Living with ALS
Jim_VA (Nov 17, 2008 2:01:49 PM)
mommazooms (Nov 17, 2008 2:02:42 PM)
(This user has entered Living with ALS)
mommazooms (Nov 17, 2008 2:03:11 PM)
Hi Jim!
Jim_VA (Nov 17, 2008 2:03:21 PM)
Hi Beth
Jim_VA (Nov 17, 2008 2:04:43 PM)
how are you today
mommazooms (Nov 17, 2008 2:05:40 PM)
I'm well, thanks... How are you?
Jim_VA (Nov 17, 2008 2:06:17 PM)
fine ty
mommazooms (Nov 17, 2008 2:14:27 PM)
Are you having everyone over for Thanksgiving?
westjlittle (Nov 17, 2008 2:17:02 PM)
(This user has entered Living with ALS)
mommazooms (Nov 17, 2008 2:17:37 PM)
Hi West!
westjlittle (Nov 17, 2008 2:17:49 PM)
hello all
westjlittle (Nov 17, 2008 2:18:04 PM)
I was sick last week
Jim_VA (Nov 17, 2008 2:18:08 PM)
I am going to reboot brb - yes they are taking me to Florida - how about you
mommazooms (Nov 17, 2008 2:18:55 PM)
How are you today West?
Jim_VA (Nov 17, 2008 2:19:31 PM)
Hi Jim sorry to hear that
westjlittle (Nov 17, 2008 2:19:37 PM)
I'm pretty tired. recovering from weekend with buys
westjlittle (Nov 17, 2008 2:19:43 PM)
boys
Jim_VA (Nov 17, 2008 2:20:07 PM)
buoys
mommazooms (Nov 17, 2008 2:20:16 PM)
I asked Jim what he was doing for Turkey Day... I'm staying home...
westjlittle (Nov 17, 2008 2:20:26 PM)
I can't seem to get rid of crap in my chest even with cough assist
westjlittle (Nov 17, 2008 2:21:29 PM)
Always some phlegm
Jim_VA (Nov 17, 2008 2:21:34 PM)
how are the sessions going?
mommazooms (Nov 17, 2008 2:21:48 PM)
I had a cold the week before, it stayed in my head
Jim_VA (Nov 17, 2008 2:22:05 PM)
bummer
westjlittle (Nov 17, 2008 2:22:53 PM)
If you mean therapy... Lecia and I are working through things but we have a long road
mommazooms (Nov 17, 2008 2:23:20 PM)
Made my head feel heavier than 8lbs. :)
Jim_VA (Nov 17, 2008 2:23:41 PM)
I don't usually get colds
mommazooms (Nov 17, 2008 2:24:13 PM)
At least you're working on them!
westjlittle (Nov 17, 2008 2:24:17 PM)
My kids will be the death of me with all the crap they bring home
westjlittle (Nov 17, 2008 2:24:30 PM)
germs and such
Jim_VA (Nov 17, 2008 2:24:43 PM)
that is good Jim
westjlittle (Nov 17, 2008 2:24:51 PM)
We make them wash hands etc
mommazooms (Nov 17, 2008 2:24:57 PM)
Don't you get a flu shot?
westjlittle (Nov 17, 2008 2:25:06 PM)
yes
westjlittle (Nov 17, 2008 2:25:21 PM)
nothing stops a cold
westjlittle (Nov 17, 2008 2:29:17 PM)
we are doing nothing for thanksgiving...just staying home
Jim_VA (Nov 17, 2008 2:30:04 PM)
I bought a camo Tennessee cap with a green "T". I told my boys that it was akin to wearing a bag over the head
westjlittle (Nov 17, 2008 2:30:53 PM)
LOL
mommazooms (Nov 17, 2008 2:31:16 PM)
What do you take when you get a cold? I take Dayquil/Nyquil pills to aleviate some of the symptoms... Lol!
