Living with ALS
DanG (Oct 20, 2008 1:47:54 PM)
DanG (Oct 20, 2008 1:52:50 PM)
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DanG (Oct 20, 2008 1:54:40 PM)
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mommazooms (Oct 20, 2008 2:04:37 PM)
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mommazooms (Oct 20, 2008 2:05:04 PM)
Hi Dan!
DanG (Oct 20, 2008 2:05:21 PM)
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DanG (Oct 20, 2008 2:07:34 PM)
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DanG (Oct 20, 2008 2:08:09 PM)
Hi Beth...This is Dan
mommazooms (Oct 20, 2008 2:08:14 PM)
Hi Dan! WB!
DanG (Oct 20, 2008 2:08:39 PM)
danke
mommazooms (Oct 20, 2008 2:10:11 PM)
I asked my dietician about liquid nutrition w/more calories for you...
DanG (Oct 20, 2008 2:10:38 PM)
how is life for you 2day. what did she say?
mommazooms (Oct 20, 2008 2:11:56 PM)
I'm well, thanks... Here is what she said - Without knowing exactly what his nutritional needs are it is hard to say exactly what formula he should be taking. There are several concentrated formulas out there that provide more calories in a can. Nutren comes in a 1.5 calorie option that provides 375 calories per can; as well as a 2.0 calorie option that provides 500 calories per can.
mommazooms (Oct 20, 2008 2:13:09 PM)
The 1.5 comes in a formula with and without fiber. The 2.0 does not have fiber. That is important to consider, as well, as not getting enough fiber can cause constipation. One caution: It is not adviced to up calories/cans too quickly in the concentrated formulas (could cause GI problems).
DanG (Oct 20, 2008 2:13:45 PM)
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mommazooms (Oct 20, 2008 2:23:44 PM)
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mommazooms (Oct 20, 2008 2:24:00 PM)
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mommazooms (Oct 20, 2008 2:34:01 PM)
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DanG (Oct 20, 2008 2:36:53 PM)
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mommazooms (Oct 20, 2008 2:40:00 PM)
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mommazooms (Oct 20, 2008 2:40:00 PM)
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DanG (Oct 20, 2008 2:41:23 PM)
Hi Beth...Sorry I have had connection problems today.
Jim_VA (Oct 20, 2008 2:45:54 PM)
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Jim_VA (Oct 20, 2008 2:46:38 PM)
Hi Dan
DanG (Oct 20, 2008 2:46:46 PM)
Hi Jim How is your day.
Jim_VA (Oct 20, 2008 2:47:49 PM)
fine ty and you?
DanG (Oct 20, 2008 2:49:59 PM)
Good. I got approval from SC Medicaid today for in house nusing home.
mommazooms (Oct 20, 2008 2:50:01 PM)
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mommazooms (Oct 20, 2008 2:50:30 PM)
Hi Guys!
Jim_VA (Oct 20, 2008 2:50:30 PM)
I had to do some business
Jim_VA (Oct 20, 2008 2:50:58 PM)
hi Beth
mommazooms (Oct 20, 2008 2:51:35 PM)
How is everyone today?
Jim_VA (Oct 20, 2008 2:52:22 PM)
have they got a bed
Jim_VA (Oct 20, 2008 2:53:08 PM)
great ty how are you
redcountry (Oct 20, 2008 2:54:15 PM)
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mommazooms (Oct 20, 2008 2:54:24 PM)
I'm well, thanks...
mommazooms (Oct 20, 2008 2:54:37 PM)
Dan- Did you get all the info I posted here about the liquid nutrition from my dietician?
