04.17.2006
02:45 PM - 06:15 PM EDT
ALSchat / LivingwithALS

db273 -- {welcome db273}
dannyd -- {welcome dannyd}
dannyd -- Hi Dick Long time no see
db273 -- hi danny
db273 -- been busy doing nothing like always
dannyd -- How's Wednesday nights going?
db273 -- going good so far
db273 -- how are you today danny
db273 -- brian makes it easy
dannyd -- I'm doing good
dannyd -- I had a good clinic visit last week
db273 -- good
db273 -- oh tell me what they did
dannyd -- My FVC went from 69% in December to 83%
db273 -- great danny
dannyd -- I used some nose spray to help with the allergies
db273 -- think it is the climate
db273 -- what kind of nose spray
dannyd -- Can you think of anyone to help co-host now that Susan is gone?
db273 -- no i can't danny unless bill does not get his nights from mda why don't you ask him
dannyd -- Nasonex and Astelin
dannyd -- Who's Bill?
db273 -- they are ovc meds right
db273 -- mr edwards
dannyd -- No Rx
db273 -- ok
pigiron308 -- {welcome pigiron308}
dannyd -- Hi Jim
db273 -- hi jim
pigiron308 -- hi Danny & Dick
db273 -- how are you today jim
pigiron308 -- how are Y'all
db273 -- i am good
pigiron308 -- just fine
pigiron308 -- great
pigiron308 -- I just sent a note to an advocacy group in Ohio
db273 -- yes
pigiron308 -- I hope they are active
dannyd -- for stem cells?
db273 -- me too and help a bunch
pigiron308 -- yes
db273 -- a dr here at u of l got some stem cells through the nose and that would take the worry out of some people
pigiron308 -- I think we are getting close enough to override a veto on HR810
db273 -- good
db273 -- he got a mouse to walk that was crippled
dannyd -- I'll be right back. Gotta get my son from school
db273 -- but like a lot of things it is a splash on the news and then nothing
db273 -- ok danny
pigiron308 -- yes there are lots of things being developed but until one proves to be the Holy Grail we must pursue all
db273 -- that is for sure
pigiron308 -- did the song work
db273 -- when all is done think it will be something simple in the end
pigiron308 -- probably
db273 -- never got it unless i did not recognize sender
db273 -- where did you send it jim
pigiron308 -- hugh-let me check brb
pigiron308 -- 'db273@insightbb.com'
bill-ma -- {welcome bill-ma}
pigiron308 -- 4-13
pigiron308 -- 4-13
pigiron308 -- hi bill
db273 -- that is right and must of not recognized the sender please send it again jim and put song in title
bill-ma -- hello. How is everyone?
db273 -- hi bill
pigiron308 -- ok on the way
db273 -- i am good and you
bill-ma -- I am fine. It has a long time since I've been on this site.
db273 -- well welcome back
db273 -- where are you from and are you pals or cals
bill-ma -- usually I have two volunteers that come and on Monday around 3 p.m. they are not here today, so I am free.
db273 -- well we have other times now too
bill-ma -- I am in the Boston area, and I am pals.
bill-ma -- how about you?
db273 -- wed at 7 est and sun at 3 est and mon eve at 7 est too
pigiron308 -- just sent it dick
pigiron308 -- just sent it dick
db273 -- oh yes we have talked before on chatzy
bill-ma -- I will note those times
db273 -- thanks jim
db273 -- you are sox fan
bill-ma -- yes, I participate on chatzy
db273 -- you have talk and type program
pigiron308 -- Virginia here bill - I am Jim
bill-ma -- I used Dragon NaturallySpeaking.
bill-ma -- sometimes it works very well, but when my wind gets weak, it makes lots of mistakes.
db273 -- i had an old one got at first called kurtzweil i think
bill-ma -- to go back to an earlier question, I am an Oakland A's fan first, a Sox fan second.
