Living with ALS 2

pete46 (Jun 29, 2009 8:01:18 PM)
(This user has entered Living with ALS 2)

pete46 (Jun 29, 2009 8:02:39 PM)
hi jim

elliebedelia (Jun 29, 2009 8:03:37 PM)
(This user has entered Living with ALS 2)

elliebedelia (Jun 29, 2009 8:03:52 PM)
good evening

pete46 (Jun 29, 2009 8:04:01 PM)
hi ellie

pete46 (Jun 29, 2009 8:04:12 PM)
how are you

elliebedelia (Jun 29, 2009 8:04:32 PM)
i am very tired I just got moved back to Vt

pete46 (Jun 29, 2009 8:04:51 PM)
from where

elliebedelia (Jun 29, 2009 8:05:26 PM)
from Ct I moved back here Vt and live with my mom

pete46 (Jun 29, 2009 8:05:45 PM)
does one of you have als?

Jim_VA (Jun 29, 2009 8:06:04 PM)
Hi Pete and

elliebedelia (Jun 29, 2009 8:06:37 PM)
no pete I have myatonic muscular dystrophy and I like to visit all these chats Its my social life LOL

elliebedelia (Jun 29, 2009 8:06:44 PM)
Hello Jim

pete46 (Jun 29, 2009 8:06:50 PM)
lol

pete46 (Jun 29, 2009 8:06:53 PM)
hi jim

elliebedelia (Jun 29, 2009 8:07:47 PM)
we just keep on having this rain every day and makes me ache all over

Jim_VA (Jun 29, 2009 8:07:58 PM)
ellie

elliebedelia (Jun 29, 2009 8:08:49 PM)
and I have a head cold going on

pete46 (Jun 29, 2009 8:08:53 PM)
i'm from mass so i know the rain youre talking about

pete46 (Jun 29, 2009 8:09:19 PM)
its been a very wet summer so far

elliebedelia (Jun 29, 2009 8:09:37 PM)
Where abouts in Mass Jim? I am going to Martha`s Vinyard in Oct

elliebedelia (Jun 29, 2009 8:09:50 PM)
No I meant pete

pete46 (Jun 29, 2009 8:10:30 PM)
i live in shrewsbury which is near worcester my daughter lives in ct, thompson

Jim_VA (Jun 29, 2009 8:10:45 PM)
arlington VA here

elliebedelia (Jun 29, 2009 8:11:01 PM)
I have been driving through the state of Mass every weekend down 93 to 495 to ct

pete46 (Jun 29, 2009 8:11:33 PM)
to what part of ct

elliebedelia (Jun 29, 2009 8:11:48 PM)
wow I go right by there all the time My son is in Groron in Navy so I have been going right by Shrwsbury

elliebedelia (Jun 29, 2009 8:12:36 PM)
that driving is awful I always dread the drive through Worchester

pete46 (Jun 29, 2009 8:12:56 PM)
i dont blame you. :)

elliebedelia (Jun 29, 2009 8:13:51 PM)
I am a small town girl in Vt country I will never get used to the city driving

pete46 (Jun 29, 2009 8:15:00 PM)
i lived in worcester most of my life but when the disease progressed to the point that i couldnt walk up stairs any more i moved to shrewsbury with my oldest sons family

Jim_VA (Jun 29, 2009 8:15:01 PM)
my son is naval reserves

elliebedelia (Jun 29, 2009 8:15:35 PM)
its so nice to be with family

pete46 (Jun 29, 2009 8:16:04 PM)
yes although i didnt like losing my independence

elliebedelia (Jun 29, 2009 8:16:12 PM)
Yes Jim I remember you chatting with me about that and how are you and your family?

elliebedelia (Jun 29, 2009 8:16:29 PM)
well that certainly happens too

elliebedelia (Jun 29, 2009 8:17:08 PM)
I lived with my son and fa ily with the past yr but just wanted to get back to Vt with my mother We get along terrifically

