04.24.2006
02:45 PM - 06:15 PM EDT
ALSchat / LivingwithALS

dannyd -- {welcome dannyd}
neeraj -- {welcome neeraj}
neeraj -- i've just come to know that i'm suffering from edmd.
dannyd -- Hi
dannyd -- How are you today?
neeraj -- fine. how r u
dannyd -- I'm doing great thanks
dannyd -- What is edmd
neeraj -- kind of muscle distrophy
dannyd -- what does the ed stand for?
neeraj -- u r a member n i pray to god that u should be allright
dannyd -- I have ALS
dannyd -- where are you from. I'm in Texas
neeraj -- Emery-Dreifuss Muscular Dystrophy
neeraj -- wat is als?
dannyd -- Lou Gehrig's disease
neeraj -- is it dangerous?
dannyd -- How old are u?
neeraj -- first i introduce myself to you i'm neeraj bajaj male/26/india
neeraj -- how about you?
dannyd -- Yes there is no cure and in most cases they don't know what causes it
dannyd -- My name is Danny and I'm 47
neeraj -- wat that exactly is? is it a kind of md. mine one also doesn't have any cure too.
neeraj -- are u a male too and from which country?
dannyd -- it's a kind of motor neuron disease
neeraj -- is there any life risk involve in ur disease.
dannyd -- yes male from USA
neeraj -- {goodbye neeraj}
dannyd -- most people live between 2 and 5 years after being diagnosed
db273 -- {welcome db273}
db273 -- hi danny
dannyd -- Hi Dick
db273 -- thought maybe you went to pick up at school
dannyd -- No he stayed home sick today
dannyd -- Stomach thing
db273 -- oh a helper
dannyd -- slow day
db273 -- yes saw yesterday too
dannyd -- don't know why more folks don't stop by
db273 -- we were busy last wed
dannyd -- are you getting the same folks or new ones?
db273 -- both
dannyd -- that's great
db273 -- yes seems to have caught on finally
db273 -- gtg my support is in few so need to get ready
db273 -- {goodbye db273}
pigiron308 -- {welcome pigiron308}
dannyd -- Hi Jim
pigiron308 -- hi Danny
pigiron308 -- how are you?
pigiron308 -- how are you?
dannyd -- I'm doing great and you?
pigiron308 -- fine ty
mem -- {welcome mem}
mem -- {goodbye mem}
pigiron308 -- where is everybody?
dannyd -- i don't know
dannyd -- been slow all day
pigiron308 -- Kind of depressing
pigiron308 -- same yesterday
dicky -- {welcome dicky}
dannyd -- Hi dicky
dicky -- Looks like dick is gone already, hadn't seen him in Chatzy for awhile so was going to say hello, but missed him i guess!
dannyd -- he had a support group to go to
dicky -- Are all the chat rooms slow lately! Not like back in 'o3 when I started coming.
dicky -- OK, well say hi if you think of it for me.
dicky -- Hi neeraj see your here now hope they have more info for you than we did in Caregivers chat!
dannyd -- It has been very hit and miss
dicky -- gtg, going out for dinner! Thanks!
dicky -- {goodbye dicky}
charley_r -- {welcome charley_r}
pigiron308 -- hi charley
dannyd -- Hi charley
charley_r -- Id like to get some information and resources and/or someone that could help me get some information on how trauma and injuries in accidents affect MD/Limb girdle advance patients. Thanks
pigiron308 -- Danny?
pigiron308 -- Charley I have someone' website who has that
pigiron308 -- but I need time to find it
pigiron308 -- I will look for it tonight my e-mail address is pigiron308@yahoo.com I am Jim
pigiron308 -- best I can do
pigiron308 -- did you get the address charley?