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- MDA/ALS Newsletter v9 n4 April 2004
( current issue )
- Studies Strengthen Role of Glutamate, Abnormal RNA ·
Opening Our Hearts & Lives ·Book Shows How to Extend the Joy
of Dining · ALS Research Roundup ·VEGF Deficiency
Implicated in Second Disease ·Smoking Is Likely ALS Risk
Factor ·Biomarker Study Begins· Novartis Study Full
·ALS Online ·Sidewalks and Happiness·Letter to the Editor:
Thanks For Leg Story·Stay in Control by Making Advance Directives
·Michael deKruif: Enjoying the Ride
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- MDA/ALS
Newsletter v9 n3 March 2004
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- Houston Couple Named to Co-Chair MDA ALS Division·
New Studies Support Roles of Inflammation, Oxidative Stress in ALS ·10
Tips for New ALS Patients ·Coach Finds Strength in Family
and Football ·Plan Ahead for Disability With a Power of
Attorney ·More On Leg Swelling ·ALS Online·
ALS Online ·A New Life With ALS - Thanks for a Life-Changing Year
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- MDA/ALS
Newsletter v9 n2 February 2004
- Don't Let Leg Swelling Go Untreated· Blood
Clot Warning Signs ·Treatment for Leg Swelling in ALS ·ALS
Research Roundup ·Study of New Compound Open ·Writing
About Events May Lower Caregiver Stress ·Internet Sites:
Keep Them Simple, Reliable, Caregivers Say Mississippi Mayor Joins Fight
Against ALS · ALS Online ·Naturally Speaking - Voice Synthesis
Study Advances · AAC News: DynaVox Systems Buys Enkidu Research
·A New Life With ALS - Making Peace With Circumstances · ALS
In The News
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- MDA/ALS
Newsletter v9 n1 January 2004
- ‘Freedom to Live Life to the Fullest’· ALS
Research Roundup ·Stem Cells Help Regrow Nerves in Rats ·Spinal
Fluid Changes Appear Specific to ALS ·Double the Determination
·St. Louis Center Director Optimistic ·ALS Expenses
Can Be Tax Deductible ·Studies Show... · ALS Online
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- MDA/ALS
Newsletter v8 n12 December 2003
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The Survivors: What Keeps Them Going· A New Life With ALS
- Celebrating the Holidays· ALS Online· SSDI Champion and
MDA Award Winner John Hunter Dies ·ALS Research Roundup
·Study Finds No Benefit From Creatine in ALS ·Stem
Cells May Fuse With Some Brain Cells ·Stem Cells Safely
Injected in Italy · Riluzole Revisited: When and How Much? ·Marijuana
Relieves ALS Symptoms, Survey Suggests·Award-Winning MDA Grantee
Probes Brain Connections·Sharon Nelson: Keeping the Faith·Studies
Show...
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- MDA/ALS
Newsletter v8 n11 November 2003
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- Motor Neuron Neighbors Help Fight ALS· Wings
Over Wall Street Posts Another Success · A New Life With
ALS - Denial- Don't Deny Yourself Support· ALS Online· Monty
Topche Paints a Picture of Creativity ·ALS Research Roundup
·Minocycline Study Finally Opens· Mouse Studies
Say Exercise, Hormone Levels May Influence ALS Course ·
Pittsburgh & VA Probe Service Dog Use · Studies Show... ·Hospice:
Comfort and Care
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- MDA/ALS
Newsletter v8 n10 October 2003
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- Gulf War Vets More Likely to Get ALS · Studies
Show... · ALS Research Roundup · German Researchers
Find No ALS Connection in 'Detox' Genes· Chromosome 16 Finding
Goes Beyond the Obvious ·'Living With ALS' Study Extended
·Airway Clearance Vest Under Study in ALS ·
Exercises to Do on the Run: Simple Ways for Caregivers to Resist Injury
· A New Life With ALS - MDA Telethon - Where the Love Is