Jim_VA (Nov 17, 2008 2:31:31 PM)
Fl & Al
westjlittle (Nov 17, 2008 2:31:44 PM)
I take similar stuff
westjlittle (Nov 17, 2008 2:32:25 PM)
IT seems like I've been living on cough susspresant
westjlittle (Nov 17, 2008 2:32:52 PM)
the BIPAP tickles that stuff then I start coughing
Jim_VA (Nov 17, 2008 2:32:53 PM)
not good
mommazooms (Nov 17, 2008 2:33:07 PM)
West, were you the one that tried Dasher?
westjlittle (Nov 17, 2008 2:33:23 PM)
I see the doc on thursday
westjlittle (Nov 17, 2008 2:33:41 PM)
I have tried it but still type faster
mommazooms (Nov 17, 2008 2:34:13 PM)
Lucky you! :)
Jim_VA (Nov 17, 2008 2:34:21 PM)
good ask about a nebulizer
mommazooms (Nov 17, 2008 2:34:56 PM)
What does that do?
westjlittle (Nov 17, 2008 2:34:58 PM)
I think that I'm not drinking enough
westjlittle (Nov 17, 2008 2:35:08 PM)
water not beer
mommazooms (Nov 17, 2008 2:35:38 PM)
lol!
mommazooms (Nov 17, 2008 2:36:47 PM)
I also suck on cough drops...
Jim_VA (Nov 17, 2008 2:37:13 PM)
lol
westjlittle (Nov 17, 2008 2:37:43 PM)
My tongue doesn't work well enough fr that
mommazooms (Nov 17, 2008 2:39:13 PM)
I keep them under my tongue
westjlittle (Nov 17, 2008 2:40:41 PM)
I'm almost ready to give up eating... It is a pain
westjlittle (Nov 17, 2008 2:40:51 PM)
Only do the peg
Jim_VA (Nov 17, 2008 2:41:01 PM)
a nebulizer for Albuterol Sulfate
Jim_VA (Nov 17, 2008 2:42:01 PM)
it breaks up the stuff
mommazooms (Nov 17, 2008 2:43:10 PM)
Thanks for the answer...
mommazooms (Nov 17, 2008 2:43:46 PM)
Sorry to hear that West
Jim_VA (Nov 17, 2008 2:44:42 PM)
do you think Lecia would help with a project
westjlittle (Nov 17, 2008 2:45:08 PM)
It seems like a prudent course of action. Avoid aspiration and coking
westjlittle (Nov 17, 2008 2:45:46 PM)
Maybe...Lecia and I are working on the MDA fundraising event right now
mommazooms (Nov 17, 2008 2:45:51 PM)
Yes
Jim_VA (Nov 17, 2008 2:46:03 PM)
yes
Jim_VA (Nov 17, 2008 2:47:34 PM)
I am looking at ALSA'S tax records
westjlittle (Nov 17, 2008 2:47:54 PM)
for what?
westjlittle (Nov 17, 2008 2:48:17 PM)
Are they in cohoots with AIG?
Jim_VA (Nov 17, 2008 2:49:08 PM)
from what I see research amount is bs
westjlittle (Nov 17, 2008 2:49:49 PM)
I have always felt they were more patient oriented
Jim_VA (Nov 17, 2008 2:50:12 PM)
a false inpression
mommazooms (Nov 17, 2008 2:51:43 PM)
Ok, so who should my parents be sending their donations to, AQuest? They make a donation a couple of times a year to ALSA in CT
Jim_VA (Nov 17, 2008 2:51:55 PM)
on the local level--maybe
westjlittle (Nov 17, 2008 2:52:58 PM)
Yes locally they are patient oriented
Jim_VA (Nov 17, 2008 2:53:06 PM)
if they want it to go to research
mommazooms (Nov 17, 2008 2:53:09 PM)
So sending it local is better?
westjlittle (Nov 17, 2008 2:53:16 PM)
MDA tries to do both but they drop the ball in CO
Jim_VA (Nov 17, 2008 2:54:23 PM)
no they pay dues to the national
westjlittle (Nov 17, 2008 2:55:24 PM)
why do you have the interest?
mommazooms (Nov 17, 2008 2:55:38 PM)
Who does?
westjlittle (Nov 17, 2008 2:55:43 PM)
Are they wasting money?
Jim_VA (Nov 17, 2008 2:55:56 PM)
example one chapter collected
Jim_VA (Nov 17, 2008 2:56:12 PM)
brb
Jim_VA (Nov 17, 2008 2:59:36 PM)
I am looking for my file
Jim_VA (Nov 17, 2008 3:02:41 PM)
the basic was they collected over 1m and gave about 8500 to research
Jim_VA (Nov 17, 2008 3:04:53 PM)
over 1ook to the National Organization who gives some to research also
Jim_VA (Nov 17, 2008 3:05:13 PM)
100k
Jim_VA (Nov 17, 2008 3:06:28 PM)
certainly does not add up to 40%
mommazooms (Nov 17, 2008 3:07:34 PM)
Where does the 990K out of the 1M go? Admin?