DanG (Oct 20, 2008 2:54:43 PM)
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Jim_VA (Oct 20, 2008 2:54:49 PM)
hi Julie
redcountry (Oct 20, 2008 2:54:59 PM)
hello
mommazooms (Oct 20, 2008 2:55:19 PM)
Hi Julie, I'm Beth
redcountry (Oct 20, 2008 2:55:26 PM)
i have pink eye
Jim_VA (Oct 20, 2008 2:55:28 PM)
home early
redcountry (Oct 20, 2008 2:55:30 PM)
hi beth
mommazooms (Oct 20, 2008 2:55:57 PM)
Yuck!
redcountry (Oct 20, 2008 2:55:57 PM)
yahoo day off and paid, isnt that terrible
Jim_VA (Oct 20, 2008 2:56:30 PM)
oh no
redcountry (Oct 20, 2008 2:56:37 PM)
i know, i think i have only had it one other time in my life
mommazooms (Oct 20, 2008 2:56:39 PM)
Lol! Sounds great in my book!
redcountry (Oct 20, 2008 2:57:20 PM)
do you have als momma
mommazooms (Oct 20, 2008 2:58:05 PM)
Julie, do you have ALS? Lol! Great minds think alike!
Jim_VA (Oct 20, 2008 2:58:16 PM)
how is griz
mommazooms (Oct 20, 2008 2:58:45 PM)
Yes, I do... dx 10/92
redcountry (Oct 20, 2008 2:58:53 PM)
no my husband had it, griz is great, i got him a pumpkin out fit
Jim_VA (Oct 20, 2008 2:59:27 PM)
lol
mommazooms (Oct 20, 2008 2:59:31 PM)
Who's griz?
redcountry (Oct 20, 2008 2:59:40 PM)
my toy poodle
redcountry (Oct 20, 2008 3:00:01 PM)
he is black, and i just love him
DanG (Oct 20, 2008 3:00:30 PM)
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mommazooms (Oct 20, 2008 3:00:47 PM)
Lol! He'll look good as a pumpkin!
redcountry (Oct 20, 2008 3:01:18 PM)
i have 2 grand children and they also have a toy poodle they all have red hair, their pup is named rusty
mommazooms (Oct 20, 2008 3:01:20 PM)
WB Dan!
DanG (Oct 20, 2008 3:01:27 PM)
Shall we make a pumkin pie!
redcountry (Oct 20, 2008 3:01:41 PM)
im game
mommazooms (Oct 20, 2008 3:02:41 PM)
My son likes pumpkin pie, I don't...
Jim_VA (Oct 20, 2008 3:02:48 PM)
cute pooch
redcountry (Oct 20, 2008 3:03:05 PM)
i will have to send pictures to you jim
DanG (Oct 20, 2008 3:03:21 PM)
Oh, Im sorry...you meant your dog. My apologies
redcountry (Oct 20, 2008 3:03:37 PM)
i love pumpkin and squash .. all the orange vegs
westjlittle (Oct 20, 2008 3:04:10 PM)
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redcountry (Oct 20, 2008 3:04:22 PM)
lol dan
westjlittle (Oct 20, 2008 3:04:37 PM)
Hi All
mommazooms (Oct 20, 2008 3:04:38 PM)
I like acorn & butternut... Hi West!
Jim_VA (Oct 20, 2008 3:04:43 PM)
do you grow punkins Julie
redcountry (Oct 20, 2008 3:04:46 PM)
well just popped in to wish you all a happy halloween
mommazooms (Oct 20, 2008 3:05:22 PM)
Happy Halloween Julie!
