05.29.2006
02:45 PM - 06:15 PM EDT
ALSchat / LivingwithALS

ragingbear -- {welcome ragingbear}
ragingbear -- I hope everyone is having a terrific Memorial Day! I am on my way to a family BBQ so everyone have a GREAT week!!!
ragingbear -- {goodbye ragingbear}
redcountry -- {welcome redcountry}
redcountry -- {goodbye redcountry}
redcountry -- {welcome redcountry}
lou-or -- {welcome lou-or}
redcountry -- hi lou
lou-or -- Hi
lou-or -- What is your name?
redcountry -- julie
redcountry -- and you
lou-or -- Lou
lou-or -- Are you pals?
redcountry -- cals to my husband steve
lou-or -- How is he doing?
redcountry -- it has been a great weekend
redcountry -- but did fall off the ramp last night
lou-or -- Thats nice
redcountry -- we went to the drive in theater
lou-or -- Is he walking?
redcountry -- and it was 1.30 by the time we got home
redcountry -- no he has a invacare w/c
lou-or -- He fell in the w/c?
redcountry -- he was being stubborn and said he didnt have to tilt back and i couldnt hold it back and flipped right over the edge and the chair stayed teetering on the edge and he was in the grass
redcountry -- he wasnt hurt but he wasnt happy
lou-or -- Oh my!
redcountry -- yes, scary
lou-or -- I have a p/c too.
redcountry -- thank god it was late, because we would have put quite the show on for the neighbors
redcountry -- what kind of chair do you have
lou-or -- Quantum 600
redcountry -- at first he didnt like his chair and now that steve is used to it he really likes it
lou-or -- You were able to get him up ok?
redcountry -- quantums i here are very nice
redcountry -- yes it took some time and planning but we made it
lou-or -- I think it's ok.
redcountry -- steve is not a quitter,
redcountry -- he is like the ever ready bunny
redcountry -- there is very little that we dont do, or try to any way
lou-or -- I have miscle atrophy, can't walk but my breathing is ok right now. How about Steve?
redcountry -- muscle atrophy, cant walk, breathing good
redcountry -- has braces on both legs, hand braces at night, no use of hands, very little use of left arm
lou-or -- Same,huh? when was he dx?
redcountry -- first symptom 2-05 dx 6-05 and you
lou-or -- Do the braces help him stand?
redcountry -- no helps to keep his feet from dropping
lou-or -- I was dx 4-05
redcountry -- he can walk about 10 feet with a fore arm extented walker
redcountry -- so close to the time steve was, how old are you and where do you live
lou-or -- is it a fast progression?
redcountry -- steve is 44 and so am i we live in nebraska
redcountry -- steve has been even for about 10 weeks now
lou-or -- I am 66 and live in Oregon
redcountry -- at times i think back and yes i think it is
redcountry -- how is your progression
lou-or -- Pretty average I guess.
redcountry -- ive heard that you can do that with this desease,
redcountry -- what do you do for fun, lou
redcountry -- we garden, steve has made some beatiful flower beds for us through the years
lou-or -- its a pretty bad disease
redcountry -- yes
redcountry -- in my book it is the worst
lou-or -- Does he still do that?
redcountry -- yes we put all new side walks and drive in this spring and he can get to every inch of the property
redcountry -- and he more supervises me
lou-or -- I don't have any fun.
redcountry -- you need to change that lou
lou-or -- i just spend my time at the computer, waitin
lou-or -- to die
redcountry -- so you have a van to get around in
lou-or -- yes
redcountry -- you might be waiting a long time for that lou
redcountry -- what did you do for a living
lou-or -- it is a leisure camping van with a brawn lift.
redcountry -- do you go to mda clincs
redcountry -- clinic
redcountry -- sounds like you need to go camping
redcountry -- smores, hotdogs, hamburgers
lou-or -- No, I don't go to them. i was an engineer
redcountry -- lou, the clinic is very helpful
redcountry -- we go to support groups, and learn as much as we can, and steve really enjoys it
lou-or -- I 'm going to try camping this weekend
lou-or -- how does he keep his spirits up?
redcountry -- ive never been to oregon but ive heard that their are some beatiful places
redcountry -- they are not always up,
lou-or -- is he on any anti-depressants?
redcountry -- no, only a muscle relaxor
lou-or -- which one
mr.-edwards -- {welcome mr.-edwards}
redcountry -- zaniflex, sorry had a phone call
redcountry -- hi bill
mr.-edwards -- hi julie, hi lou
redcountry -- its nice to here from you
lou-or -- Hi
mr.-edwards -- had a storm, unable to get on until now.
redcountry -- eww, hope every thing is ok
mr.-edwards -- will you both be back tonight at 9pm?
redcountry -- im going to try
redcountry -- but i do need to shuffle on, steve has woke up from nap and is HUNGRY
mr.-edwards -- How about you, Lou?
redcountry -- im making fried potatoes and vidilia onions for supper one of his favorites
redcountry -- talk to you guys later, bye
redcountry -- {goodbye redcountry}
lou-or -- I'm here
mr.-edwards -- Thank you; will you be back later; at 9pm???
lou-or -- okay
lou-or -- {goodbye lou-or}
jozefk -- {welcome jozefk}
mr.-edwards -- {goodbye mr.-edwards}
jozefk -- hello to everyone. i was want to ask someone about josh croban. can someone tellme something about him please?
mr.-edwards -- {welcome mr.-edwards}
mr.-edwards -- I am sorry; do not know the name of josh croban!
jozefk -- that is some singer i think
mr.-edwards -- Sorry, I cannot help you on that one. I have no idea.
jozefk -- i tried with searching the interent but i can't fine that what i need. just some sites with his name and that's all. ok. thanks anyway
jozefk -- ok. maybe i typed it's name wrong. maybe it is josh groban
mr.-edwards -- Where did you see the name at???
jozefk -- anyway from where are you?
mr.-edwards -- Florida
jozefk -- i heard about it from one girl. she told me that it is a very nice music
mr.-edwards -- I have been too in grossed/involved in my research to listen to much music anymore.
jozefk -- :) ok. i just love to listen to a nice music. think it is enjoyable
mr.-edwards -- This chat will be closing down any min ute now but will re sume again at 9pm. tonight. Hope to see you then.
mr.-edwards -- Where are you at?
jozefk -- closing down? how come? and why? i'm from Europe
mr.-edwards -- This chat lasts from 3pm - 6;15pm on Mon days and then from 9pm - 11pm.
jozefk -- here is 00:12 right now and it is quite late. i have to work tomorrow and to get up about 6:20
mr.-edwards -- wow! hope to see you maybe Wednesday from 7pm-10pm.
jozefk -- ok. maybe. and what's your name? I'm joseph
mr.-edwards -- I don't know what that time would be in Europe!
mr.-edwards -- Bill
jozefk -- ok. i know. it is a 6 hours of difference