db273 -- i got both in case but now voice is not good enough for that but am blessed can still type
db273 -- sorry bill my mistake
bill-ma -- you're lucky that you can still type. I would prefer to type, but I lost that facility long ago.
db273 -- yes i agree
bill-ma -- no problem,db. I was rooting for the Sox today, and they won.
db273 -- good bill i have to watch cubs at 10 tonight on internet
blueeyes1 -- {welcome blueeyes1}
blueeyes1 -- cubs are doing good huh dick?
db273 -- hi jen
bill-ma -- I guess you can tell those that dictate, because we are the long-winded ones... LOL
bill-ma -- hello Jen
db273 -- yes jen they are so far and just wait till woods and prior come back
bill-ma -- do you watch baseball on the Internet through MLB.com?
blueeyes1 -- bill I saw sox in AZ spring training game
db273 -- love to hear from anyone bill whether short or long
pigiron308 -- pull for Schilling he is a great ALS supporter
db273 -- yes bill paid 80 bucks and is my third year of it
db273 -- yes he is
bill-ma -- if you are to Jen one chatzy, I think we spoke just before you went to Arizona. I am envious.
db273 -- me too
blueeyes1 -- yup took great pix
db273 -- but no gals jen
bill-ma -- it turns out that one of the Red Sox relievers, Timlin, is also a big supporter of ALS.
db273 -- each team has to have one person on als team
blueeyes1 -- wow interesting...guess what I am trying to do
mr.-edwards -- {welcome mr.-edwards}
db273 -- hi bill ed
pigiron308 -- Cal Ripkin is too
db273 -- write ophah
bill-ma -- what?
blueeyes1 -- ohh yeah I wroe oprah did you see that dick
pigiron308 -- hey E. how ya doing
mr.-edwards -- hello; see we will have to distinquish between two "Bills".
db273 -- yes i did on chatzy this morning
blueeyes1 -- hi MR
blueeyes1 -- no actually my local als foundation sent me 100 als bracelts I am making a pitch to our local starbucks to carry them for doantion to research
db273 -- oh good jen
blueeyes1 -- di dyou like the letter dick?
pigiron308 -- great
db273 -- sorry jen did not read it
blueeyes1 -- and if I can get the one store to carry them I am going to the district
bill-ma -- me neither
db273 -- saw it on living with als newsletter as i think of it now
blueeyes1 -- I forgot to put my age in there
db273 -- 21
bill-ma -- :-)
pigiron308 -- thats it
db273 -- you go jen
blueeyes1 -- yup 21 and counting
db273 -- right pat says i am 69 this year and next will be 69.95
blueeyes1 -- when I told hubby about my idea with starbuck's he laughed at me and said we should own one by now :)
blueeyes1 -- hehehe I like that one
db273 -- at their prices that is for sure
bill-ma -- Ahh,, to be 21 again.
blueeyes1 -- no my son would be one wouldn't do it again
pigiron308 -- BillE were you able to contact Tampa ALSA?
blueeyes1 -- i'm going to try to go to maine in July
pigiron308 -- wow nice
bill-ma -- Jen, where in Maine do you go?
db273 -- it will be nice stop in portland and eat at demilos on the bay
mr.-edwards -- yes; but Jacksonville would not take insurance!
bill-ma -- I like the old town part of Portland.
pigiron308 -- grrr
blueeyes1 -- going to meet a friend from brain talk..another chat...portland
db273 -- sorry bill ed
blueeyes1 -- ed whats going on with the alsa in tampa?
pigiron308 -- I have friends around Kittery
mr.-edwards -- They were going to provide the transport to Jacksonville!
db273 -- would mda pay for any or it cause i went to st louis out of my area and they paid
dannyd -- Hi folks I'm back
db273 -- wb danny
blueeyes1 -- wb danny
bill-ma -- Welcome back Danny
mr.-edwards -- mda would pay only for transport.
blueeyes1 -- MDA paid for my visit to ALS clicnic insurance was out of network
pigiron308 -- wb Danny
pigiron308 -- There are MDA clinics at Sarasota & St. Pete
blueeyes1 -- have yoiu called als to see what they would do if MdA covers the transport?