· ALS Online ·The Attitude Makes the Man: Albertsons Executive
Lives With ALS
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- MDA/ALS
Newsletter v8 n9 September 2003
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- New ALS Gene Mapped to Chromosome 16 · A
New Life With ALS - Speeding Up the Scientists · Wings Over
Wall Street Gets Ready to Soar · ALS Research Roundup · Lab
Mice Benefit from IGF-1 Gene Transfer ·Human Umbilical Cord
Blood Cells Help Mice With ALS ·Minority of Long-Term ALS
Survivors Lose Communication Ability · Bertrand Fights ALS
by Being Himself · ALS Is For the Birds ·Regaining
the Simple Pleasure of Regularity· Photographer's Work Featured
in Quest·Social Security Changes Rules to Benefit Patients With
ALS· Medicare Covers Cough Device
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- MDA/ALS
Newsletter v8 n8 August 2003
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- VEGF Deficiency Increases ALS Risk· Tune
in to the Telethon· ALS Research Roundup·Stem
Cells Might Help in Unxepected Way·Some Myotrophin Study
Sites Ready to Go· Corn Belt ALS Study Open Until October·
A New Life With ALS - An ALS Wife's Perspective· Child's
Love for Grandfather Is Bigger Than ALS· A Tale of Two Vent
Choices·Small Study Says No Harm, Much Benefit Comes With
NIV· Speaking of Speaking· Ten With ALS Honored With MDA Personal
Achievement Awards ·
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- MDA/ALS
Newsletter v8 n7 July 2003
- Drugs, Stem Cells, Trial Designs, National Consortium
Occupy ALS Experts at June Meeting· ‘Share the Care’
Circles: Keeping the Circle Unbroken · ‘Share the
Care’ Extends Life for Recipient· ALS Online·‘Type
A’ Counselor Rechannels Energy· A New Life with ALS:
An ALS Patient’s Perspective· ALS Research Roundup
· Exercise Beneficial to Mice With ALS· Two
Studies Seek Blood Samples·Florida Writer Fights Shadow
of ALS · Genetics and ALS·Columnist, MDA Leader Baber Dies
· MDA Opens New ALS Center in Columbus
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- MDA/ALS
Newsletter v8 n6 June 2003
- Clinical Trials Are Focus of MDA ALS Conference ·
Support, Empowerment Keys to Social Worker's Role at MDA/ALS Center
· A New Life With ALS · Proposed Legislation
Addresses Caregiver and Home Care Needs· 'Share the Care'
Circles: Who's going to Do What? · Wyoming Artist Rides
Into the Wind· Remembering Lou Gehrig · ALS
Research Roundup·Abnormal Chromosomes Be ALS Risk Factors·
MDA Leader, ALS Advocate Beier Dies ·ALS Online
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- MDA/ALS
Newsletter v8 n5 May 2003
- 'Hope Is Real' Is Message of ALS Awareness Month·
MS Drug Shows Promise Against ALS· MDA's ALS Division Services
·A New Life With ALS·Bishops Lend Support to Support Groups·
'Share the Care' Circles: Asking for Help Can Be the Hardest Part·ALS
Research Roundup·Researchers at Neurology Meeting Explore SOD1,
New Drugs, Stem Cells· Open-Label Study of Neurodex Opens·Governemtn
to Study Veterans With ALS· ALS Online·MDA/ALS Centers·
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- MDA/ALS
Newsletter v8 n4 April 2003
- Defects in Cell 'Supply Line' Might Be Key, MDA Researchers
Find· A New Life With ALS· ALS Online·
Is It Really ALS?· ALS Research Roundup· Minocycline
Study Slated at 24 Sites· Myotrophin Study Ready to Launch·
Multidrug Approach Gains Momentum· Move Over, SOD1·Disappointed
with Kelly AFB Study· Social Security Process May be Streamlined
for Those With ALS· 'David Jayne Amendment' Reintroduced
in Senate·May Is ALS Awareness Month ·
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- MDA/ALS
Newsletter v8 n3 March 2003
- MDA Conference to Explore Clinical Trial Design·