Jim_VA (Nov 17, 2008 3:08:23 PM)
our area chapter CEO makes $115 a year
westjlittle (Nov 17, 2008 3:09:19 PM)
WOW - I thought engineering paid well.
Jim_VA (Nov 17, 2008 3:09:20 PM)
not all of it
westjlittle (Nov 17, 2008 3:10:11 PM)
I fidn it hard to imagine that the 'little' girls in denver make that much
westjlittle (Nov 17, 2008 3:10:30 PM)
Everytime I got to ameeting with them I feel old
westjlittle (Nov 17, 2008 3:10:44 PM)
I'm only 43
mommazooms (Nov 17, 2008 3:10:53 PM)
How can I find out how much ours is making?
Jim_VA (Nov 17, 2008 3:11:28 PM)
(This user has left DigiChat)
westjlittle (Nov 17, 2008 3:11:53 PM)
I'll bet you can get annual report for chapter
mommazooms (Nov 17, 2008 3:12:37 PM)
How would I get that?
westjlittle (Nov 17, 2008 3:12:47 PM)
ask them for it
mommazooms (Nov 17, 2008 3:13:27 PM)
That easy? Ok :)
westjlittle (Nov 17, 2008 3:17:17 PM)
anything else going on?
mommazooms (Nov 17, 2008 3:19:40 PM)
Not much... Our son, RJ who was 15 months old when I got this death sentence, had his Senior Night at football on the 14th!
westjlittle (Nov 17, 2008 3:20:11 PM)
Is he going to college?
mommazooms (Nov 17, 2008 3:22:11 PM)
I was so happy to be there! Yes, he hopes to. He's at a tech school studying culinary arts and he visited a culinary school with the class today...
westjlittle (Nov 17, 2008 3:22:44 PM)
Does he cook a lot at home?
westjlittle (Nov 17, 2008 3:23:19 PM)
My mother went to grad school when I was in HS. I learned to cook then
mommazooms (Nov 17, 2008 3:25:40 PM)
No, we live with my parents and my father is retired so he does most of the cooking I was a pretty fair cook before ALS and when I could, I'd cook with him...
westjlittle (Nov 17, 2008 3:29:14 PM)
I wonder where jim went?
westjlittle (Nov 17, 2008 3:30:04 PM)
NYC is probably a good place to learn chefing
westjlittle (Nov 17, 2008 3:30:25 PM)
Do you ever watch kitchen nighmares?
mommazooms (Nov 17, 2008 3:30:27 PM)
Idk... He's usually right back on
Jim_VA (Nov 17, 2008 3:31:18 PM)
(This user has entered Living with ALS)
westjlittle (Nov 17, 2008 3:31:39 PM)
welcome back
mommazooms (Nov 17, 2008 3:32:00 PM)
Yeah, we like that show, all of Ramsey's shows! WB Jim!
westjlittle (Nov 17, 2008 3:32:03 PM)
Crank calling the ALSA office?
mommazooms (Nov 17, 2008 3:32:25 PM)
Lol!
Jim_VA (Nov 17, 2008 3:32:45 PM)
ty got the boot lol
westjlittle (Nov 17, 2008 3:32:47 PM)
If he would stop the Fbombs
westjlittle (Nov 17, 2008 3:33:24 PM)
he obviously doesn't have kids
westjlittle (Nov 17, 2008 3:34:29 PM)
I started thinking hwo woudl i crank call?
Jim_VA (Nov 17, 2008 3:34:39 PM)
I think ALSA'S true figures should be published
westjlittle (Nov 17, 2008 3:34:49 PM)
"Excuse me, how do i donate to telethon?
westjlittle (Nov 17, 2008 3:35:10 PM)
Can I have Jerry Lewis please?
Jim_VA (Nov 17, 2008 3:35:42 PM)
lol
mommazooms (Nov 17, 2008 3:36:08 PM)
Lol!
