Living with ALS 2

Jim_VA (Feb 1, 2010 7:59:53 PM)
(This user has entered Living with ALS 2)

pete46 (Feb 1, 2010 8:04:41 PM)
hi ,jim

pete46 (Feb 1, 2010 8:04:46 PM)
how are you

Jim_VA (Feb 1, 2010 8:08:30 PM)
hi pete i am fine how are you

pete46 (Feb 1, 2010 8:09:23 PM)
good jim, couldnt get on this afternoon as no log in screen for als? did you get on

Jim_VA (Feb 1, 2010 8:12:01 PM)
no i gave up about 4/45

pete46 (Feb 1, 2010 8:12:51 PM)
how about yesterday, i was in the hispanic chat room for 2 and a half hours. didnt realize it as no one came on :)

Jim_VA (Feb 1, 2010 8:14:06 PM)
it has happened before

pete46 (Feb 1, 2010 8:14:48 PM)
yep

pete46 (Feb 1, 2010 8:14:59 PM)
still no word from jim west

Jim_VA (Feb 1, 2010 8:17:34 PM)
raven was in for a while but i made her mad

pete46 (Feb 1, 2010 8:18:07 PM)
lol

pete46 (Feb 1, 2010 8:18:17 PM)
she loves hockey that one

Jim_VA (Feb 1, 2010 8:19:50 PM)
no that's getting scary

pete46 (Feb 1, 2010 8:21:00 PM)
lol

Jim_VA (Feb 1, 2010 8:24:48 PM)
i see the celtics.

pete46 (Feb 1, 2010 8:25:34 PM)
lost 3 in a row, playing washington though so maybe they'll win one

CRIS (Feb 1, 2010 8:34:05 PM)
(This user has entered Living with ALS 2)

pete46 (Feb 1, 2010 8:34:21 PM)
hi cris

CRIS (Feb 1, 2010 8:34:38 PM)
hi pete and jim

pete46 (Feb 1, 2010 8:35:23 PM)
how are you

pete46 (Feb 1, 2010 8:35:41 PM)
nice of you to join us

CRIS (Feb 1, 2010 8:36:02 PM)
a little tired....went grocery shopping today....it wears me out

pete46 (Feb 1, 2010 8:36:30 PM)
how often do you go?

Jim_VA (Feb 1, 2010 8:36:37 PM)
lol

CRIS (Feb 1, 2010 8:37:37 PM)
every 2 weeks....getting to be expensive too

pete46 (Feb 1, 2010 8:37:57 PM)
yes it is, buy anything good

Jim_VA (Feb 1, 2010 8:38:33 PM)
hi cris

CRIS (Feb 1, 2010 8:39:06 PM)
tried to buy some vegetables....don't know why....lol

pete46 (Feb 1, 2010 8:39:24 PM)
because theyre healthy

CRIS (Feb 1, 2010 8:40:24 PM)
I know....I roasted some last week and they were good...gonna try that again

pete46 (Feb 1, 2010 8:40:34 PM)
yummy

CRIS (Feb 1, 2010 8:40:55 PM)
do the grandchildren like vegetables, pete?

pete46 (Feb 1, 2010 8:41:11 PM)
some

pete46 (Feb 1, 2010 8:41:33 PM)
the oldest won't eat many

CRIS (Feb 1, 2010 8:42:58 PM)
maybe if your daughter mixes it with pasta....add something to the blue box of mac and cheese....that might work

pete46 (Feb 1, 2010 8:43:17 PM)
she tries all that

CRIS (Feb 1, 2010 8:43:30 PM)
they have mind of their own....lol

pete46 (Feb 1, 2010 8:43:38 PM)
he likes some like raw carrots

pete46 (Feb 1, 2010 8:43:45 PM)
yes they do

CRIS (Feb 1, 2010 8:44:29 PM)
check out my settings....lol

pete46 (Feb 1, 2010 8:44:43 PM)
what settings

CRIS (Feb 1, 2010 8:45:25 PM)
the birds....remind of something

pete46 (Feb 1, 2010 8:45:51 PM)
oh the love birds

CRIS (Feb 1, 2010 8:46:40 PM)
I wonder what they are telling each other

pete46 (Feb 1, 2010 8:46:53 PM)
sweet nothings

CRIS (Feb 1, 2010 8:50:25 PM)
I ordered This Is It, the Michael Jackson DVD from Netflix....should be fun to watch, but he was not my favorite

pete46 (Feb 1, 2010 8:51:09 PM)
he was big in his day real big

pete46 (Feb 1, 2010 8:51:26 PM)
bofroe all that crazy stuff came out

CRIS (Feb 1, 2010 8:52:58 PM)
matt just asked me to go over to other chat for a minute....brb

pete46 (Feb 1, 2010 8:53:16 PM)
ok

CRIS (Feb 1, 2010 8:53:41 PM)
(This user has moved to Mitochondrial Chat)

Jim_VA (Feb 1, 2010 9:00:53 PM)
i got a notice from the

CRIS (Feb 1, 2010 9:01:51 PM)
(This user has entered Living with ALS 2)

pete46 (Feb 1, 2010 9:02:17 PM)
wb

CRIS (Feb 1, 2010 9:03:51 PM)
Matt thought I was from AZ and I could help them with doctors names....gave them the bad news

pete46 (Feb 1, 2010 9:05:03 PM)
well thats probably because of your yahoo username

CRIS (Feb 1, 2010 9:05:23 PM)
yep...probably

Jim_VA (Feb 1, 2010 9:06:10 PM)
Packard Center they are spending 15m to find a cure

pete46 (Feb 1, 2010 9:06:44 PM)
thats good jim

CRIS (Feb 1, 2010 9:09:15 PM)
does ALS affect children?

