Living with ALS 2

db273 (Dec 3, 2007 8:36:12 PM)
hi

db273 (Dec 3, 2007 8:54:20 PM)
still here

db273 (Dec 3, 2007 9:05:25 PM)
still

Jim_VA (Dec 3, 2007 9:10:55 PM)
(This user has entered Living with ALS 2)

db273 (Dec 3, 2007 9:11:02 PM)
hi jim

Jim_VA (Dec 3, 2007 9:11:58 PM)
hi dick how are you

db273 (Dec 3, 2007 9:12:07 PM)
i am good and you

Jim_VA (Dec 3, 2007 9:12:23 PM)
fine ty

db273 (Dec 3, 2007 9:12:47 PM)
great

Jim_VA (Dec 3, 2007 9:13:39 PM)
have you been in the sigma chat lately

db273 (Dec 3, 2007 9:13:46 PM)
not for two weeks

Jim_VA (Dec 3, 2007 9:14:34 PM)
lol it has about that long for me

db273 (Dec 3, 2007 9:14:50 PM)
took a break

Jim_VA (Dec 3, 2007 9:15:15 PM)
they go too fast

db273 (Dec 3, 2007 9:15:32 PM)
not a problem for me lately i just listen mostly

Jim_VA (Dec 3, 2007 9:16:09 PM)
healthy youngsters

db273 (Dec 3, 2007 9:16:29 PM)
yes and they get talking so i stay quiet and learn

Jim_VA (Dec 3, 2007 9:16:35 PM)
relatively

db273 (Dec 3, 2007 9:16:49 PM)
seems like i got old in a hurry

Jim_VA (Dec 3, 2007 9:17:43 PM)
that is what I do mostly just listen

Jim_VA (Dec 3, 2007 9:18:00 PM)
I know that feeling

db273 (Dec 3, 2007 9:18:02 PM)
when it gets down to two or three might talk then

Jim_VA (Dec 3, 2007 9:18:15 PM)
yes

Jim_VA (Dec 3, 2007 9:18:44 PM)
how is Pat

db273 (Dec 3, 2007 9:18:59 PM)
poor redskins thought they had that game won

Jim_VA (Dec 3, 2007 9:19:33 PM)
yes they did

db273 (Dec 3, 2007 9:19:55 PM)
i lost with giants too thought bears had it won too

Jim_VA (Dec 3, 2007 9:21:06 PM)
I don't play

db273 (Dec 3, 2007 9:21:29 PM)
my son has a football pool and i play

Jim_VA (Dec 3, 2007 9:22:33 PM)
my oldest wants me to play that fantasy stuff

Jim_VA (Dec 3, 2007 9:22:46 PM)
but I don't

db273 (Dec 3, 2007 9:22:49 PM)
friend plays that i have no interest in that

db273 (Dec 3, 2007 9:23:29 PM)
are both your sons in town now

Jim_VA (Dec 3, 2007 9:24:04 PM)
Betty bought a condo in Daytona shores

db273 (Dec 3, 2007 9:24:18 PM)
that is near my sister

Jim_VA (Dec 3, 2007 9:25:19 PM)
yes the youngest us back in the Navy at Andrews

db273 (Dec 3, 2007 9:25:27 PM)
good

Jim_VA (Dec 3, 2007 9:25:58 PM)
where is your sister

db273 (Dec 3, 2007 9:26:09 PM)
port orange

Jim_VA (Dec 3, 2007 9:26:48 PM)
wow very close

db273 (Dec 3, 2007 9:27:18 PM)
she has been there about 10 years now moved around some but likes this place best so far

Jim_VA (Dec 3, 2007 9:27:48 PM)
we will use the Port Orange bridge

db273 (Dec 3, 2007 9:28:09 PM)
nice she is in a gated community i think a patio home

