Living with ALS 2

John-VA (Nov 9, 2009 8:00:01 PM)
(This user has entered Living with ALS 2)

pete46 (Nov 9, 2009 8:01:03 PM)
(This user has entered Living with ALS 2)

pete46 (Nov 9, 2009 8:01:18 PM)
hello

John-VA (Nov 9, 2009 8:01:48 PM)
ihi all

pete46 (Nov 9, 2009 8:01:57 PM)
hi john

paper (Nov 9, 2009 8:01:58 PM)
(This user has entered Living with ALS 2)

pete46 (Nov 9, 2009 8:02:01 PM)
hi jim

pete46 (Nov 9, 2009 8:02:07 PM)
hi paper

paper (Nov 9, 2009 8:02:08 PM)
(This user has moved to Mitochondrial Chat)

John-VA (Nov 9, 2009 8:02:35 PM)
im new here

pete46 (Nov 9, 2009 8:03:02 PM)
welcome john, do you have ALS?

Jim_VA (Nov 9, 2009 8:03:35 PM)
hi john and pete

John-VA (Nov 9, 2009 8:03:48 PM)
yes dx 91 im 48

John-VA (Nov 9, 2009 8:04:28 PM)
hi jim

Jim_VA (Nov 9, 2009 8:04:29 PM)
how are you doing john

pete46 (Nov 9, 2009 8:04:30 PM)
i'm pwete dx 8/08, 63 from MA

John-VA (Nov 9, 2009 8:05:53 PM)
doing good and u pete

pete46 (Nov 9, 2009 8:06:30 PM)
i'm doing fine john, did you say you were dx'd in '91?

John-VA (Nov 9, 2009 8:07:50 PM)
yes 19 years with ALS

Jim_VA (Nov 9, 2009 8:08:21 PM)
glad we did not go see the Redskins

pete46 (Nov 9, 2009 8:08:28 PM)
lol

John-VA (Nov 9, 2009 8:09:01 PM)
me to jim

John-VA (Nov 9, 2009 8:09:11 PM)
lol

pete46 (Nov 9, 2009 8:09:29 PM)
18 years is a long time with ALS. Your progression must be slow.

John-VA (Nov 9, 2009 8:10:50 PM)
yes thank god

pete46 (Nov 9, 2009 8:11:06 PM)
i'm glad for you

pete46 (Nov 9, 2009 8:11:14 PM)
i hope it stops

pete46 (Nov 9, 2009 8:11:22 PM)
for all of us

Jim_VA (Nov 9, 2009 8:11:47 PM)
john lives about 40 miles from me pete

John-VA (Nov 9, 2009 8:11:55 PM)
yes i do to

pete46 (Nov 9, 2009 8:12:06 PM)
neighbors huh :)

pete46 (Nov 9, 2009 8:12:27 PM)
have you two ever met?

Jim_VA (Nov 9, 2009 8:12:46 PM)
yes]

Jim_VA (Nov 9, 2009 8:12:59 PM)
no

John-VA (Nov 9, 2009 8:12:59 PM)
not yet

pete46 (Nov 9, 2009 8:13:21 PM)
although jim is in fla now for a while

pete46 (Nov 9, 2009 8:13:57 PM)
small world

John-VA (Nov 9, 2009 8:14:58 PM)
oh back to fl for winter jim

Jim_VA (Nov 9, 2009 8:15:08 PM)
we are going to the

Jim_VA (Nov 9, 2009 8:16:19 PM)
Redskins next year

pete46 (Nov 9, 2009 8:16:25 PM)
lol

John-VA (Nov 9, 2009 8:16:47 PM)
its nice to meet u pete

pete46 (Nov 9, 2009 8:16:47 PM)
boy, that team needs help

pete46 (Nov 9, 2009 8:16:59 PM)
nice to meet you too

John-VA (Nov 9, 2009 8:18:12 PM)
whos ur team pete?

pete46 (Nov 9, 2009 8:18:45 PM)
being from MA, i like all the boston teams. Patriots in football

John-VA (Nov 9, 2009 8:19:35 PM)
good team

pete46 (Nov 9, 2009 8:20:00 PM)
they have a big game next week at colts

John-VA (Nov 9, 2009 8:20:53 PM)
yes they do

pete46 (Nov 9, 2009 8:21:07 PM)
should be a goood game

pete46 (Nov 9, 2009 8:21:15 PM)
sunday nite

Jim_VA (Nov 9, 2009 8:21:43 PM)
my oldest son lives in Ashburn

pete46 (Nov 9, 2009 8:21:59 PM)
?

pete46 (Nov 9, 2009 8:22:43 PM)
ashburn va?