Jim_VA (Jun 29, 2009 8:17:28 PM)
fine ty and yours

pete46 (Jun 29, 2009 8:17:31 PM)
thats nice

elliebedelia (Jun 29, 2009 8:17:36 PM)
But you do lose some independance and privasy

pete46 (Jun 29, 2009 8:18:56 PM)
i spend most of the day in my room at my computer. i can still drive a little but really need a van with a power ramp and hand controls

elliebedelia (Jun 29, 2009 8:20:18 PM)
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Jim_VA (Jun 29, 2009 8:22:43 PM)
II loaded my website program

pete46 (Jun 29, 2009 8:23:08 PM)
i'll have to look at it

Jim_VA (Jun 29, 2009 8:24:32 PM)
Make a wheelchair page soon

pete46 (Jun 29, 2009 8:24:51 PM)
that will be nice

Jim_VA (Jun 29, 2009 8:27:30 PM)
I had to format c in january

Jim_VA (Jun 29, 2009 8:30:51 PM)
that is not fun

pete46 (Jun 29, 2009 8:31:04 PM)
i bet

Jim_VA (Jun 29, 2009 8:32:43 PM)
I get my son to help

pete46 (Jun 29, 2009 8:33:00 PM)
did it take long

Granpido (Jun 29, 2009 8:36:17 PM)
(This user has entered Living with ALS 2)

Granpido (Jun 29, 2009 8:36:28 PM)
aha!

pete46 (Jun 29, 2009 8:36:42 PM)
hi john

Granpido (Jun 29, 2009 8:36:57 PM)
hiya Pete and Jim...

pete46 (Jun 29, 2009 8:37:22 PM)
is the mourning period for texas over. :)

Jim_VA (Jun 29, 2009 8:37:40 PM)
yes wiping the drive takes about 4 hours

Granpido (Jun 29, 2009 8:37:55 PM)
do i owe u a rt 44 chocolate malt or what?

Granpido (Jun 29, 2009 8:37:58 PM)
lol

pete46 (Jun 29, 2009 8:38:02 PM)
lol

Granpido (Jun 29, 2009 8:38:36 PM)
ya'll talkin' 'ppoters?

pete46 (Jun 29, 2009 8:38:43 PM)
i'll give you a chance to get even when the Patriots play. :)

Granpido (Jun 29, 2009 8:38:45 PM)
pooters

Granpido (Jun 29, 2009 8:38:54 PM)
ok...deal

pete46 (Jun 29, 2009 8:39:19 PM)
i had to root against texas after they knocked Boston College out!

Jim_VA (Jun 29, 2009 8:39:28 PM)
Hi John

Granpido (Jun 29, 2009 8:40:02 PM)
well, father in law was happy...since he went to LSU

Jim_VA (Jun 29, 2009 8:40:05 PM)
lol

Granpido (Jun 29, 2009 8:40:10 PM)
hi Jimmm

pete46 (Jun 29, 2009 8:40:21 PM)
whats a pooter?

Granpido (Jun 29, 2009 8:40:22 PM)
1 m

Granpido (Jun 29, 2009 8:40:28 PM)
computor

pete46 (Jun 29, 2009 8:40:42 PM)
oh that pooter

Granpido (Jun 29, 2009 8:41:02 PM)
wiping hard drives clean?

pete46 (Jun 29, 2009 8:41:14 PM)
ah hah

pete46 (Jun 29, 2009 8:41:38 PM)
i have to leave for about 10 minutes but i'll be back

Granpido (Jun 29, 2009 8:41:45 PM)
k

Granpido (Jun 29, 2009 8:42:10 PM)
did your computer crash, Jim?

Jim_VA (Jun 29, 2009 8:42:33 PM)
then you have to format them\

Granpido (Jun 29, 2009 8:42:58 PM)
yep...

Jim_VA (Jun 29, 2009 8:43:36 PM)
yes

Granpido (Jun 29, 2009 8:43:43 PM)
ahhh........

Granpido (Jun 29, 2009 8:44:08 PM)
get a new one, or rebuilding one you got?

Jim_VA (Jun 29, 2009 8:45:56 PM)
it's working now

Granpido (Jun 29, 2009 8:46:07 PM)
good for you....

Jim_VA (Jun 29, 2009 8:48:27 PM)
I had to change the v card also

Granpido (Jun 29, 2009 8:49:11 PM)
power surge fry it?

Jim_VA (Jun 29, 2009 8:49:59 PM)
heat

Granpido (Jun 29, 2009 8:50:21 PM)
u using a laptop?

Jim_VA (Jun 29, 2009 8:51:32 PM)
I want to build one yes

Granpido (Jun 29, 2009 8:52:14 PM)
w/1200 HP...lol

Jim_VA (Jun 29, 2009 8:54:23 PM)
or more

Granpido (Jun 29, 2009 8:54:30 PM)
lol

Granpido (Jun 29, 2009 8:55:23 PM)
nice 24" HD monitor...6 or 8 gig ram...etc,etc...

pete46 (Jun 29, 2009 8:57:08 PM)
i'm back

Granpido (Jun 29, 2009 8:57:14 PM)
i still have the 2nd Pentium chip machine running in living room...