Jim_VA (Dec 3, 2007 9:28:48 PM)
we stayed in Port Orange a lot

Jim_VA (Dec 3, 2007 9:29:28 PM)
we are on the 5th floor

db273 (Dec 3, 2007 9:29:37 PM)
she is taking care of our mom with her two daughters and is back in fl resting while mom stays with leann in ny state before she goes to falls church for a while with kelly

Jim_VA (Dec 3, 2007 9:30:04 PM)
ah

db273 (Dec 3, 2007 9:30:32 PM)
my mailman friend has his for sale at coco beach he is on upper floor but says it is hard to sell right now in fact i need to call him and see what is up

Jim_VA (Dec 3, 2007 9:30:49 PM)
have you heard from ginger

db273 (Dec 3, 2007 9:31:03 PM)
a while back she talked for a while

Jim_VA (Dec 3, 2007 9:31:33 PM)
yes housing is down there

Jim_VA (Dec 3, 2007 9:31:59 PM)
how is she

db273 (Dec 3, 2007 9:32:07 PM)
all over i think my friend here had his for sale for a long time and came down a lot before he sold it

db273 (Dec 3, 2007 9:32:18 PM)
other friend can't sell his at all

db273 (Dec 3, 2007 9:32:36 PM)
she is fine been busy helping her son open a bar in portland or

Jim_VA (Dec 3, 2007 9:33:54 PM)
we got this for 130,000 below what they were asking last year

MichaelJ (Dec 3, 2007 9:34:08 PM)
(This user has entered Living with ALS 2)

db273 (Dec 3, 2007 9:34:11 PM)
it is buyers market right now

db273 (Dec 3, 2007 9:34:17 PM)
hi michael

Jim_VA (Dec 3, 2007 9:34:27 PM)
hi Mike

Jim_VA (Dec 3, 2007 9:34:45 PM)
how are you

MichaelJ (Dec 3, 2007 9:34:45 PM)
Hello

Jim_VA (Dec 3, 2007 9:36:59 PM)
Dick Mike is close to Phoenix

db273 (Dec 3, 2007 9:37:18 PM)
ok jim nice warm place to be

Jim_VA (Dec 3, 2007 9:38:22 PM)
Dick is in Louisville KY Mike

MichaelJ (Dec 3, 2007 9:38:32 PM)
Not a good day, I sprained my back getting out of bed this morning, but all in all it's been a beautiful day to temperature right now is about 64°

db273 (Dec 3, 2007 9:38:52 PM)
not even 50 here

Jim_VA (Dec 3, 2007 9:39:42 PM)
oh my hope the back is not too bad

Jim_VA (Dec 3, 2007 9:40:26 PM)
snow flurries in Baltimore

MichaelJ (Dec 3, 2007 9:40:31 PM)
I've been pretty immobile most of the day, but had a lot of support behind me, a whole bunch of people working with me to try to get my back feeling better.

MichaelJ (Dec 3, 2007 9:40:40 PM)
So how are you doing?

Jim_VA (Dec 3, 2007 9:42:14 PM)
fine ty except for the cold and the wind is terrible

Jim_VA (Dec 3, 2007 9:43:37 PM)
I am about 40 miles from Baltimore

Jim_VA (Dec 3, 2007 9:44:35 PM)
they said wind gusts up to 50

db273 (Dec 3, 2007 9:44:48 PM)
we had that last night

Jim_VA (Dec 3, 2007 9:45:23 PM)
moving east huh

db273 (Dec 3, 2007 9:45:44 PM)
i guess

db273 (Dec 3, 2007 9:48:05 PM)
i have to go out thur so watching to see how bad it will be pat has dr appt

Jim_VA (Dec 3, 2007 9:48:38 PM)
the temperature here is in the 30s

db273 (Dec 3, 2007 9:48:51 PM)
too dang cold for me

Jim_VA (Dec 3, 2007 9:49:58 PM)
how is she doing

db273 (Dec 3, 2007 9:50:28 PM)
she had catarack surgury and can see much better now monday she goes to see about new glasses