John-VA (Nov 9, 2009 8:23:27 PM)
i dont think Redskins will wen anymore this year

pete46 (Nov 9, 2009 8:23:50 PM)
i think they need a new owner

John-VA (Nov 9, 2009 8:25:26 PM)
me to

pete46 (Nov 9, 2009 8:25:56 PM)
i guess you cant fire the owner though

John-VA (Nov 9, 2009 8:26:31 PM)
sorry so slow type by eye

Jim_VA (Nov 9, 2009 8:26:47 PM)
Redskins practice field is there

pete46 (Nov 9, 2009 8:26:52 PM)
you do great

pete46 (Nov 9, 2009 8:27:01 PM)
both of you

pete46 (Nov 9, 2009 8:27:22 PM)
in ashburn?

Jim_VA (Nov 9, 2009 8:28:33 PM)
yes

John-VA (Nov 9, 2009 8:29:25 PM)
u still walk pete?

pete46 (Nov 9, 2009 8:29:44 PM)
no

pete46 (Nov 9, 2009 8:30:01 PM)
i can take a few steps with a walker

pete46 (Nov 9, 2009 8:30:16 PM)
but just a few and it keeps getting worse

pete46 (Nov 9, 2009 8:30:47 PM)
how about you?

John-VA (Nov 9, 2009 8:30:49 PM)
sorry to hear

pete46 (Nov 9, 2009 8:31:14 PM)
i still have a lot of upper body strength

pete46 (Nov 9, 2009 8:31:34 PM)
just got a van with hand controls that i can drive myself

John-VA (Nov 9, 2009 8:31:42 PM)
no cant do much now

pete46 (Nov 9, 2009 8:32:00 PM)
hows your breathing?

pete46 (Nov 9, 2009 8:32:13 PM)
talk eat?

Jim_VA (Nov 9, 2009 8:32:56 PM)
I will put on Dan

John-VA (Nov 9, 2009 8:35:00 PM)
fvc 27% cant eat by mouth 3 years now

pete46 (Nov 9, 2009 8:35:51 PM)
sorry to hear that. Do you use bi-pap?

John-VA (Nov 9, 2009 8:37:23 PM)
its ok, no bipap yet

Jim_VA (Nov 9, 2009 8:37:30 PM)
we should be tight with Dan

pete46 (Nov 9, 2009 8:37:48 PM)
thats good

pete46 (Nov 9, 2009 8:38:31 PM)
who used ot own th redskins when they were winning all those superbowls?

pete46 (Nov 9, 2009 8:38:56 PM)
not griffith?

John-VA (Nov 9, 2009 8:39:14 PM)
cook

Jim_VA (Nov 9, 2009 8:39:18 PM)
]

Jim_VA (Nov 9, 2009 8:40:03 PM)
=

Jim_VA (Nov 9, 2009 8:40:08 PM)
]

Jim_VA (Nov 9, 2009 8:40:25 PM)
John

Jim_VA (Nov 9, 2009 8:42:12 PM)
Kent Cook

pete46 (Nov 9, 2009 8:42:35 PM)
jack kent cook?

John-VA (Nov 9, 2009 8:42:42 PM)
yup

pete46 (Nov 9, 2009 8:43:22 PM)
or is it cooke?