blueeyes1 -- I would talk to the director of the clinic
pigiron308 -- Dick, we had a lot of fun in those days
blueeyes1 -- brb
db273 -- sounds like you did from her voice jim
pigiron308 -- thanks
db273 -- did she play in clubs jim
pigiron308 -- oh yes for years but kept working at the Pentagon
db273 -- great jim
bill-ma -- it was good to talk you. I have to go. Take care.
bill-ma -- {goodbye bill-ma}
db273 -- bye bill ma
pigiron308 -- bye bill
db273 -- was she at pentagon on 9/11 jim
blueeyes1 -- ok back
db273 -- wb jen
pigiron308 -- She did a lot of work for Casper Weinberger
db273 -- ok jim
pigiron308 -- no she took an early out one year after I did
db273 -- good
pigiron308 -- her best friend was right where the plane hit but survived
db273 -- great
pigiron308 -- she walked to our house because they wouldn't let people move their cars
blueeyes1 -- I'll talk to you guys later have to take pain meds for back take care..hugs
db273 -- some great stories there our friend from cencus bureau in washington was at restaurant in next too world trade center that day and walked about 50 blocks she said and lost all her stuff in motel
pigiron308 -- we heard the plane
db273 -- bye jen
pigiron308 -- bye jen
blueeyes1 -- {goodbye blueeyes1}
pigiron308 -- all of the jets fly up and down the Potomac so when one comes by us something is wrong
db273 -- been to washington one time
pigiron308 -- me too ;0)
db273 -- lol jim
pigiron308 -- my mother worked for the CIA before the move to Langley and I would pick her up. When I got there early I would walk up and down the Washington Monument for exercise
db273 -- very pretty there
pigiron308 -- they won't let people do that now
pigiron308 -- yes
db273 -- i get tired thinking of all we did there in 3 days
pigiron308 -- Inside the Monument are blocks donated by different states during the construction and each is marked
db273 -- it was closed for repairs when we were there but took a peak in
db273 -- we were told no building in washington can be taller than it
pigiron308 -- theae asses started spraying graffiti on them so they stopped letting people use the stairs. Ruined it for everybody
pigiron308 -- yes
pigiron308 -- did you know that if all of the gold in the world was melted down and shaped like the Washington Monument it would be about 1/4 the height
pigiron308 -- just a tidbit
db273 -- no did not know that
db273 -- we have some around here or used too
pigiron308 -- seems impossible
db273 -- i have to go eat now so all take care and see you all later
pigiron308 -- my mouth has enough for the first course of bricks
ragingbear -- {welcome ragingbear}
db273 -- {goodbye db273}
pigiron308 -- bye Dick
pigiron308 -- hi Jeff
ragingbear -- Hi Jim!
dannyd -- Hi Jeff
ragingbear -- Hi Danny!
ragingbear -- How's everyone doing?
dannyd -- How's the closet and website going?
ragingbear -- I have been sick for 2+ weeks so not much has happened with them although the store finally had it's first sale!
pigiron308 -- Danny, that town I told you about is Zulch TX
dannyd -- What were you sick with?
dannyd -- Refresh my memory Jim
pigiron308 -- Pastor Loeschman
ragingbear -- Boy I was shocked and saddened by Susan's death. I knew she was having serious issues but not that severe.
dannyd -- How are we going to replace her?
ragingbear -- First I had a NASTY head cold immediately followed by a NASTY stomach virus both thanks to visitors!
pigiron308 -- We do our best to screen visitors for colds
ragingbear -- You can NEVER replace a special spirit like Susan but hopefully her spirit can live on through those us who have known her.
ragingbear -- Mine came from my trach nurse and my mom.
ragingbear -- I think Jen (blueeyes) would be a good host and Jim would you like to join our hosting team?
dannyd -- I meant as a chat host.