Jim_VA (Dec 3, 2007 9:51:01 PM)
great

db273 (Dec 3, 2007 9:51:20 PM)
yes we are very thank full

Jim_VA (Dec 3, 2007 9:58:19 PM)
i bet she was almost blind

db273 (Dec 3, 2007 9:58:29 PM)
yes almost total

db273 (Dec 3, 2007 9:59:01 PM)
my work got a lot easier lately and i am very thankful

Jim_VA (Dec 3, 2007 9:59:23 PM)
wow I am happy for both of you

db273 (Dec 3, 2007 9:59:51 PM)
thank you she wore me out with christmass decorations cause she could see now

Jim_VA (Dec 3, 2007 10:00:17 PM)
l0l

Jim_VA (Dec 3, 2007 10:00:31 PM)
nice

db273 (Dec 3, 2007 10:00:52 PM)
i need to get her shot now and get ready for bed i am sleeping more to keep my strength up so you all take care and talk at you later

Jim_VA (Dec 3, 2007 10:01:24 PM)
ok take care

db273 (Dec 3, 2007 10:01:27 PM)
(This user has left DigiChat)

Jim_VA (Dec 3, 2007 10:02:40 PM)
Dick was a regular here for a long time

Jim_VA (Dec 3, 2007 10:04:21 PM)
I met him at a fundraiser last year

aeras (Dec 3, 2007 10:04:25 PM)
(This user has entered Living with ALS 2)

aeras (Dec 3, 2007 10:04:35 PM)
I'm back

Jim_VA (Dec 3, 2007 10:05:39 PM)
hi Al Dick just left

aeras (Dec 3, 2007 10:06:11 PM)
it figures

aeras (Dec 3, 2007 10:06:15 PM)
i'm late

Jim_VA (Dec 3, 2007 10:07:16 PM)
his wife surgery on her eyes and she can see now

Jim_VA (Dec 3, 2007 10:08:01 PM)
great news

Jim_VA (Dec 3, 2007 10:08:46 PM)
she is diabetic also

aeras (Dec 3, 2007 10:08:59 PM)
that is great news

aeras (Dec 3, 2007 10:09:20 PM)
all except the diabetes

Jim_VA (Dec 3, 2007 10:09:43 PM)
yes

MichaelJ (Dec 3, 2007 10:10:22 PM)
Have anyone read the book "Eric is winning"?

Jim_VA (Dec 3, 2007 10:10:46 PM)
people don't realize how dangerous diabetes is

Jim_VA (Dec 3, 2007 10:11:03 PM)
not me

aeras (Dec 3, 2007 10:11:27 PM)
I haven't

Jim_VA (Dec 3, 2007 10:11:44 PM)
the general opinion is not good

Jim_VA (Dec 3, 2007 10:12:15 PM)
many have tried

MichaelJ (Dec 3, 2007 10:12:23 PM)
how do you mean a general opinion is not good?

Jim_VA (Dec 3, 2007 10:13:11 PM)
to be blunt people think it is bs

Jim_VA (Dec 3, 2007 10:13:30 PM)
many people

aeras (Dec 3, 2007 10:13:38 PM)
what is bs

Jim_VA (Dec 3, 2007 10:14:20 PM)
do either of you belong to PLM

Jim_VA (Dec 3, 2007 10:14:45 PM)
bull pies

aeras (Dec 3, 2007 10:14:53 PM)
I don't know what it is, so I guess not me

MichaelJ (Dec 3, 2007 10:14:56 PM)
Have gone through a good part of the book and I don't know what to think. To remove all toxins from your body, that's a pretty tall order.

Jim_VA (Dec 3, 2007 10:16:08 PM)
you can read about peoples opinion about that there

MichaelJ (Dec 3, 2007 10:17:39 PM)
I guess I am looking for that magic bullet that solution to fix the problem and I'm reading everything and anything that is associated with ALS. Being so new to the diagnosis, I find sifting through the good and bad information is very difficult at times I have four brothers who were also sifting through information, a whole host of friends, plus my daughters and my son.