John-VA (Nov 9, 2009 8:43:28 PM)
thats it

John-VA (Nov 9, 2009 8:44:58 PM)
not many ppl here

Jim_VA (Nov 9, 2009 8:45:11 PM)
dizzy wife

pete46 (Nov 9, 2009 8:46:26 PM)
lol

Jim_VA (Nov 9, 2009 8:46:46 PM)
it varies

John-VA (Nov 9, 2009 8:47:38 PM)
u married pete?

pete46 (Nov 9, 2009 8:47:50 PM)
divorced

pete46 (Nov 9, 2009 8:47:55 PM)
5 kids

pete46 (Nov 9, 2009 8:48:04 PM)
9 grandkids

pete46 (Nov 9, 2009 8:48:14 PM)
one greatgrand kid

John-VA (Nov 9, 2009 8:49:30 PM)
wow nice

pete46 (Nov 9, 2009 8:50:56 PM)
i lie now with my youngest daughter , her husband and three kids

John-VA (Nov 9, 2009 8:51:03 PM)
my wife left when dx

pete46 (Nov 9, 2009 8:51:13 PM)
sorry to hear that

pete46 (Nov 9, 2009 8:51:27 PM)
how old were you when dx

John-VA (Nov 9, 2009 8:51:44 PM)
29

pete46 (Nov 9, 2009 8:51:54 PM)
very young

John-VA (Nov 9, 2009 8:52:39 PM)
got 2 kids

pete46 (Nov 9, 2009 8:52:50 PM)
how old?

John-VA (Nov 9, 2009 8:53:14 PM)
1 grandaughter

pete46 (Nov 9, 2009 8:53:53 PM)
where do you live now john?

John-VA (Nov 9, 2009 8:54:11 PM)
son 19 girl 24

John-VA (Nov 9, 2009 8:56:10 PM)
with mom & dad & son

pete46 (Nov 9, 2009 8:56:57 PM)
its nice you have them

John-VA (Nov 9, 2009 8:59:43 PM)
yes it is my dad is 72 and takes care of me

pete46 (Nov 9, 2009 9:00:18 PM)
thats wonderful

pete46 (Nov 9, 2009 9:00:36 PM)
and your son lives with you too

John-VA (Nov 9, 2009 9:01:19 PM)
yes

John-VA (Nov 9, 2009 9:01:48 PM)
he helps

Ole Barn (Nov 9, 2009 9:01:57 PM)
(This user has entered Living with ALS 2)

Ole Barn (Nov 9, 2009 9:02:04 PM)
(This user has left DigiChat)

pete46 (Nov 9, 2009 9:02:07 PM)
thats great

pete46 (Nov 9, 2009 9:02:52 PM)
do you type using head movement like jim?

John-VA (Nov 9, 2009 9:04:06 PM)
i use eyegaze

pete46 (Nov 9, 2009 9:04:42 PM)
how long have you been using it?

John-VA (Nov 9, 2009 9:07:35 PM)
1 year but got new one' week ago defferent

pete46 (Nov 9, 2009 9:08:22 PM)
lis it better?

John-VA (Nov 9, 2009 9:08:53 PM)
yes

pete46 (Nov 9, 2009 9:09:12 PM)
i think i am going to bank my voice, can you still talk?

John-VA (Nov 9, 2009 9:09:40 PM)
not use to it yet

pete46 (Nov 9, 2009 9:10:58 PM)
i have the software, need a high quality microphone with head set that can connect to usb port on computer

John-VA (Nov 9, 2009 9:11:56 PM)
i can but hard to understand me

Jim_VA (Nov 9, 2009 9:12:04 PM)
i may go live with my youngest son

pete46 (Nov 9, 2009 9:12:13 PM)
where?

pete46 (Nov 9, 2009 9:15:10 PM)
brb

John-VA (Nov 9, 2009 9:16:07 PM)
k

John-VA (Nov 9, 2009 9:17:13 PM)
when u coming to visit me jim?

Jim_VA (Nov 9, 2009 9:18:02 PM)
Callao VA

John-VA (Nov 9, 2009 9:19:24 PM)
castleton

John-VA (Nov 9, 2009 9:24:07 PM)
when is there more peopl here?

pete46 (Nov 9, 2009 9:26:04 PM)
im back

Jim_VA (Nov 9, 2009 9:26:43 PM)
will have to be next summer

pete46 (Nov 9, 2009 9:27:10 PM)
the two of you going to a nats game?

pete46 (Nov 9, 2009 9:27:40 PM)
i think they'll be a lot better next year. need some pitching

Jim_VA (Nov 9, 2009 9:27:51 PM)
]

John-VA (Nov 9, 2009 9:29:11 PM)
wb

pete46 (Nov 9, 2009 9:29:21 PM)
ty

John-VA (Nov 9, 2009 9:29:31 PM)
yw

Jim_VA (Nov 9, 2009 9:29:32 PM)
I am in

John-VA (Nov 9, 2009 9:30:00 PM)
sure why not

pete46 (Nov 9, 2009 9:30:28 PM)
sounds like fun

Jim_VA (Nov 9, 2009 9:30:33 PM)
Daytona

John-VA (Nov 9, 2009 9:31:34 PM)
yes u paying jim?