Granpido (Jun 29, 2009 8:57:18 PM)
wb

pete46 (Jun 29, 2009 8:57:29 PM)
gtbb

Granpido (Jun 29, 2009 8:57:31 PM)
a P75

pete46 (Jun 29, 2009 8:57:53 PM)
you guys talking pooters :)

Granpido (Jun 29, 2009 8:58:07 PM)
youse guys?

Granpido (Jun 29, 2009 8:58:12 PM)
lol

pete46 (Jun 29, 2009 8:58:24 PM)
lol

Jim_VA (Jun 29, 2009 8:58:35 PM)
a friend just put a hemi in a 55 nomad

pete46 (Jun 29, 2009 8:58:51 PM)
a who in what

pete46 (Jun 29, 2009 8:58:57 PM)
lol

Granpido (Jun 29, 2009 8:59:01 PM)
Jim's gonna build a dragster computor...

pete46 (Jun 29, 2009 8:59:21 PM)
gonna race it?

Granpido (Jun 29, 2009 8:59:24 PM)
street legal?

Jim_VA (Jun 29, 2009 8:59:34 PM)
wb

pete46 (Jun 29, 2009 8:59:37 PM)
uh oh

Jim_VA (Jun 29, 2009 9:01:32 PM)
,lol

pete46 (Jun 29, 2009 9:02:00 PM)
lol

Granpido (Jun 29, 2009 9:02:26 PM)
hemi in a 55 nomad...too fast...get beaucoup tickets....

Jim_VA (Jun 29, 2009 9:03:54 PM)
they have wireless monitors now

Granpido (Jun 29, 2009 9:04:52 PM)
yep...and nice sound systems...i use a 5.1 on this one...

pete46 (Jun 29, 2009 9:04:58 PM)
i got one and a wireless mouse

pete46 (Jun 29, 2009 9:05:10 PM)
and keyboard

Jim_VA (Jun 29, 2009 9:06:34 PM)
a 540 hp hemi

Granpido (Jun 29, 2009 9:07:20 PM)
15" slicks on back?

Jim_VA (Jun 29, 2009 9:08:32 PM)
how is the monitor speed

pete46 (Jun 29, 2009 9:09:50 PM)
no problems, my son hooked things up. Actually ive got dual monitors

Jim_VA (Jun 29, 2009 9:10:15 PM)
big tires

pete46 (Jun 29, 2009 9:10:36 PM)
need the slicks

Granpido (Jun 29, 2009 9:11:42 PM)
had '58 Apache w/65 327 i dropped in...nice ride....

pete46 (Jun 29, 2009 9:11:55 PM)
red sox won tonite - 3 and a half games up on the yankees

Granpido (Jun 29, 2009 9:12:24 PM)
go Sox!!!

Granpido (Jun 29, 2009 9:13:32 PM)
...'cept my mama threw away my Mickey M. rookie card....

Granpido (Jun 29, 2009 9:13:42 PM)
lol

pete46 (Jun 29, 2009 9:13:50 PM)
lol

Jim_VA (Jun 29, 2009 9:14:00 PM)
usb monitor

Granpido (Jun 29, 2009 9:15:39 PM)
have u started building this hot rod computor yet, Jim?

Granpido (Jun 29, 2009 9:20:15 PM)
i looked up where u live on mapquest, Pete...

Granpido (Jun 29, 2009 9:20:52 PM)
u close to everything...

Jim_VA (Jun 29, 2009 9:20:53 PM)
(This user has left DigiChat)

Granpido (Jun 29, 2009 9:21:15 PM)
'cept the w tx desert....

Granpido (Jun 29, 2009 9:21:18 PM)
lol

pete46 (Jun 29, 2009 9:21:27 PM)
well if youre ever in these parts youll have t stop by

Granpido (Jun 29, 2009 9:21:53 PM)
been 35 yrs since i was up there...

Granpido (Jun 29, 2009 9:22:01 PM)
but i'd love to

pete46 (Jun 29, 2009 9:22:17 PM)
well its about time you came back.

Granpido (Jun 29, 2009 9:22:24 PM)
i agree....

Granpido (Jun 29, 2009 9:22:44 PM)
would u mind talkin' to my wife...?

Granpido (Jun 29, 2009 9:22:47 PM)
lol

pete46 (Jun 29, 2009 9:22:49 PM)
when were you up these parts before

pete46 (Jun 29, 2009 9:22:51 PM)
lol

Granpido (Jun 29, 2009 9:23:27 PM)
1972...worked at a church camp outside the City,,,

Granpido (Jun 29, 2009 9:23:43 PM)
ghetto kid stuff...