He looked into going to the CIA (Culinary Institute of America) in NY and they require you to have 2 years of college before you even apply!
Jim_VA (Nov 17, 2008 3:37:33 PM)
my mom was CIA
mommazooms (Nov 17, 2008 3:38:24 PM)
Really?
Jim_VA (Nov 17, 2008 3:40:08 PM)
Headquarters is not far from here
Jim_VA (Nov 17, 2008 3:42:28 PM)
It was close to where the vietnam memorial is
mommazooms (Nov 17, 2008 3:42:36 PM)
Do you mean Central Intelligence Agency?
westjlittle (Nov 17, 2008 3:42:55 PM)
we are talking food
westjlittle (Nov 17, 2008 3:43:06 PM)
not spooks
Jim_VA (Nov 17, 2008 3:43:07 PM)
yes
mommazooms (Nov 17, 2008 3:43:27 PM)
Lol!
westjlittle (Nov 17, 2008 3:43:28 PM)
Beth's son wants to be a chef
westjlittle (Nov 17, 2008 3:43:44 PM)
Maybe he could be both!
Jim_VA (Nov 17, 2008 3:44:15 PM)
Central Intelligence Agency
mommazooms (Nov 17, 2008 3:44:21 PM)
Yeah, a spook chef!
westjlittle (Nov 17, 2008 3:45:06 PM)
Learn how to put 'bug' in a canole
Jim_VA (Nov 17, 2008 3:46:05 PM)
my wife worked at the Pentagon
mommazooms (Nov 17, 2008 3:46:20 PM)
There is a culinary college called the CIA - Culinary Institute of America in Hyde Park... Lol!
Jim_VA (Nov 17, 2008 3:46:37 PM)
lol
Jim_VA (Nov 17, 2008 3:47:55 PM)
we are the intelligence type
westjlittle (Nov 17, 2008 3:48:26 PM)
So you were opening letters at the post office?
Jim_VA (Nov 17, 2008 3:50:05 PM)
no I was considered customer service
Jim_VA (Nov 17, 2008 3:52:03 PM)
at one time my wife could have served you an ICBM
Jim_VA (Nov 17, 2008 3:53:23 PM)
going down to the 20s tonight
westjlittle (Nov 17, 2008 3:53:50 PM)
been there done that! We had snow on friday
mommazooms (Nov 17, 2008 3:53:51 PM)
Intercontinental breakfast menu?
Jim_VA (Nov 17, 2008 3:54:19 PM)
heading for Fl
mommazooms (Nov 17, 2008 3:55:15 PM)
We had flurries this afternoon!
Jim_VA (Nov 17, 2008 3:58:30 PM)
yes we are country folks. We have breakfast by the alphabet - aggs, bacon, coffee, and donuts
mommazooms (Nov 17, 2008 4:00:17 PM)
Lol! What does ICBM stand for?
westjlittle (Nov 17, 2008 4:00:36 PM)
INTERcontinental ballistic missle
Jim_VA (Nov 17, 2008 4:01:02 PM)
yep
mommazooms (Nov 17, 2008 4:02:36 PM)
Hey, I had part of it right! :D
Jim_VA (Nov 17, 2008 4:03:23 PM)
How do you like your aggs? By golly I like em!
westjlittle (Nov 17, 2008 4:05:01 PM)
Let's go back to your beef with alsa. I'm happy with local service. But you think they are not spending enough on research?
Jim_VA (Nov 17, 2008 4:07:10 PM)
I think that their actual figures should be published
westjlittle (Nov 17, 2008 4:08:09 PM)
because....?
Jim_VA (Nov 17, 2008 4:11:00 PM)
remember a lot of their patient services is durable medical equipment with the emphasis on durable
westjlittle (Nov 17, 2008 4:11:41 PM)
They are not buying it.
westjlittle (Nov 17, 2008 4:12:30 PM)
They probably have a lot. The last time I was at ALSA office they were preping equipment to donate somewhere else
Jim_VA (Nov 17, 2008 4:12:52 PM)
I think donors should know where their money is going
mommazooms (Nov 17, 2008 4:13:06 PM)
I'll be back in 20 minutes...
westjlittle (Nov 17, 2008 4:14:02 PM)
I'm still missing the point. Are you saying ALSA wastes money on DME?