Jim_VA (Nov 9, 2009 9:33:50 PM)
have a condo here

John-VA (Nov 9, 2009 9:35:06 PM)
i got to meet whol redskins team last year had VIP pass

John-VA (Nov 9, 2009 9:38:07 PM)
u on fbacebook pete?

pete46 (Nov 9, 2009 9:38:20 PM)
yes

Jim_VA (Nov 9, 2009 9:39:29 PM)
400 a month condo fee

John-VA (Nov 9, 2009 9:40:04 PM)
friends with jim there?

John-VA (Nov 9, 2009 9:41:07 PM)
not bad jim

Jim_VA (Nov 9, 2009 9:41:55 PM)
they come and go

Jim_VA (Nov 9, 2009 9:44:28 PM)
had 2 couples so far

John-VA (Nov 9, 2009 9:44:40 PM)
here pete add me on facebook john singleton

pete46 (Nov 9, 2009 9:45:30 PM)
wilol do, i'm not on that much but sometimes

John-VA (Nov 9, 2009 9:46:21 PM)
k

John-VA (Nov 9, 2009 9:47:26 PM)
jim u like nascar?

Jim_VA (Nov 9, 2009 9:48:49 PM)
and my brother in law opens the place up

John-VA (Nov 9, 2009 9:49:23 PM)
pete u like nascar?

pete46 (Nov 9, 2009 9:50:13 PM)
not a big fan, but now that Danika is joining i might become one :)

Jim_VA (Nov 9, 2009 9:51:19 PM)
yes the track is about 5 miles

John-VA (Nov 9, 2009 9:51:57 PM)
wow really :)

John-VA (Nov 9, 2009 9:52:50 PM)
she is so sexy

pete46 (Nov 9, 2009 9:53:26 PM)
she's a hottie

Jim_VA (Nov 9, 2009 9:53:52 PM)
I like it on tv

John-VA (Nov 9, 2009 9:53:52 PM)
:)

pete46 (Nov 9, 2009 9:53:56 PM)
i think she's hooking up with jr's team

John-VA (Nov 9, 2009 9:54:39 PM)
me to jim

Jim_VA (Nov 9, 2009 9:55:07 PM)
who

pete46 (Nov 9, 2009 9:55:34 PM)
danika patrick

John-VA (Nov 9, 2009 9:55:54 PM)
cool pete j my driver

pete46 (Nov 9, 2009 9:56:49 PM)
well guys i gotta go, nice chatting with you both

pete46 (Nov 9, 2009 9:57:08 PM)
nice meeting you john

John-VA (Nov 9, 2009 9:57:25 PM)
tc pete

pete46 (Nov 9, 2009 9:57:28 PM)
bye

pete46 (Nov 9, 2009 9:57:36 PM)
(This user has left DigiChat)

Jim_VA (Nov 9, 2009 9:58:05 PM)
i use to watch them practice

John-VA (Nov 9, 2009 10:00:40 PM)
ive been there 2 times

Jim_VA (Nov 9, 2009 10:01:54 PM)
that was interesting}

John-VA (Nov 9, 2009 10:02:27 PM)
i got to go tc jim

Jim_VA (Nov 9, 2009 10:03:38 PM)
take care gnight

John-VA (Nov 9, 2009 10:04:05 PM)
u to jim

John-VA (Nov 9, 2009 10:04:18 PM)
(This user has left DigiChat)

Jim_VA (Nov 9, 2009 10:04:46 PM)
ttyl]

Jim_VA (Nov 9, 2009 10:07:07 PM)
(This user has left DigiChat)