Living with ALS

Jim_VA (Oct 8, 2008 5:58:12 PM)
(This user has entered Living with ALS)

Jim_VA (Oct 8, 2008 6:00:25 PM)
Hi Dan how are you tonight

DanG (Oct 8, 2008 6:01:30 PM)
good and u Jim?

Jim_VA (Oct 8, 2008 6:02:03 PM)
great ty

Jim_VA (Oct 8, 2008 6:03:50 PM)
anything from Lake Taylor

DanG (Oct 8, 2008 6:06:51 PM)
yes, no room, no waiting list, that was my last one.

Jim_VA (Oct 8, 2008 6:07:40 PM)
bummer

Jim_VA (Oct 8, 2008 6:08:34 PM)
what crap

DanG (Oct 8, 2008 6:10:04 PM)
crap it is..hard to believe that mda or alsa does not have some type of referral service

Jim_VA (Oct 8, 2008 6:11:38 PM)
yep

Jim_VA (Oct 8, 2008 6:12:07 PM)
ds

DanG (Oct 8, 2008 6:13:58 PM)
what is new with you ? thought you would be on your way to the Sunshine State!

Jim_VA (Oct 8, 2008 6:14:04 PM)
did they say anything else

DanG (Oct 8, 2008 6:15:16 PM)
this was relayed to me from the ALSA GA lady. She said nothing else. They will not take a waiting list.

Jim_VA (Oct 8, 2008 6:15:41 PM)
not yet

Jim_VA (Oct 8, 2008 6:17:24 PM)
can you apply again

DanG (Oct 8, 2008 6:19:14 PM)
yes, but problem is knowing when to apply again. they won't give you the admin. criteria.

Jim_VA (Oct 8, 2008 6:23:17 PM)
I will see if Ron can help with that

DanG (Oct 8, 2008 6:24:33 PM)
appreciate it. all help I can get would be great!

Jim_VA (Oct 8, 2008 6:27:06 PM)
I will try him tonight

DanG (Oct 8, 2008 6:28:05 PM)
since I have never seen the RT and the company that supplied my vents since they delivered them...maybe I should change vent company. what u think

Jim_VA (Oct 8, 2008 6:29:07 PM)
He knows some nurses

Jim_VA (Oct 8, 2008 6:31:00 PM)
they come here every month

DanG (Oct 8, 2008 6:32:15 PM)
I know...that is supposed to be the norm standard of care. I haven't seen these folks in 18 months.

Jim_VA (Oct 8, 2008 6:32:32 PM)
I would look into it

Jim_VA (Oct 8, 2008 6:32:58 PM)
wow

DanG (Oct 8, 2008 6:33:20 PM)
I did ...was told it was up to me..

Jim_VA (Oct 8, 2008 6:34:25 PM)
you should come to VA

DanG (Oct 8, 2008 6:35:12 PM)
you know of a place to rent..I like that area

Jim_VA (Oct 8, 2008 6:37:06 PM)
I would report that to the state

Jim_VA (Oct 8, 2008 6:38:17 PM)
I will check that out

DanG (Oct 8, 2008 6:38:20 PM)
i am not happy bout it..could be a factor to my continuing pneumonia about every 6 weeks.

Jim_VA (Oct 8, 2008 6:39:07 PM)
who does your care

DanG (Oct 8, 2008 6:39:14 PM)
Did I tell you that Steve guy in Boston hasn't even got off the ground yet. Not a single patient.

DanG (Oct 8, 2008 6:40:16 PM)
Petsch Respiratory.. I made the national ALSA office aware of it to that lady I told u bout.

Jim_VA (Oct 8, 2008 6:40:38 PM)
in GA?

DanG (Oct 8, 2008 6:40:52 PM)
no action...yes in Martinez, GA

DanG (Oct 8, 2008 6:41:34 PM)
it really is hard to believe, isn't it?

Jim_VA (Oct 8, 2008 6:43:32 PM)
have you talked to Steve

DanG (Oct 8, 2008 6:44:42 PM)
yes a while back. the alsa ga lady talked to him last week. I have never mentioned your name.

Jim_VA (Oct 8, 2008 6:45:45 PM)
good

DanG (Oct 8, 2008 6:47:52 PM)
i am getting a reputation of being a pain in the arse. crap is just getiing ridiculous.

Jim_VA (Oct 8, 2008 6:51:49 PM)
I let Steve have it once and have not talked to him since

DanG (Oct 8, 2008 6:53:58 PM)
well what the h... You do what you gotta do ...

Jim_VA (Oct 8, 2008 6:54:35 PM)
check this out

Jim_VA (Oct 8, 2008 6:55:01 PM)
http://www.roanoke.com/business/wb/wb/xp-70424

Jim_VA (Oct 8, 2008 6:56:38 PM)
I would say that I was from Bristol

DanG (Oct 8, 2008 7:02:29 PM)
that sounds great...I will be checking that out

DanG (Oct 8, 2008 7:04:28 PM)
potty time

Jim_VA (Oct 8, 2008 7:05:17 PM)
Roanoke is supposed to be an ALS hot spot

Jim_VA (Oct 8, 2008 7:05:36 PM)
me too

Jim_VA (Oct 8, 2008 7:06:47 PM)
be back in a few

Jim_VA (Oct 8, 2008 7:07:12 PM)
minutes

DanG (Oct 8, 2008 7:07:33 PM)
back

Jim_VA (Oct 8, 2008 7:09:20 PM)
I need a can of mush too

DanG (Oct 8, 2008 7:14:33 PM)
ok bro...if you come across anything up that way for rent that is ground floor ...let me know...I'm game.... I am going to have to hire me some help or something anyway...I have to be out of here by Nov. 7th anyway.