Jim_VA (Oct 20, 2008 3:05:27 PM)
Hi Jim
westjlittle (Oct 20, 2008 3:05:29 PM)
I've been watching the als-tdi conference
redcountry (Oct 20, 2008 3:05:34 PM)
no but we have alot of patches around they take up so much space
redcountry (Oct 20, 2008 3:06:04 PM)
any body dressing up this year
Jim_VA (Oct 20, 2008 3:06:37 PM)
send pics
mommazooms (Oct 20, 2008 3:07:54 PM)
Idk... If I do, I'll send Jim pics
redcountry (Oct 20, 2008 3:08:17 PM)
i will and i will send some of the grand kids, grand son is going to be a spider, granddaughter is going to be tinker bell, i am going to try to find some little fur wings for their pup
Jim_VA (Oct 20, 2008 3:08:19 PM)
I have z punkin dress
redcountry (Oct 20, 2008 3:08:52 PM)
ok now i need a picture of the pumpkin dress
Jim_VA (Oct 20, 2008 3:09:33 PM)
hospital gown
Jim_VA (Oct 20, 2008 3:09:49 PM)
ok
redcountry (Oct 20, 2008 3:10:08 PM)
and i have spiders in the candy dish on the table in the kitchen already, cant wait for the kids to lift the lid on it
Jim_VA (Oct 20, 2008 3:10:52 PM)
lol
mommazooms (Oct 20, 2008 3:11:22 PM)
Lol! That will be funny to see their reactions!
westjlittle (Oct 20, 2008 3:11:44 PM)
My sons are going as the red power ranger and "dungeon master"
redcountry (Oct 20, 2008 3:11:51 PM)
yes they are 2 and 4 and always so much fun and work
redcountry (Oct 20, 2008 3:12:07 PM)
cute....
westjlittle (Oct 20, 2008 3:12:57 PM)
This year I will have the scooter to drive around... cary more candy that way!
mommazooms (Oct 20, 2008 3:13:06 PM)
Idk the power rangers were still popular!
westjlittle (Oct 20, 2008 3:13:28 PM)
oh yea
westjlittle (Oct 20, 2008 3:14:15 PM)
Jim - Did you watch the Mizzu beatdown?
redcountry (Oct 20, 2008 3:14:17 PM)
it is so fun
westjlittle (Oct 20, 2008 3:14:32 PM)
I'm making my flight arrangements for Miami
Jim_VA (Oct 20, 2008 3:15:14 PM)
no, lol
westjlittle (Oct 20, 2008 3:15:52 PM)
Will you be in Daytona in Jan?
mommazooms (Oct 20, 2008 3:16:27 PM)
Ok I'll ask... Why Miami?
redcountry (Oct 20, 2008 3:16:36 PM)
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redcountry (Oct 20, 2008 3:16:45 PM)
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westjlittle (Oct 20, 2008 3:16:46 PM)
National Championship is there
Jim_VA (Oct 20, 2008 3:17:08 PM)
they still have 3 tough games
Jim_VA (Oct 20, 2008 3:17:38 PM)
wb Julie
westjlittle (Oct 20, 2008 3:17:42 PM)
I know... sigh ... I try not to jinx it
redcountry (Oct 20, 2008 3:17:49 PM)
i had a low battery,
mommazooms (Oct 20, 2008 3:17:50 PM)
Ah, ty :)
Jim_VA (Oct 20, 2008 3:17:58 PM)
yes
redcountry (Oct 20, 2008 3:18:07 PM)
and i do need to get
redcountry (Oct 20, 2008 3:18:24 PM)
you all have a happy halloween, and take care
redcountry (Oct 20, 2008 3:18:44 PM)
i will send pictures jim
mommazooms (Oct 20, 2008 3:18:55 PM)
Bye!
redcountry (Oct 20, 2008 3:19:10 PM)
i think i am going to go out side it is just booooo ti ful
redcountry (Oct 20, 2008 3:19:13 PM)
hehe
redcountry (Oct 20, 2008 3:19:16 PM)
buy
redcountry (Oct 20, 2008 3:19:21 PM)
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westjlittle (Oct 20, 2008 3:19:22 PM)
Did I scare everyone off?
mommazooms (Oct 20, 2008 3:19:47 PM)
Not me!
westjlittle (Oct 20, 2008 3:22:39 PM)
The ALS-TDI conference Steve Perrin hinted that they had a promising gene therapy. They were filing for IP protection for
mommazooms (Oct 20, 2008 3:22:47 PM)
Dan, Did you get the info I posted about the high calorie liquid nutrition before?