Jim_VA (Dec 3, 2007 10:17:53 PM)
they have about 1400 people with listings of longevity, treatments, and meds

Jim_VA (Dec 3, 2007 10:19:21 PM)
we are all looking for that ;lol - you are not different lol

aeras (Dec 3, 2007 10:19:30 PM)
yup

MichaelJ (Dec 3, 2007 10:19:53 PM)
Do you have any lines on possible new treatments?

aeras (Dec 3, 2007 10:20:08 PM)
not

aeras (Dec 3, 2007 10:20:11 PM)
i

Jim_VA (Dec 3, 2007 10:20:19 PM)
I will get you a link to PLM

Jim_VA (Dec 3, 2007 10:20:29 PM)
brb

MichaelJ (Dec 3, 2007 10:20:32 PM)
What its PLM?

aeras (Dec 3, 2007 10:20:48 PM)
a ALS sight

Jim_VA (Dec 3, 2007 10:21:23 PM)
https://www.patientslikeme.com/user/login

MichaelJ (Dec 3, 2007 10:21:33 PM)
My physical therapists have shown up a.k.a. my daughters. They will do what we do in the range of motion exercises here shortly. That is after they have something to eat.

Jim_VA (Dec 3, 2007 10:22:23 PM)
ok I like rom

Jim_VA (Dec 3, 2007 10:22:38 PM)
join PLM

Jim_VA (Dec 3, 2007 10:23:07 PM)
it is all ALS

aeras (Dec 3, 2007 10:23:23 PM)
I'm going to try it tonight

Jim_VA (Dec 3, 2007 10:24:00 PM)
including treatments and meds that people take

MichaelJ (Dec 3, 2007 10:24:15 PM)
I'm checking out the webpage now

Jim_VA (Dec 3, 2007 10:24:22 PM)
also has a forum

aeras (Dec 3, 2007 10:24:38 PM)
I'm not much of a multi-tasker

Jim_VA (Dec 3, 2007 10:24:57 PM)
I belong as pigiron308

Jim_VA (Dec 3, 2007 10:25:50 PM)
been there for a year or more

Jim_VA (Dec 3, 2007 10:26:36 PM)
The organization is also into research

Jim_VA (Dec 3, 2007 10:27:12 PM)
ALS-TDI I believe

MichaelJ (Dec 3, 2007 10:27:48 PM)
Any thoughts about how much exercise a person should do?

Jim_VA (Dec 3, 2007 10:28:08 PM)
they report on drug trials

Jim_VA (Dec 3, 2007 10:29:19 PM)
yes I think exercise is good until it is impossible

aeras (Dec 3, 2007 10:30:05 PM)
I just joined

Jim_VA (Dec 3, 2007 10:30:17 PM)
MDA and ALSA also report in drugs

Jim_VA (Dec 3, 2007 10:30:59 PM)
good I think that you will like it

aeras (Dec 3, 2007 10:31:50 PM)
Ihave to wait for the e-mail

Jim_VA (Dec 3, 2007 10:33:38 PM)
Paul Wicks runs it and he attends the conferences he is a PhD and he will respond to questions

aeras (Dec 3, 2007 10:35:09 PM)
(This user has left DigiChat)

Jim_VA (Dec 3, 2007 10:36:36 PM)
I wrote to the top professor at the Harvard Stem Cell Institute and he answered

aeras (Dec 3, 2007 10:36:54 PM)
(This user has entered Living with ALS 2)