DanG (Oct 8, 2008 7:15:06 PM)
take care and we will talk later..have a good one....

Wes (Oct 8, 2008 7:18:04 PM)
(This user has entered Living with ALS)

Wes (Oct 8, 2008 7:18:08 PM)
(This user has moved to Myotonic Chat Group)

DanG (Oct 8, 2008 7:20:37 PM)
(This user has left DigiChat)

momma (Oct 8, 2008 7:54:24 PM)
(This user has entered Living with ALS)

Jim_VA (Oct 8, 2008 7:54:54 PM)
Hi mom

momma (Oct 8, 2008 7:55:05 PM)
hey thet how are ya

momma (Oct 8, 2008 7:55:08 PM)
thier

Jim_VA (Oct 8, 2008 7:55:43 PM)
great ty and you?

momma (Oct 8, 2008 7:55:57 PM)
just stop in yo say hi dmd chat is open yet

momma (Oct 8, 2008 7:56:23 PM)
got a little knee trouble but ill be ok :)

Jim_VA (Oct 8, 2008 7:56:45 PM)
ws

momma (Oct 8, 2008 7:57:01 PM)
any thing new with you?

Jim_VA (Oct 8, 2008 7:57:19 PM)
what happened

momma (Oct 8, 2008 7:57:44 PM)
doc think i have a torn maniscus

Jim_VA (Oct 8, 2008 7:58:24 PM)
bummer

momma (Oct 8, 2008 7:58:25 PM)
it kind dumb how i did it was getting out of the tub and i felt it rip

momma (Oct 8, 2008 7:58:51 PM)
yea but like i said hopefull recover fast

momma (Oct 8, 2008 7:59:13 PM)
whtas new with you ?

Jim_VA (Oct 8, 2008 7:59:59 PM)
glad to hear that

momma (Oct 8, 2008 8:00:05 PM)
yea

momma (Oct 8, 2008 8:01:38 PM)
well i gotta check other chat

momma (Oct 8, 2008 8:01:57 PM)
if not bust ill stop back

Jim_VA (Oct 8, 2008 8:02:04 PM)
nothing except talking about going to FL

Jim_VA (Oct 8, 2008 8:02:24 PM)
LOL

momma (Oct 8, 2008 8:02:31 PM)
(This user has moved to Parents of Young Adults with DMD)

samsrals (Oct 8, 2008 8:25:53 PM)
(This user has entered Living with ALS)

samsrals (Oct 8, 2008 8:26:04 PM)
hello

Jim_VA (Oct 8, 2008 8:26:20 PM)
hi sam

samsrals (Oct 8, 2008 8:26:29 PM)
hi jim

Jim_VA (Oct 8, 2008 8:27:04 PM)
how are you doing

samsrals (Oct 8, 2008 8:27:13 PM)
how r u

samsrals (Oct 8, 2008 8:27:26 PM)
good...day by day

Jim_VA (Oct 8, 2008 8:27:33 PM)
great ty

samsrals (Oct 8, 2008 8:27:54 PM)
whats new with you

Jim_VA (Oct 8, 2008 8:28:57 PM)
nothing except talking about going to FL

samsrals (Oct 8, 2008 8:29:20 PM)
cool

Jim_VA (Oct 8, 2008 8:31:27 PM)
We usually go in Jan

samsrals (Oct 8, 2008 8:32:30 PM)
must be nice

samsrals (Oct 8, 2008 8:32:54 PM)
havent been on vac. since before i got sick

Jim_VA (Oct 8, 2008 8:33:42 PM)
but might go in Noveember

Jim_VA (Oct 8, 2008 8:34:53 PM)
nice to miss the winter

samsrals (Oct 8, 2008 8:35:07 PM)
where in FL r u going?

Jim_VA (Oct 8, 2008 8:37:37 PM)
Daytona Beach Shores

samsrals (Oct 8, 2008 8:38:22 PM)
r u going swimming?

samsrals (Oct 8, 2008 8:38:36 PM)
haha

Jim_VA (Oct 8, 2008 8:39:28 PM)
lol no

momma (Oct 8, 2008 8:40:09 PM)
(This user has entered Living with ALS)

samsrals (Oct 8, 2008 8:40:33 PM)
hi momma

momma (Oct 8, 2008 8:40:46 PM)
(This user has moved to Parents of Young Adults with DMD)

Jim_VA (Oct 8, 2008 8:43:29 PM)
her son has DMD

Jim_VA (Oct 8, 2008 8:44:17 PM)
very bad stuff

Jim_VA (Oct 8, 2008 8:45:37 PM)
I wish I could swim

samsrals (Oct 8, 2008 8:45:50 PM)
me too

samsrals (Oct 8, 2008 8:49:41 PM)
(This user has left DigiChat)

Jim_VA (Oct 8, 2008 9:03:59 PM)
(This user has left DigiChat)