Jim_VA (Oct 20, 2008 3:23:21 PM)
Julie is a very special gal
mommazooms (Oct 20, 2008 3:23:35 PM)
IP protection?
mommazooms (Oct 20, 2008 3:24:15 PM)
How long has Julie had ALS?
westjlittle (Oct 20, 2008 3:24:40 PM)
Intellecutal property
Jim_VA (Oct 20, 2008 3:24:55 PM)
I am ready for it
mommazooms (Oct 20, 2008 3:25:02 PM)
TY!
Jim_VA (Oct 20, 2008 3:26:34 PM)
her husband died from it in January
mommazooms (Oct 20, 2008 3:27:52 PM)
Wow, how long did he have it?
Jim_VA (Oct 20, 2008 3:28:40 PM)
3 years
westjlittle (Oct 20, 2008 3:29:26 PM)
Are you saying a husband and wife both had ALS?
Jim_VA (Oct 20, 2008 3:29:53 PM)
she was a regular here
Jim_VA (Oct 20, 2008 3:30:43 PM)
no just him
mommazooms (Oct 20, 2008 3:31:24 PM)
She's a CALS
mommazooms (Oct 20, 2008 3:31:49 PM)
I went for an evaluation with the speech therapist and got to try an eye gaze system with Erica software... What a trip it was using that!
DanG (Oct 20, 2008 3:31:51 PM)
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Jim_VA (Oct 20, 2008 3:32:08 PM)
yes
westjlittle (Oct 20, 2008 3:33:47 PM)
Have you guys ever seen the "dasher" software for speech processing?
Jim_VA (Oct 20, 2008 3:34:03 PM)
Julie's husband had something like that
Jim_VA (Oct 20, 2008 3:34:17 PM)
no
mommazooms (Oct 20, 2008 3:35:30 PM)
I use Dasher right now and can have it speak when I stop if I want to
westjlittle (Oct 20, 2008 3:36:04 PM)
I just learned about today... How do you like it?
westjlittle (Oct 20, 2008 3:36:12 PM)
It looks neat.
Jim_VA (Oct 20, 2008 3:36:48 PM)
My keyboard has speech
mommazooms (Oct 20, 2008 3:38:19 PM)
I love it! I got it two years ago in June and didn't use it until a month later - I kicked myself for not using it right away!
Jim_VA (Oct 20, 2008 3:39:15 PM)
there is etriloquist also
westjlittle (Oct 20, 2008 3:39:29 PM)
I thought that you could speak still. Are you using for speech synthesis?
westjlittle (Oct 20, 2008 3:40:04 PM)
Etriloquist is a quant toy compared to what I saw.
mommazooms (Oct 20, 2008 3:40:22 PM)
The only place I can't use it to type into is this chat room! I have to copy & paste everything I write
westjlittle (Oct 20, 2008 3:40:26 PM)
I'll send you a link
Jim_VA (Oct 20, 2008 3:40:42 PM)
ok
mommazooms (Oct 20, 2008 3:41:39 PM)
I can still speak but was playing with the settings and had it speaking for a bit
westjlittle (Oct 20, 2008 3:42:00 PM)
I was thinking about how to describe it... maybe beth can help. My first thought was a ouji board
Jim_VA (Oct 20, 2008 3:42:22 PM)
I don't use anything
Jim_VA (Oct 20, 2008 3:42:46 PM)
lol
mommazooms (Oct 20, 2008 3:43:26 PM)
Lol! Yeah, that's about right! You aim the cursor to the letters you want... It has word prediction too
Jim_VA (Oct 20, 2008 3:44:56 PM)
I have word prediction
mommazooms (Oct 20, 2008 3:44:57 PM)
It also remembers words you type often... I can write my address in about 10 seconds :)
Jim_VA (Oct 20, 2008 3:45:35 PM)
yes
westjlittle (Oct 20, 2008 3:45:45 PM)
They claim that experience users can do 30 words per minute
westjlittle (Oct 20, 2008 3:46:17 PM)
that's probably faster than I can do nwo
mommazooms (Oct 20, 2008 3:46:31 PM)
It can go as fast or as slow as you like. I don't know what I can do but I'm pretty quick
Jim_VA (Oct 20, 2008 3:46:37 PM)
That is what they say
Jim_VA (Oct 20, 2008 3:47:56 PM)
I have 10 word prediction
mommazooms (Oct 20, 2008 3:48:04 PM)
It took me about half a day to play with it until I was comfortable with it and then I was hooked!