Congnitive Deficits in ALS Are Usually Subtle · ALS Online·
ALS Research Roundup · Center Director to Be Part of Large ALS
Respiratory Study· Minocycline Trial to Change Slightly·
Neuronal Stem Cells Found in Blood· Anti-HIV Drugs Investigated
for ALS· Why Run for ALS? It's Personal·Benefits of Service
Dogs to Be Studied· Missouri Minister Delivers Opening Prayer
for U.S. House· ALS Doesn't Masquerade As Lyme Disease, Experts
Say·Infection Derails Test of 'Brain Communicator' in Activist
Jayne· Foundation Offers Free Computers·
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- MDA/ALS
Newsletter v8 n2 February 2003
- 'Drug Cocktail' Shown Doubly Effective Against ALS in
Mice · Classic Car Garden Party Benefits San Francisco MDA/ALS
Center · Quest Looks at Talking with Technology · ALS
Research Roundup · From Bone Marrow to Brain · Study of
Genetic, Environmental Risks Needs Your Help · Researchers Probe
Marijuana in ALS · Pentoxifylline Under Study in Europe ·
READERS RESPOND— Is ALS a Disability or a Fatal Disease? ·Miami
Man Finds ‘Freedom Land’· Changes Made in Medicare
Payments · ALS Community Protests Kelly AFB Findings ·Reducing
Caregiver Stress May Help Loved One’s Depression · Quality
of Life Relates to Fatigue, Depression · News and Notes From
MDA Online · ALS Caregiver Guide Available Online ·
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- MDA/ALS
Newsletter v8 n1 January 2003
- FINDING ALTERNATIVES AT ALL STAGES —Talking with
ALS Center Director Jeffrey Rosenfeld — Multidrug Study at Carolinas
Center ·ALS Research Roundup · MDA Seeks Researchers to
Conduct Cord Blood Trial · Topiramate Shows No Benefit in ALS
·'Corn Belt' Study Expands Across United States · Gene
Behind pmn May Hold Clues to ALS ·CORRECTION · ALS —
A Disability or a Fatal Disease? ·Nodaros Helps Others While
Helping Himself · Caregiver Support Programs Innovative —
But Going Nowhere · Scientist Traces His Journey ·ALS
Chats Gear Up for New Year ·
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- MDA/ALS
Newsletter v7 n10 December 2002
- Colorado Couple to Co-Chair MDA’s ALS Division ·
ALS Research Roundup · Doctors Discuss ALS Treatment Trends
at MDA Gathering · ALS Researchers Meet in Melbourne and
Review Drug Progress · Scientists Report Progress Toward
Drug Therapies · No ALS ‘Cluster’ Found at Kelly Air Force
Base · Protection and Prevention Are Keys to Comfortable
Skin · Comfort Food for Skin · Are You Eligible
for VA Benefits? · VA Studies Show ALS Link to Gulf War
· AAC Device Pops the Question — on the Telethon ·
MDA Opens 29th ALS Center in Nashville ·
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- MDA/ALS
Newsletter v7 n9 November 2002
- KEEP TALKING WITH TECHNOLOGY — What You Need to Know About
AAC Devices · AAC Resources · Speaking (With)
Your Mind · Depression in ALS: Looking at the Evidence ·
Vermont Doctor Prescribes Hope · ALS Research Roundup ·
Wings Over Wall Street WOWS New York, Raises $1.8 Million ·
Spiritual Resource for Caregivers ·Rare Diseases Legislation
Passed by Congress ·
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- MDA/ALS
Newsletter v7 n8 October 2002
- Getting Aggressive About Care — Talking With ALS Center
Co-Director Greg Carter· Anthony Vitale, Pioneer of DECtalk,
Dies After 9-Year Battle With ALS · Exercise Has Many Benefits
for People With ALS ·ALS Research Roundup · Free
Telephone Service Offered for Those With Speech Difficulties ·
Take Falls Seriously to Prevent Further Injuries · Home Rehabilitation
Services: OT/PT Evaluation · Thanks to Jerry Lewis for Leading
the Telethon ·
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- MDA/ALS
Newsletter v7 n7 September 2002
