis Center Director Optimistic ·ALS Expenses Can Be Tax Deductible ·Studies Show... · ALS Online
 
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n12 December 2003

The Survivors: What Keeps Them Going· A New Life With ALS - Celebrating the Holidays· ALS Online· SSDI Champion and MDA Award Winner John Hunter Dies ·ALS Research Roundup ·Study Finds No Benefit From Creatine in ALS ·Stem Cells May Fuse With Some Brain Cells ·Stem Cells Safely Injected in Italy · Riluzole Revisited: When and How Much? ·Marijuana Relieves ALS Symptoms, Survey Suggests·Award-Winning MDA Grantee Probes Brain Connections·Sharon Nelson: Keeping the Faith·Studies Show...
 
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n11 November 2003 
 
Motor Neuron Neighbors Help Fight ALS· Wings Over Wall Street Posts Another Success · A New Life With ALS - Denial- Don't Deny Yourself Support· ALS Online· Monty Topche Paints a Picture of Creativity ·ALS Research Roundup ·Minocycline Study Finally Opens· Mouse Studies Say Exercise, Hormone Levels May Influence ALS Course · Pittsburgh & VA Probe Service Dog Use · Studies Show... ·Hospice: Comfort and Care
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n10 October 2003 
 
Gulf War Vets More Likely to Get ALS · Studies Show... · ALS Research Roundup · German Researchers Find No ALS Connection in 'Detox' Genes· Chromosome 16 Finding Goes Beyond the Obvious ·'Living With ALS' Study Extended ·Airway Clearance Vest Under Study in ALS · Exercises to Do on the Run: Simple Ways for Caregivers to Resist Injury · A New Life With ALS - MDA Telethon - Where the Love Is · ALS Online ·The Attitude Makes the Man: Albertsons Executive Lives With ALS
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n9 September 2003 
 
New ALS Gene Mapped to Chromosome 16 · A New Life With ALS - Speeding Up the Scientists · Wings Over Wall Street Gets Ready to Soar · ALS Research Roundup · Lab Mice Benefit from IGF-1 Gene Transfer ·Human Umbilical Cord Blood Cells Help Mice With ALS ·Minority of Long-Term ALS Survivors Lose Communication Ability · Bertrand Fights ALS by Being Himself · ALS Is For the Birds ·Regaining the Simple Pleasure of Regularity· Photographer's Work Featured in Quest·Social Security Changes Rules to Benefit Patients With ALS· Medicare Covers Cough Device
 
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n8 August 2003 
 
VEGF Deficiency Increases ALS Risk· Tune in to the Telethon· ALS Research Roundup·Stem Cells Might Help in Unxepected Way·Some Myotrophin Study Sites Ready to Go· Corn Belt ALS Study Open Until October· A New Life With ALS - An ALS Wife's Perspective· Child's Love for Grandfather Is Bigger Than ALS· A Tale of Two Vent Choices·Small Study Says No Harm, Much Benefit Comes With NIV· Speaking of Speaking· Ten With ALS Honored With MDA Personal Achievement Awards ·
 