Jim_VA (Oct 20, 2008 3:49:26 PM)
on eye gaze?
mommazooms (Oct 20, 2008 3:49:57 PM)
When you first d/l it, it only has lower case letters. You have to go under options and change the alphabet
westjlittle (Oct 20, 2008 3:49:57 PM)
they have a try it out spot on the website
Jim_VA (Oct 20, 2008 3:50:47 PM)
laser?
mommazooms (Oct 20, 2008 3:51:17 PM)
No, I can still control a mouse and use it that way. The website says it can be used with eye gaze systems
westjlittle (Oct 20, 2008 3:51:49 PM)
Jim you have to try it
mommazooms (Oct 20, 2008 3:51:50 PM)
http://dasher.org.uk/
Jim_VA (Oct 20, 2008 3:52:18 PM)
ok
mommazooms (Oct 20, 2008 3:53:24 PM)
It's a free download, they just ask you to fill out a small questionnaire about why you're d/l it...
Jim_VA (Oct 20, 2008 3:53:49 PM)
chow time brb
mommazooms (Oct 20, 2008 3:55:01 PM)
I also tried a speech enhancer system (http://www.speechenhancer.com/), that was a neat gadget!
mommazooms (Oct 20, 2008 3:58:47 PM)
West, I have it set up to type into another window (ie: email, the web so I can fill out shopping addresses, etc.) and I have not found a spot it won't work other than this chat room...
westjlittle (Oct 20, 2008 3:59:53 PM)
I'm going to try it out this week
mommazooms (Oct 20, 2008 4:00:43 PM)
What are you using now to type?
westjlittle (Oct 20, 2008 4:00:58 PM)
fingers
westjlittle (Oct 20, 2008 4:01:23 PM)
I hunt and peck now
mommazooms (Oct 20, 2008 4:03:34 PM)
Lol! I was doing that with a hand pointer about 5 years ago, then went to the onscreen keyboard to click every single key, then a PALS in NH showed me this!
mommazooms (Oct 20, 2008 4:04:36 PM)
I wish I had known about this software 5 years ago!
westjlittle (Oct 20, 2008 4:13:10 PM)
Is it time to discuss football?
mommazooms (Oct 20, 2008 4:13:54 PM)
Be warned - it may cause you to become motion sick or cause a waterfall effect on your eyes... That means after using the Dasher when you look away from the screen, objects you look at might appear to be moving! It happened to me - waterfall - but I never felt sick
westjlittle (Oct 20, 2008 4:14:17 PM)
Broncos play in Boston tonight
mommazooms (Oct 20, 2008 4:15:00 PM)
Ok, football time! I hope the Pats lose!
Jim_VA (Oct 20, 2008 4:15:22 PM)
back
mommazooms (Oct 20, 2008 4:15:38 PM)
I'll be back in 10 minutes...
