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Scott Stafne
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Name: Scott Stafne

City, State: Woodbury, MN

Age: 34

Family:
Wife – Kristen
2 year-old daughter Eva

Hobbies/Interests: Skiing, film/video and music.

Date of ALS diagnosis: August 31, 2004

Life before ALS: Life was hectic and driven, but in retrospect, like a walk in the park.  Things were going wonderfully.  We’d been happily married for two years and were expecting our first child.

Life with ALS: Life is exponentially more hectic, and often overwhelming, but far more rewarding and focused.  Our daughter is nearly two and we put all of our energy into being good parents and surviving each stage in my declining health.  Every day is a challenge.

How has ALS brought new significance to your life: We know first hand how important living in the moment is.  We now try to approach living very much as before in terms of activities, but with an emphasis on doing things now and not assuming we’ll have the opportunity later.  We struggle to be realistic and accepting while maintaining a sense of hope.  We try to keep the focus on living rather than dying, and we try to raise awareness and funding.