Granpido (Jun 29, 2009 9:23:56 PM)
had a great time...

pete46 (Jun 29, 2009 9:24:02 PM)
what city? boston?

Granpido (Jun 29, 2009 9:24:08 PM)
NYC

pete46 (Jun 29, 2009 9:24:16 PM)
oh the big apple

Granpido (Jun 29, 2009 9:25:02 PM)
but we went all over that neck of the woods...

Granpido (Jun 29, 2009 9:25:15 PM)
in a '60 ragtop VW

pete46 (Jun 29, 2009 9:25:27 PM)
those were the days!

Granpido (Jun 29, 2009 9:25:50 PM)
peace, love and what was the other one?

Granpido (Jun 29, 2009 9:25:53 PM)
lol

pete46 (Jun 29, 2009 9:26:06 PM)
lol

Granpido (Jun 29, 2009 9:26:18 PM)
(This user has left DigiChat)

pete46 (Jun 29, 2009 9:26:39 PM)
`

Granpido (Jun 29, 2009 9:26:41 PM)
(This user has entered Living with ALS 2)

Granpido (Jun 29, 2009 9:26:42 PM)
(This user has left DigiChat)

pete46 (Jun 29, 2009 9:26:59 PM)
disconnected?

Granpido (Jun 29, 2009 9:27:39 PM)
(This user has entered Living with ALS 2)

Granpido (Jun 29, 2009 9:27:45 PM)
sorry...

pete46 (Jun 29, 2009 9:27:55 PM)
disconnected?

Granpido (Jun 29, 2009 9:28:05 PM)
i hit wrong key...

pete46 (Jun 29, 2009 9:28:11 PM)
oops

Granpido (Jun 29, 2009 9:28:17 PM)
booted myself...

Granpido (Jun 29, 2009 9:28:21 PM)
lol

pete46 (Jun 29, 2009 9:28:23 PM)
lol

pete46 (Jun 29, 2009 9:28:44 PM)
jim has been on and off all night

Granpido (Jun 29, 2009 9:28:52 PM)
Jim need new computor

pete46 (Jun 29, 2009 9:29:20 PM)
i think he said he reformatted his c drive

Granpido (Jun 29, 2009 9:29:51 PM)
sounds like u have a nice setup...

pete46 (Jun 29, 2009 9:29:55 PM)
so he'd have to reinstall operating system and every thing else i guess

pete46 (Jun 29, 2009 9:30:09 PM)
my son hooked me up

Granpido (Jun 29, 2009 9:30:23 PM)
he do it for a living?

pete46 (Jun 29, 2009 9:30:47 PM)
i was working as a programmer and worked from home a lot near the end.

Granpido (Jun 29, 2009 9:31:06 PM)
ah...

Jim_VA2 (Jun 29, 2009 9:31:07 PM)
(This user has entered Living with ALS 2)

pete46 (Jun 29, 2009 9:31:14 PM)
hes a IT regional mgr for some company

pete46 (Jun 29, 2009 9:31:24 PM)
wb jim

Granpido (Jun 29, 2009 9:31:33 PM)
wb Jim

Jim_VA2 (Jun 29, 2009 9:32:56 PM)
ty]

Granpido (Jun 29, 2009 9:36:50 PM)
my friend Jim here in Midland with ALS got a ticket the other day driving his 1 ton...he's trying to get hand controls...

pete46 (Jun 29, 2009 9:37:58 PM)
i'm looking for a van with hand controls and power ramp

Granpido (Jun 29, 2009 9:38:12 PM)
had any luck yet?

pete46 (Jun 29, 2009 9:38:21 PM)
they want big $$

Jim_VA2 (Jun 29, 2009 9:38:49 PM)
I haven't started it

pete46 (Jun 29, 2009 9:39:18 PM)
i'm going used. not sure how used though :)

Granpido (Jun 29, 2009 9:39:52 PM)
don't blame u...

pete46 (Jun 29, 2009 9:40:12 PM)
what did your friend get a ticket for

Granpido (Jun 29, 2009 9:40:24 PM)
speeding...

pete46 (Jun 29, 2009 9:40:57 PM)
i drove a car with hand controls a couple of weeks ago. Pretty easy to learn

Granpido (Jun 29, 2009 9:41:20 PM)
and expired lic plates...

pete46 (Jun 29, 2009 9:41:43 PM)
hand controls wont help that one. :)

Granpido (Jun 29, 2009 9:41:48 PM)
lol

pete46 (Jun 29, 2009 9:41:50 PM)
lol

Granpido (Jun 29, 2009 9:42:24 PM)
ok Jim, how can we help u build a new computor?