Jim_VA (Oct 20, 2008 4:15:57 PM)
k
Jim_VA (Oct 20, 2008 4:19:33 PM)
texas has a good chance even if they lose one
westjlittle (Oct 20, 2008 4:21:56 PM)
Here is the trick of conference play. If you lose in conference then tie with other guy; you don't go to conf title game and hence miss the BCS bowls
westjlittle (Oct 20, 2008 4:22:49 PM)
That is why the OU game is so big. The winner of that game has gone on to Big 12 chapion for many years
westjlittle (Oct 20, 2008 4:23:19 PM)
If we dominate Oklas state like Mizzu, I buying tickets
westjlittle (Oct 20, 2008 4:23:28 PM)
to Miami
Jim_VA (Oct 20, 2008 4:24:20 PM)
almost everybody lost 1
Jim_VA (Oct 20, 2008 4:24:49 PM)
lol
westjlittle (Oct 20, 2008 4:25:19 PM)
Besides Lecia went to Penn state, we both went to AL. Even if TX screws the pooch, we can go and root for somewone
Jim_VA (Oct 20, 2008 4:26:29 PM)
t tech is going to be tough
Jim_VA (Oct 20, 2008 4:28:13 PM)
lol I don't think penn st has enough
westjlittle (Oct 20, 2008 4:28:30 PM)
I watched the Neb - TX tech game. Tech looks vulnerable
westjlittle (Oct 20, 2008 4:29:06 PM)
They have played nobody yet
westjlittle (Oct 20, 2008 4:30:14 PM)
They have to run the gauntlet of kansas, TX, OKstate, OU
westjlittle (Oct 20, 2008 4:30:31 PM)
OK state is the only worrisome game
westjlittle (Oct 20, 2008 4:30:57 PM)
It may be like OU. Turnovers and mistakes will decide
Jim_VA (Oct 20, 2008 4:31:10 PM)
alabama has only skinned by
westjlittle (Oct 20, 2008 4:31:34 PM)
AL is going to lose to Fl in title game
Jim_VA (Oct 20, 2008 4:31:37 PM)
yes
westjlittle (Oct 20, 2008 4:32:51 PM)
Pennstate has easy schedule after Sat.
westjlittle (Oct 20, 2008 4:33:30 PM)
and no title game to screw up record
Jim_VA (Oct 20, 2008 4:33:30 PM)
might loae to TN
Jim_VA (Oct 20, 2008 4:34:32 PM)
yep
mommazooms (Oct 20, 2008 4:34:45 PM)
I'm back
westjlittle (Oct 20, 2008 4:35:51 PM)
I only hope that TX does not play Penn state. It will cause marital problems
Jim_VA (Oct 20, 2008 4:36:17 PM)
I like Joe P
mommazooms (Oct 20, 2008 4:36:31 PM)
Congrats to TX being on top of the BCS ranking!
westjlittle (Oct 20, 2008 4:36:56 PM)
Lecia's brother played for Penn state 79-83 with Joe pa
Jim_VA (Oct 20, 2008 4:36:58 PM)
wb
westjlittle (Oct 20, 2008 4:37:18 PM)
Thank you... I'm very excited
Jim_VA (Oct 20, 2008 4:38:09 PM)
he is good
Jim_VA (Oct 20, 2008 4:40:18 PM)
I have been looking at ALSA
westjlittle (Oct 20, 2008 4:40:33 PM)
?
mommazooms (Oct 20, 2008 4:40:43 PM)
I can't believe that JoePa hurt his hip demonstrating something in practice!
westjlittle (Oct 20, 2008 4:41:03 PM)
I have been looking at Miami hotels
mommazooms (Oct 20, 2008 4:41:40 PM)
He s/b talking, not demonstrating!
Jim_VA (Oct 20, 2008 4:41:47 PM)
funding of research
Jim_VA (Oct 20, 2008 4:42:52 PM)
he is a character
mommazooms (Oct 20, 2008 4:42:52 PM)
And what did you find?
