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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

 
Loren Dils
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Loren Dils

Hometown, state: Albuquerque, N.M.

Age: 43

Family (spouse/partner; child, grandchildren): Wife, Elaine, and two sons ages 2 and 4.

Hobbies/Interests:  Tennis; fly fishing; Southwest archeology; gardening.

Favorite quote: 1) If you think you can or you think you can’t, you are right; 2) Average is as close to the bottom as it is to the top.

Date of ALS diagnosis: March 2008

Tell us about your life before ALS: I played college and professional tennis, then coached collegiate tennis for the last 18 years. My wife and I were avid travelers until we had our two sons, when we discovered airplane flights were not as fun. Most recently, I thrived on chasing my boys and teaching them my passions of the outdoors.

Tell us about your life with ALS: Although I am slow in my progression, the activities in which I can partake are being reduced. I have learned to cherish life and appreciate any time we are given. As when my wife was pregnant, I have found that many people have good intended advice that is not always wanted. I am grateful, however, to have all of these people in my life…where would I be if I didn’t have people who cared so much?

Do you have a “life motto” or profound words to live by? Make everyone feel as important as you want to feel.

Has there been an “aha!” moment or a specific turn of events that has helped you live with ALS? When I quit looking for a miracle cure or treatment. I decided to live the best life I can.

Tell us how ALS has brought new significance to any aspect of your life — family, attitude, hobbies/passions, career, etc.: The balance of my focus has shifted much more to my family. My career has significantly changed direction, but it and my hobbies fall a distant second to my family. These ultimately are just not that important.

Is there anything else about you and/or ALS that you want to share with people who read your story?  Many years ago when I first heard the story of Lou Gehrig, I immediately thought, “I will be the one who gets this disease.” Ironically, my wife’s grandfather had ALS, too.

 
 
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