Jim_VA (Feb 1, 2010 9:09:45 PM)
a doctor from mass general is involved

pete46 (Feb 1, 2010 9:09:46 PM)
not that i know,

pete46 (Feb 1, 2010 9:09:54 PM)
brb

Jim_VA (Feb 1, 2010 9:10:45 PM)
16 17 rarely

CRIS (Feb 1, 2010 9:11:59 PM)
I wonder why it effects people at different ages....can you pass it on?

Jim_VA (Feb 1, 2010 9:16:15 PM)
i think a bio-marker will reveal a lot more

pete46 (Feb 1, 2010 9:16:21 PM)
about 5 percent is inherited

CRIS (Feb 1, 2010 9:16:42 PM)
what is a bio-marker?

Jim_VA (Feb 1, 2010 9:16:57 PM)
yes

CRIS (Feb 1, 2010 9:17:04 PM)
did someone in your family have it, pete and jim

pete46 (Feb 1, 2010 9:17:09 PM)
no

Jim_VA (Feb 1, 2010 9:17:48 PM)
no

CRIS (Feb 1, 2010 9:19:03 PM)
no one in my family has LGMD either...they think I have MS

pete46 (Feb 1, 2010 9:19:32 PM)
lgmd is inhereited a lot isnt it

CRIS (Feb 1, 2010 9:20:26 PM)
yes and the children don't want to know if they have the gene....then maybe cannot get health insurance

pete46 (Feb 1, 2010 9:21:27 PM)
oh boy

Jim_VA (Feb 1, 2010 9:21:29 PM)
bio-marker is something in your blood that says that you have it

CRIS (Feb 1, 2010 9:22:57 PM)
if that were true, you could find out earlier in life or do you not want to know?

pete46 (Feb 1, 2010 9:24:20 PM)
i would want to know

CRIS (Feb 1, 2010 9:26:53 PM)
me too....I remember my mom saying to me once, "some people have muscles and some people don't" I wonder if she knew something about me, but did not want to tell me.

pete46 (Feb 1, 2010 9:27:10 PM)
maybe

Jim_VA (Feb 1, 2010 9:27:26 PM)
yes but a cure should follow

CRIS (Feb 1, 2010 9:28:06 PM)
is pain involved with ALS?

pete46 (Feb 1, 2010 9:28:22 PM)
usually not

CRIS (Feb 1, 2010 9:31:30 PM)
my legs hurt when I do too much....my thighs feel like a bag of sand and hard to walk around

Jim_VA (Feb 1, 2010 9:32:43 PM)
i don't have any

pete46 (Feb 1, 2010 9:33:15 PM)
because my leg muscles are so weak, i have to lift them onto and off or the bed. which can be painful in the joints

pete46 (Feb 1, 2010 9:33:25 PM)
leg joints, hips knees

pete46 (Feb 1, 2010 9:33:44 PM)
but not bad

CRIS (Feb 1, 2010 9:34:37 PM)
have you heard from your friend who had the trach?

pete46 (Feb 1, 2010 9:34:50 PM)
no not yet

pete46 (Feb 1, 2010 9:35:08 PM)
i hope there were no complications

CRIS (Feb 1, 2010 9:35:55 PM)
I hope there were none too

Jim_VA (Feb 1, 2010 9:37:21 PM)
unless someone fools with my trach that can hurt

CRIS (Feb 1, 2010 9:38:41 PM)
this is one of things about the internet that I hate.....it is an indivdual thing and if you are unable to get to a computer or even choose not to go on it anymore...there is no one else who would let you know what is going on...do you agree?

Jim_VA (Feb 1, 2010 9:40:52 PM)
makes my eyes water

pete46 (Feb 1, 2010 9:41:24 PM)
true a lot of the time buty not always. On patientslikeme.com many times site is made aware of als patients that have passed away

pete46 (Feb 1, 2010 9:41:47 PM)
but a lot that arent mentioned

CRIS (Feb 1, 2010 9:46:39 PM)
I went on Facebook and clicked on my friends...one guy who use to come to chat (I believe he had Beckers and something else) and I would talk to him in messenger...anyway, on his facebook page someone wrote R.I.P. ....that took me by surprise

pete46 (Feb 1, 2010 9:47:13 PM)
yes that happens a lot with als people

pete46 (Feb 1, 2010 9:49:34 PM)
i just saw on fb someone 39 just passed

CRIS (Feb 1, 2010 9:52:42 PM)
it was very nice chatting with both of you....too bad more people don't show up

pete46 (Feb 1, 2010 9:52:58 PM)
slow night

Jim_VA (Feb 1, 2010 9:54:00 PM)
i

pete46 (Feb 1, 2010 9:57:45 PM)
well jim gotta go, catch you wednesday i hope

pete46 (Feb 1, 2010 9:58:02 PM)
(This user has left DigiChat)

CRIS (Feb 1, 2010 9:58:04 PM)
me too.....good nite and tc

CRIS (Feb 1, 2010 9:58:20 PM)
(This user has left DigiChat)

Jim_VA (Feb 1, 2010 9:58:31 PM)
Uu

Jim_VA (Feb 1, 2010 9:58:32 PM)
(This user has left DigiChat)