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Tiffany Macias
Tiffany Macias

Name: Tiffany Macias

Hometown, State: Lansing, MI

Age: 38

Family:
Husband: Tony Macias
Children: Mackenzie, 10; Silas, 5; and Avery, 2

Hobbies/Interests:
Family, photography and scrapbooking

Date of ALS diagnosis:
June 28, 2007

Tell us about your life before ALS:
Very outgoing mother involved in the children’s school as a tutor and very outspoken and involved in church activities as a leader. Strongly independent and focused on helping my children learn to read and answer homework questions.

Tell us about your life with ALS:
I have had to learn to rely on others to get things done. I am no longer in a leadership role in any organization but my own (Make a Joyful Noise). I no longer read bedtime stories to my children or help them with homework.

Tell us how ALS has brought new significance to any aspect of your life - family, attitude, hobbies/passions, career, etc.:
I have learned that although my voice is not as loud or understandable as it once was, I still, indeed have a voice. I have chosen to use that voice to bring attention to ALS. As I believe the more people we educate about ALS the more strength we have to fight for a cure for ALS.