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n7 July 2003 
Drugs, Stem Cells, Trial Designs, National Consortium Occupy ALS Experts at June Meeting· ‘Share the Care’ Circles: Keeping the Circle Unbroken · ‘Share the Care’ Extends Life for Recipient· ALS Online·‘Type A’ Counselor Rechannels Energy· A New Life with ALS: An ALS Patient’s Perspective· ALS Research Roundup · Exercise Beneficial to Mice With ALS· Two Studies Seek Blood Samples·Florida Writer Fights Shadow of ALS · Genetics and ALS·Columnist, MDA Leader Baber Dies · MDA Opens New ALS Center in Columbus
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n6 June 2003 
Clinical Trials Are Focus of MDA ALS Conference · Support, Empowerment Keys to Social Worker's Role at MDA/ALS Center · A New Life With ALS · Proposed Legislation Addresses Caregiver and Home Care Needs· 'Share the Care' Circles: Who's going to Do What? · Wyoming Artist Rides Into the Wind· Remembering Lou Gehrig · ALS Research Roundup·Abnormal Chromosomes Be ALS Risk Factors· MDA Leader, ALS Advocate Beier Dies ·ALS Online
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n5 May 2003 
'Hope Is Real' Is Message of ALS Awareness Month· MS Drug Shows Promise Against ALS· MDA's ALS Division Services ·A New Life With ALS·Bishops Lend Support to Support Groups· 'Share the Care' Circles: Asking for Help Can Be the Hardest Part·ALS Research Roundup·Researchers at Neurology Meeting Explore SOD1, New Drugs, Stem Cells· Open-Label Study of Neurodex Opens·Governemtn to Study Veterans With ALS· ALS Online·MDA/ALS Centers·
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n4 April 2003 
Defects in Cell 'Supply Line' Might Be Key, MDA Researchers Find· A New Life With ALS· ALS Online· Is It Really ALS?· ALS Research Roundup· Minocycline Study Slated at 24 Sites· Myotrophin Study Ready to Launch· Multidrug Approach Gains Momentum· Move Over, SOD1·Disappointed with Kelly AFB Study· Social Security Process May be Streamlined for Those With ALS· 'David Jayne Amendment' Reintroduced in Senate·May Is ALS Awareness Month ·
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n3 March 2003 
MDA Conference to Explore Clinical Trial Design· Congnitive Deficits in ALS Are Usually Subtle · ALS Online· ALS Research Roundup · Center Director to Be Part of Large ALS Respiratory Study· Minocycline Trial to Change Slightly· Neuronal Stem Cells Found in Blood· Anti-HIV Drugs Investigated for ALS· Why Run for ALS? It's Personal·Benefits of Service Dogs to Be Studied· Missouri Minister Delivers Opening Prayer for U.S. House· ALS Doesn't Masquerade As Lyme Disease, Experts Say·Infection Derails Test of 'Brain Communicator' in Activist Jayne· Foundation Offers Free Computers·
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n2 February 2003 
'Drug Cocktail' Shown Doubly Effective Against ALS in Mice · Classic Car Garden Party Benefits San Francisco MDA/ALS Center · Quest Looks at Talking with Technology · ALS Research Roundup · From Bone Marrow to Brain · Study of Genetic, Environmental Risks Needs Your Help · Researchers Probe Marijuana in ALS · Pentoxifylline Under Study in Europe · READERS RESPOND— Is ALS a Disability or a Fatal Disease? ·Miami Man Finds ‘Freedom Land’· Changes Made in Medicare Payments · ALS Community Protests Kelly AFB Findings ·Reducing Caregiver Stress May Help Loved One’s Depression · Quality of Life Relates to Fatigue, Depression · News and Notes From MDA Online · ALS Caregiver Guide Available Online ·
[Cover image, ALS 8-1]
MDA/ALS Newsletter v8 n1 January 2003  
FINDING ALTERNATIVES AT ALL STAGES —Talking with ALS Center Director Jeffrey Rosenfeld — Multidrug Study at Carolinas Center ·ALS Research Roundup · MDA Seeks Researchers to Conduct Cord Blood Trial · Topiramate Shows No Benefit in ALS ·'Corn Belt' Study Expands Across United States · Gene Behind pmn May Hold Clues to ALS ·CORRECTION · ALS — A Disability or a Fatal Disease? ·Nodaros Helps Others While Helping Himself · Caregiver Support Programs Innovative — But Going Nowhere · Scientist Traces His Journey ·ALS Chats Gear Up for New Year ·
[Cover image, ALS 7-10]
MDA/ALS Newsletter v7 n10 December 2002  
Colorado Couple to Co-Chair MDA’s ALS Division · ALS Research Roundup · Doctors Discuss ALS Treatment Trends at MDA Gathering · ALS Researchers Meet in Melbourne and Review Drug Progress · Scientists Report Progress Toward Drug Therapies · No ALS ‘Cluster’ Found at Kelly Air Force Base · Protection and Prevention Are Keys to Comfortable Skin · Comfort Food for Skin · Are You Eligible for VA Benefits? · VA Studies Show ALS Link to Gulf War · AAC Device Pops the Question — on the Telethon · MDA Opens 29th ALS Center in Nashville ·
