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ALS: Anyone’s
  L
ife Story”
May 2008
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Dian Alolor
Dian Alolor

Name: Dian Alolor

Hometown, State: Sioux Falls, SD

Age: 64

Family:
Children: Shane, Kimberly, Heather
Grandchildren: Amanda and Brandon (Shane’s children), and Ian, Laurel and Isaac (Kimberly’s children)

Hobbies/Interests:
Reading, computer, grandchildren, politics, friends, church

Date of ALS diagnosis:
November 2005

Tell us about your life before ALS:
My life was busy. I worked full time and volunteered. I was a member of the United Methodist Women and several other clubs. I spent a lot of time with friends. I made puzzles, baked, knit, crocheted – everything! I was fearless! I even sky-dived.

Tell us about your life with ALS:
I still use the computer and read and I still have friends and family who I visit with. I do my best to learn all I can about ALS. It’s challenging to deal with the day to day changes in my abilities. I still have great faith and pray a lot. I’ve learned the meaning of “acceptance.”

Tell us how ALS has brought new significance to any aspect of your life - family, attitude, hobbies/passions, career, etc.:
ALS makes me appreciate things more. I really see the beauty in life. My faith is stronger and I enjoy the support group and appreciate the people who dedicate themselves to caring for the people who have ALS and researching the causes of ALS.

List your favorite quote: “Yea though I walk through the shadow of death, I will fear no evil, for Thou art with me.”

Do you have a “life motto” or “profound words to live by”: Acceptance!

Has there been an “a-ha!” moment or a specific turn of events that has helped you live with ALS?
It would have to be when I was diagnosed with ALS. It meant that my symptoms made sense.

Is there anything else about you and/or ALS that you want to share with people who read your story?
This is not the type of retirement that I expected, but I am thankful for all the many things I have done in my life. I have been blessed with excellent family and friends. And I am prayed for from Hawaii, across the States, and to the Philippines.

 
 
 
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