- It Takes a Village to Fight the System ·
ALS Research Roundup · Baylor Center Director Tries Transplanting
Bone Marrow in ALS · Medicare Homebound Restriction: Agency
Clarifies Language · Cruisin’ With Karen and Her Pals ·
Noninvasive Ventilation Prolongs Life If Used Right, MDA Clinic Director
Says · Tips for Caregivers: Handling a Loved One’s Depression
· Book Addresses Kindness and Caregiving · Oriole
Park Site of Baltimore Art Exhibit · New York Study Focuses
on Coping · MDA/ALS Centers Open in Seattle, San Antonio
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- MDA/ALS
Newsletter v7 n6 August 2002
- Trials Help Scientists Take Small Steps to Big Goals,
New Mexico Director Says · U.S. House Waters Down Medicare
Homebound Amendment · Online Government Site Compiles Gulf
War-Related Research · Telethon to Showcase ALS in Profiles
· ALS Research Roundup · Beier Fights ALS With
Words, Actions and Some Wall Street Friends · Caregivers:
Say 'Yes' to Offers of Help · 26th MDA/ALS Center Opens
in Irvine
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- MDA/ALS
Newsletter v7 n5 July 2002
- High-Tech Talk Family Masters Communication Device
in Advance of Need · Cord Blood: Banking on a Cure ·
Potent Stem Cells Found in Bone Marrow · Connecticut Man
Fights to Teach · Five Honored With MDA Achievement Awards
· Ukrainian Clinic 'Stem Cell Treatment' Probed ·
Caregivers Invited to Try Journal Writing · MDA's Caregiver
Guide Revised · New Care Book Focuses on Quality of Life
· 'Virtual' Reminder ALS Online
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- MDA/ALS
Newsletter v7 n4 June 2002
- Evidence Mounts for Minocycline in ALS, With Caution·
New Study Explores Connection Between Athletics and ALS·
Botulinum Toxin, Radiotherapy Show Promise in Controlling Saliva·
Study to Evaluate Speech Synthesis System Needs Participants in ALS·
ALS Marker Study Under Way in New York· Parenthood and ALS
Love Wins Out Over Doubts· Art Exhibit Travels to
Boston· ALS Prayer Chain Offers Caregivers a Way to Fight·
Jayne Hopes Washington Crusade Will Slay Homebound Restriction·
Lange to Lead Online Chat· Mingus Biography Released·
Letters· MDA Adds Coverage of Communication Devices·
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- MDA/ALS
Newsletter v7 n3 May 2002
- ALS Awareness Month Highlights MDA's Leadership in Research,
Services· Gene Therapy for ALS a Step Closer to Reality·
Bats & Nuts Yield Environmental Clue to ALS on Guam·
Rilutek Safe but Weak; Better Drugs May Be on the Way· MDA's
ALS Division Offers Unparalleled Services· MDA/ALS Research
and Clinical Centers· Attitude is Everything, Harwood Says·
Letters· Health Cluster Tracking Bill Introduced in Senate
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- MDA/ALS
Newsletter v7 n2 April 2002
- MDA Art Exhibit to Raise Awareness of ALS·
May Is ALS Awareness Month· ALS Centers Get Boost From New
York Gala· ALS Research Roundup· ALS Studies,
Clinical Trials Need Volunteers· Public Service Still Defines
Maine Man Mayo· Communication Is Key: Larry Cisneros Keeps
Channels Open in Work and Life· Equipment Survey Can Help
With Planning· Medicare Guidelines Revised on Cough Device·
Rare Diseases Acts Introduced in the House
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- MDA/ALS
Newsletter v7 n1 February 2002
- Wisconsin ALS Expert Pursuing Viruses, Tamoxifen &
Gulf War Exposure· TV's "Becker" to Feature ALS·
Congress Considers Homebound Reform, Gulf War Benefits·
Do You Call Yourself a 'Caregiver'?· Respiratory Issues
in ALS· ALS Is a 'Gift in Disguise' for Noted Physical Therapist·
Rilutek Assistance· ALS Research Roundup
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