[Cover image, ALS 7-9]
MDA/ALS Newsletter v7 n9 November 2002  
KEEP TALKING WITH TECHNOLOGY — What You Need to Know About AAC Devices · AAC Resources · Speaking (With) Your Mind · Depression in ALS: Looking at the Evidence · Vermont Doctor Prescribes Hope · ALS Research Roundup · Wings Over Wall Street WOWS New York, Raises $1.8 Million · Spiritual Resource for Caregivers ·Rare Diseases Legislation Passed by Congress ·
[Cover image, ALS 7-8]
MDA/ALS Newsletter v7 n8 October 2002  
Getting Aggressive About Care — Talking With ALS Center Co-Director Greg Carter· Anthony Vitale, Pioneer of DECtalk, Dies After 9-Year Battle With ALS · Exercise Has Many Benefits for People With ALS ·ALS Research Roundup · Free Telephone Service Offered for Those With Speech Difficulties · Take Falls Seriously to Prevent Further Injuries · Home Rehabilitation Services: OT/PT Evaluation · Thanks to Jerry Lewis for Leading the Telethon ·
[Cover image, ALS 7-7]
MDA/ALS Newsletter v7 n7 September 2002  
It Takes a Village to Fight the System · ALS Research Roundup · Baylor Center Director Tries Transplanting Bone Marrow in ALS · Medicare Homebound Restriction: Agency Clarifies Language · Cruisin’ With Karen and Her Pals · Noninvasive Ventilation Prolongs Life If Used Right, MDA Clinic Director Says · Tips for Caregivers: Handling a Loved One’s Depression · Book Addresses Kindness and Caregiving · Oriole Park Site of Baltimore Art Exhibit · New York Study Focuses on Coping · MDA/ALS Centers Open in Seattle, San Antonio
[Cover image, ALS 7-6]
MDA/ALS Newsletter v7 n6 August 2002  
Trials Help Scientists Take Small Steps to Big Goals, New Mexico Director Says · U.S. House Waters Down Medicare Homebound Amendment · Online Government Site Compiles Gulf War-Related Research · Telethon to Showcase ALS in Profiles · ALS Research Roundup · Beier Fights ALS With Words, Actions and Some Wall Street Friends · Caregivers: Say 'Yes' to Offers of Help · 26th MDA/ALS Center Opens in Irvine
[Cover image, ALS 7-5]
MDA/ALS Newsletter v7 n5 July 2002
High-Tech Talk — Family Masters Communication Device in Advance of Need · Cord Blood: Banking on a Cure · Potent Stem Cells Found in Bone Marrow · Connecticut Man Fights to Teach · Five Honored With MDA Achievement Awards · Ukrainian Clinic 'Stem Cell Treatment' Probed · Caregivers Invited to Try Journal Writing · MDA's Caregiver Guide Revised · New Care Book Focuses on Quality of Life · 'Virtual' Reminder — ALS Online
[Cover image, ALS 7-4]
MDA/ALS Newsletter v7 n4 June 2002  
Evidence Mounts for Minocycline in ALS, With Caution· New Study Explores Connection Between Athletics and ALS· Botulinum Toxin, Radiotherapy Show Promise in Controlling Saliva· Study to Evaluate Speech Synthesis System Needs Participants in ALS· ALS Marker Study Under Way in New York· Parenthood and ALS — Love Wins Out Over Doubts· Art Exhibit Travels to Boston· ALS Prayer Chain Offers Caregivers a Way to Fight· Jayne Hopes Washington Crusade Will Slay Homebound Restriction· Lange to Lead Online Chat· Mingus Biography Released· Letters· MDA Adds Coverage of Communication Devices·
[Cover image, ALS 7-3]
MDA/ALS Newsletter v7 n3 May 2002
ALS Awareness Month Highlights MDA's Leadership in Research, Services· Gene Therapy for ALS a Step Closer to Reality· Bats & Nuts Yield Environmental Clue to ALS on Guam· Rilutek Safe but Weak; Better Drugs May Be on the Way· MDA's ALS Division Offers Unparalleled Services· MDA/ALS Research and Clinical Centers· Attitude is Everything, Harwood Says· Letters· Health Cluster Tracking Bill Introduced in Senate
[Cover image, ALS 7-2]
MDA/ALS Newsletter v7 n2 April 2002  
MDA Art Exhibit to Raise Awareness of ALS· May Is ALS Awareness Month· ALS Centers Get Boost From New York Gala· ALS Research Roundup· ALS Studies, Clinical Trials Need Volunteers· Public Service Still Defines Maine Man Mayo· Communication Is Key: Larry Cisneros Keeps Channels Open in Work and Life· Equipment Survey Can Help With Planning· Medicare Guidelines Revised on Cough Device· Rare Diseases Acts Introduced in the House
[Cover image, ALS 7-1]
MDA/ALS Newsletter v7 n1 February 2002  
Wisconsin ALS Expert Pursuing Viruses, Tamoxifen & Gulf War Exposure· TV's "Becker" to Feature ALS· Congress Considers Homebound Reform, Gulf War Benefits· Do You Call Yourself a 'Caregiver'?· Respiratory Issues in ALS· ALS Is a 'Gift in Disguise' for Noted Physical Therapist· Rilutek Assistance· ALS Research Roundup

 



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