Jim_VA (Oct 20, 2008 4:43:20 PM)
very poor
westjlittle (Oct 20, 2008 4:44:01 PM)
I have always had the idea that they were more PALS support
Jim_VA (Oct 20, 2008 4:45:26 PM)
the area chapters
mommazooms (Oct 20, 2008 4:45:31 PM)
So, donating to them is not wise if you want your money to go to research?
westjlittle (Oct 20, 2008 4:46:05 PM)
I would donate diredct to ALS-TDI
mommazooms (Oct 20, 2008 4:46:22 PM)
How about Augie's Quest?
westjlittle (Oct 20, 2008 4:46:27 PM)
Beth- You should have gone to the conf in boston
westjlittle (Oct 20, 2008 4:46:42 PM)
Augie's quest good too
westjlittle (Oct 20, 2008 4:46:59 PM)
That is wahtI raised money for earlier this year
Jim_VA (Oct 20, 2008 4:47:03 PM)
right Augie's Quest is great
westjlittle (Oct 20, 2008 4:47:16 PM)
Did you see the video that jim posted of me ?
mommazooms (Oct 20, 2008 4:47:38 PM)
Boston?
westjlittle (Oct 20, 2008 4:47:43 PM)
Jim- I sent that to all my relatives. You should have some hits
westjlittle (Oct 20, 2008 4:48:07 PM)
ALS-TDI has research office in Boston
mommazooms (Oct 20, 2008 4:48:08 PM)
No, not yet!
westjlittle (Oct 20, 2008 4:48:23 PM)
They had conf yesterday and today
Jim_VA (Oct 20, 2008 4:48:28 PM)
great
mommazooms (Oct 20, 2008 4:48:48 PM)
I'll have to read up on them...
westjlittle (Oct 20, 2008 4:49:26 PM)
They claimed that you can drop in anytime for tour. I went last year it was great
Jim_VA (Oct 20, 2008 4:50:32 PM)
Johns Hopkins had a bulletin today
Jim_VA (Oct 20, 2008 4:51:47 PM)
something about genes and ALS
mommazooms (Oct 20, 2008 4:53:37 PM)
Gotta go! See you next week!
mommazooms (Oct 20, 2008 4:53:39 PM)
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westjlittle (Oct 20, 2008 4:54:50 PM)
It was stems cells injected into spinal cord slowed breathing loss
Jim_VA (Oct 20, 2008 4:55:18 PM)
yes
westjlittle (Oct 20, 2008 4:55:32 PM)
I got a note from the pulologist stating I was at 50% FVC
westjlittle (Oct 20, 2008 4:55:47 PM)
I thought the thing said 38%
westjlittle (Oct 20, 2008 4:56:02 PM)
I'm hoping he is right
Jim_VA (Oct 20, 2008 4:56:50 PM)
In mokeys
westjlittle (Oct 20, 2008 4:57:11 PM)
Stan Appel at the ALS-TDI conf said that men under 45 with limb onset have 20% chance of living 10 years
westjlittle (Oct 20, 2008 4:57:19 PM)
It was rats
Jim_VA (Oct 20, 2008 4:57:38 PM)
that would be great
Jim_VA (Oct 20, 2008 4:58:15 PM)
interesting
westjlittle (Oct 20, 2008 4:58:46 PM)
I didn't get that idea before
westjlittle (Oct 20, 2008 4:59:04 PM)
I think it has more to do with FVC
Jim_VA (Oct 20, 2008 4:59:46 PM)
definetly]
Jim_VA (Oct 20, 2008 5:01:01 PM)
Appel is good
westjlittle (Oct 20, 2008 5:01:57 PM)
I had tuned in to ALS-TDI conf to see him. he was going to do presentation then left early
westjlittle (Oct 20, 2008 5:03:43 PM)
It's time to hang the hat
Jim_VA (Oct 20, 2008 5:03:50 PM)
I had limb onset and stopped breathing
Jim_VA (Oct 20, 2008 5:04:39 PM)
yes take care ttyl
westjlittle (Oct 20, 2008 5:04:50 PM)
Bye!
westjlittle (Oct 20, 2008 5:04:55 PM)
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Jim_VA (Oct 20, 2008 5:05:11 PM)
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