Granpido (Jun 29, 2009 9:42:48 PM)
send$$$..?

Granpido (Jun 29, 2009 9:43:10 PM)
Moral support...?

Jim_VA2 (Jun 29, 2009 9:43:11 PM)
,lol]

Granpido (Jun 29, 2009 9:43:15 PM)
lol

Jim_VA2 (Jun 29, 2009 9:44:40 PM)
he was begging for a ticket

Granpido (Jun 29, 2009 9:45:08 PM)
i think so too...made him feel more alive...

Granpido (Jun 29, 2009 9:45:37 PM)
he's been kinda down lately...

pete46 (Jun 29, 2009 9:45:45 PM)
or something to talk about

pete46 (Jun 29, 2009 9:45:56 PM)
sorry to hear that

Granpido (Jun 29, 2009 9:46:33 PM)
i wish i could get him on here...ya'll always cheer me up...

Granpido (Jun 29, 2009 9:46:43 PM)
:-)

pete46 (Jun 29, 2009 9:46:49 PM)
lol

Granpido (Jun 29, 2009 9:46:53 PM)
lol

pete46 (Jun 29, 2009 9:47:35 PM)
and vice versa

Granpido (Jun 29, 2009 9:48:02 PM)
...CBS supposed to have somethin on ALS tonite...anybody know?

Granpido (Jun 29, 2009 9:48:19 PM)
on news...

pete46 (Jun 29, 2009 9:48:24 PM)
first i've heard of it

pete46 (Jun 29, 2009 9:48:39 PM)
was it already on?

Granpido (Jun 29, 2009 9:48:52 PM)
i think so...

Granpido (Jun 29, 2009 9:49:01 PM)
at 6

Granpido (Jun 29, 2009 9:49:18 PM)
but i missed it

pete46 (Jun 29, 2009 9:49:22 PM)
maybe something will be on their website

Granpido (Jun 29, 2009 9:49:55 PM)
i looked...didn't see anything...

Granpido (Jun 29, 2009 9:50:03 PM)
who knows

Granpido (Jun 29, 2009 9:50:15 PM)
rumors...

Jim_VA2 (Jun 29, 2009 9:50:18 PM)
I heard about it

Granpido (Jun 29, 2009 9:50:28 PM)
aha!

pete46 (Jun 29, 2009 9:50:48 PM)
what you hear

Granpido (Jun 29, 2009 9:53:29 PM)
think i'll go watch our 10 p news...maybe be on again...

Jim_VA2 (Jun 29, 2009 9:53:44 PM)
I watched and nothing

Granpido (Jun 29, 2009 9:53:58 PM)
huh

pete46 (Jun 29, 2009 9:54:04 PM)
go figure

Granpido (Jun 29, 2009 9:54:37 PM)
well...i enjoyed use guys...again...

Granpido (Jun 29, 2009 9:54:41 PM)
lol

pete46 (Jun 29, 2009 9:54:50 PM)
the feelings mutual

Granpido (Jun 29, 2009 9:55:11 PM)
hang in there...take care...

pete46 (Jun 29, 2009 9:55:14 PM)
i'm gonna get going myself

Granpido (Jun 29, 2009 9:55:18 PM)
bye Pete

pete46 (Jun 29, 2009 9:55:26 PM)
see ya john

Granpido (Jun 29, 2009 9:55:26 PM)
bye Jim...

pete46 (Jun 29, 2009 9:55:32 PM)
see ya jim

pete46 (Jun 29, 2009 9:55:48 PM)
(This user has left DigiChat)

Granpido (Jun 29, 2009 9:56:04 PM)
thanks Jim...

Jim_VA2 (Jun 29, 2009 9:56:39 PM)
supposed to be a cure

Granpido (Jun 29, 2009 9:57:09 PM)
what we all want to hear...

Granpido (Jun 29, 2009 9:57:35 PM)
maybe so...Jim...

Granpido (Jun 29, 2009 9:58:15 PM)
take care...cya Wed....

Jim_VA2 (Jun 29, 2009 9:58:49 PM)
I doubt iy]

Granpido (Jun 29, 2009 9:59:30 PM)
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Jim_VA2 (Jun 29, 2009 10:00:18 PM)
(This user has left DigiChat)