Jim_VA (Dec 3, 2007 10:37:03 PM)
wb

aeras (Dec 3, 2007 10:37:34 PM)
I went to my mail

aeras (Dec 3, 2007 10:37:48 PM)
and got booted from here

Jim_VA (Dec 3, 2007 10:38:09 PM)
lol

aeras (Dec 3, 2007 10:38:14 PM)
lol

aeras (Dec 3, 2007 10:38:24 PM)
I get booted alot

Jim_VA (Dec 3, 2007 10:38:53 PM)
here is a link to ALS TDI

Jim_VA (Dec 3, 2007 10:39:10 PM)
http://www.als.net/articles/articleDetail.asp?articleID=4537

Jim_VA (Dec 3, 2007 10:40:24 PM)
ALS Therapy Development Institute

aeras (Dec 3, 2007 10:40:55 PM)
got it

Jim_VA (Dec 3, 2007 10:41:45 PM)
this is my e-mail pigiron308@yahoo.com

Jim_VA (Dec 3, 2007 10:43:06 PM)
I like to read about treatments

aeras (Dec 3, 2007 10:43:45 PM)
my e-mail is justal650@g-mail.com

Jim_VA (Dec 3, 2007 10:44:11 PM)
I am in several gene trials

aeras (Dec 3, 2007 10:45:19 PM)
I hope they aren't prosecuted

aeras (Dec 3, 2007 10:45:25 PM)
lol

Jim_VA (Dec 3, 2007 10:46:11 PM)
lol

Jim_VA (Dec 3, 2007 10:47:16 PM)
they had a devil of a time getting enough blood

aeras (Dec 3, 2007 10:47:29 PM)
I bet

aeras (Dec 3, 2007 10:48:06 PM)
if your drs. are like mine they don't leave you enough to check out for testing

Jim_VA (Dec 3, 2007 10:49:38 PM)
I have like a blue tattoo in my arm from all of the blood draws

Jim_VA (Dec 3, 2007 10:50:23 PM)
have you ever had an ABG

aeras (Dec 3, 2007 10:51:05 PM)
what is ABG

Jim_VA (Dec 3, 2007 10:51:46 PM)
Arterial Blood Gas

aeras (Dec 3, 2007 10:52:09 PM)
yeah when I was in coma

aeras (Dec 3, 2007 10:52:22 PM)
and after I cameout

Jim_VA (Dec 3, 2007 10:52:32 PM)
in the side of the wrist

aeras (Dec 3, 2007 10:52:55 PM)
and again when I was at one of my appointments

aeras (Dec 3, 2007 10:52:58 PM)
yes

Jim_VA (Dec 3, 2007 10:53:05 PM)
that is fun

aeras (Dec 3, 2007 10:53:11 PM)
k

Jim_VA (Dec 3, 2007 10:54:12 PM)
I have had a bunch

Jim_VA (Dec 3, 2007 10:54:37 PM)
4 in one day

Jim_VA (Dec 3, 2007 10:56:48 PM)
I have a g-mail account but don't use it

aeras (Dec 3, 2007 10:57:22 PM)
I have a yahoo acct and don't use it

Jim_VA (Dec 3, 2007 10:57:34 PM)
lol

aeras (Dec 3, 2007 10:57:38 PM)
lol

Jim_VA (Dec 3, 2007 11:08:31 PM)
do you use mozilla firefox

Jim_VA (Dec 3, 2007 11:12:30 PM)
well it is almost time and I hope to see y'all Wednesday

aeras (Dec 3, 2007 11:12:45 PM)
I don't know what that is

aeras (Dec 3, 2007 11:13:18 PM)
I'll see y'all wednesday

Jim_VA (Dec 3, 2007 11:13:38 PM)
take care- it is a browser

aeras (Dec 3, 2007 11:13:48 PM)
it tha southern way

aeras (Dec 3, 2007 11:14:13 PM)
ok

aeras (Dec 3, 2007 11:14:16 PM)
(This user has left DigiChat)

Jim_VA (Dec 3, 2007 11:14:23 PM)
(This user has left DigiChat)

MichaelJ (Dec 3, 2007 11:16:05 PM)
(This user has left DigiChat)