pigiron308 -- I wouldn't mind
ragingbear -- I know but I just wanted to pay tribute to Susan on this chat that meant so much to her.
ragingbear -- Jim we need someone for tonight's chat and the Sunday chat could will do either or both?
pigiron308 -- I would like an opinion from y'all. I have drafted a letter to Ministers
pigiron308 -- I should be here tonight
pigiron308 -- Sunday possibly
pigiron308 -- My biggest problem is remembering
pigiron308 -- Dear Pastor , My name is Jim and I have ALS, otherwise known as Lou Gehrig’s disease. Not being a member of your congregation puts me in rather odd position but since my church has no current pastor I am writing to you and a number of other ministers. I have been bedridden for over three years and studying the Bible is one of my pastimes. For the last 6 months I have studied the Bible verses that are often quoted as the reason stem cell research is wrong. As I reviewed these passages most of them referred to the womb and the Bible clearly indicates life begins in the womb. I would greatly appreciate it if you would review my conclusions, as well as my analyses, of those passages below.
dannyd -- Sounds good
dannyd -- Hope it helps them et a better handle on it
mr.-edwards -- Sounds excellent to me as well- great work.
pigiron308 -- I am going to send them to as many as I can
pigiron308 -- nothing ventured
ragingbear -- Your main responsibilities are greeting people and warning them for abusive or offensive language. Can you be here for the majority of Monday night's chats Jim?
ragingbear -- Sounds good Jim
pigiron308 -- I will be here tonight-is there a problem with language
pigiron308 -- 9-11
ragingbear -- like cursing or being abusive to other chatters
pigiron308 -- Quite a few Mondays
pigiron308 -- I haven't seen any of that
mr.-edwards -- Does anyone know what the protein range should be in the "spinal tap"???
ragingbear -- it happens rarely and then the other thing you warn for is someone who's sole purpose is to sell something.
pigiron308 -- ah
ragingbear -- I do not know that off hand mr. E.
ragingbear -- I will submit your name to be a host Jim. Could you email me your first and last name, address, email address and MDA chat username so I can forward them to the chat administrator?
pigiron308 -- sure
mr.-edwards -- I submitted my name for host on Tuesdays Thursdays, and Satur days but have never heard back from them this was 2 weeks ago for time 7p-9p.
ragingbear -- It probably will not be until next Monday night's chat that you will have your hosting tools.
ragingbear -- Mr. E what was the concept for your chats?
mr.-edwards -- Could you explain what you mean, please; about concepts?
ragingbear -- like this one is "living" with ALS, another one is for caregivers and others are for positive thinking etc.
pigiron308 -- {welcome pigiron308}
mr.-edwards -- It would be the same just additional days and times.
pigiron308 -- sorry pc had a seizure
ragingbear -- Oh then we control the Living with ALS chats. I founded them 6 or 7 years ago
mr.-edwards -- I see it is getting close to "closing up shop" for this chat, so before it is too late, I plan to re turn for the 9-11.
dannyd -- We're having a hard time getting people to remember we're here more than just today
ragingbear -- Jim send your email to ragingbear@sbcglobal.net
mr.-edwards -- Ragingbear= does that mean I will not hear back from them at all???
pigiron308 -- jeff just sent the info. Let me know if you need more. oops -ok
ragingbear -- Mr. e would you like to help and host on Sunday and Monday night's? I do not know why they have not answered you.
mr.-edwards -- I am here anyhow, so the answer is "yes".
pigiron308 -- jeff sent
ragingbear -- I will submit it after the chat Jim. Mr. E email me your first and last name, address, email address and MDA chat username and I will submit you as a host. my email is ragingbear@sbcglobal.net
ragingbear -- Well in 5 minutes the chat ends so everyone have a GREAT week!
mr.-edwards -- Yes, sir. (just an expression) ha!!!
pigiron308 -- yes, you all too
mr.-edwards -- Have a wonderful and peaceful week!!!
pigiron308 -- you too
mr.-edwards -- {goodbye mr.-edwards}