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ALS: Anyone’s
  L
ife Story”
May 2007
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Scott Stafne
Video Profile - 56k | 128k | 512k

Name: Scott Stafne

City, State: Woodbury, MN

Age: 34

Family:
Wife – Kristen
2 year-old daughter Eva

Hobbies/Interests: Skiing, film/video and music.

Date of ALS diagnosis: August 31, 2004

Life before ALS: Life was hectic and driven, but in retrospect, like a walk in the park.  Things were going wonderfully.  We’d been happily married for two years and were expecting our first child.

Life with ALS: Life is exponentially more hectic, and often overwhelming, but far more rewarding and focused.  Our daughter is nearly two and we put all of our energy into being good parents and surviving each stage in my declining health.  Every day is a challenge.

How has ALS brought new significance to your life: We know first hand how important living in the moment is.  We now try to approach living very much as before in terms of activities, but with an emphasis on doing things now and not assuming we’ll have the opportunity later.  We struggle to be realistic and accepting while maintaining a sense of hope.  We try to keep the focus on living rather than dying, and we try to raise awareness and funding.

 
 
 
 
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