Jim_VA (Nov 17, 2008 4:14:45 PM)
when they something durable many people use it
westjlittle (Nov 17, 2008 4:14:46 PM)
Unless you specify, charities can do wahtever with money
westjlittle (Nov 17, 2008 4:15:22 PM)
i don't work on telethon. I only work on money for research
westjlittle (Nov 17, 2008 4:15:37 PM)
ALS research
Jim_VA (Nov 17, 2008 4:19:15 PM)
exactly and I think the bottom line is 20% research and 10% patient services maybe less
Jim_VA (Nov 17, 2008 4:20:52 PM)
brb
mommazooms (Nov 17, 2008 4:28:15 PM)
I'm back!
westjlittle (Nov 17, 2008 4:28:30 PM)
Jim ran off
westjlittle (Nov 17, 2008 4:29:06 PM)
I'm eating a slice of sweet potatoe pie
mommazooms (Nov 17, 2008 4:29:51 PM)
Yeah, I saw that! That sounds good!
mommazooms (Nov 17, 2008 4:31:03 PM)
Are you still at work?
Jim_VA (Nov 17, 2008 4:31:12 PM)
back
westjlittle (Nov 17, 2008 4:31:22 PM)
Yes
westjlittle (Nov 17, 2008 4:31:53 PM)
I'm working on our spectrum analyzer software. I can't get it to compile
westjlittle (Nov 17, 2008 4:32:22 PM)
so I fiddle with it a little and try again.
mommazooms (Nov 17, 2008 4:32:38 PM)
Bummer!
Jim_VA (Nov 17, 2008 4:32:43 PM)
bummer
westjlittle (Nov 17, 2008 4:32:56 PM)
I get paid to do it!
Jim_VA (Nov 17, 2008 4:32:56 PM)
lol
mommazooms (Nov 17, 2008 4:33:41 PM)
That makes it all better!
westjlittle (Nov 17, 2008 4:33:55 PM)
So jim, you claim that alsa wastes 70% on overhead?
westjlittle (Nov 17, 2008 4:35:33 PM)
My sweet potatoe pie is gone
Jim_VA (Nov 17, 2008 4:36:17 PM)
ALSA has 3 people in DC on salaries and they contract a lobbying firm
Jim_VA (Nov 17, 2008 4:36:50 PM)
maybe more
westjlittle (Nov 17, 2008 4:36:52 PM)
It's my birthday on friday. My motheris going to cook m fried chicken for first time im 10 years
mommazooms (Nov 17, 2008 4:37:40 PM)
Happy 44th Birthday!
westjlittle (Nov 17, 2008 4:37:55 PM)
43
westjlittle (Nov 17, 2008 4:38:05 PM)
I exgaerated
westjlittle (Nov 17, 2008 4:38:48 PM)
I just realized I missed talking about the election
Jim_VA (Nov 17, 2008 4:38:55 PM)
Happy Birthday Friday - eat mo chikn
mommazooms (Nov 17, 2008 4:39:14 PM)
My apologies! :) Will you be able to enjoy the meal?
westjlittle (Nov 17, 2008 4:39:25 PM)
My vote fianlly counted towards the electoral tally
Jim_VA (Nov 17, 2008 4:39:48 PM)
great
westjlittle (Nov 17, 2008 4:39:53 PM)
I can eat slow but not alot. The grease willhelp slide it down
westjlittle (Nov 17, 2008 4:40:25 PM)
That is significatn because my vote for president has nver counted.
westjlittle (Nov 17, 2008 4:40:47 PM)
My state always went to the other guy
Jim_VA (Nov 17, 2008 4:41:00 PM)
I think he is off to a good start
westjlittle (Nov 17, 2008 4:41:07 PM)
obama will rescind the stem cell ban
Jim_VA (Nov 17, 2008 4:42:16 PM)
yes and restrictions on lobbyists
westjlittle (Nov 17, 2008 4:44:01 PM)
It will be pork politics for sure on capital hill
Jim_VA (Nov 17, 2008 4:44:02 PM)
but Hillary Sec of State - puke
westjlittle (Nov 17, 2008 4:44:20 PM)
I agree.
Jim_VA (Nov 17, 2008 4:44:36 PM)
lol
westjlittle (Nov 17, 2008 4:44:52 PM)
We have colin powell, albright
mommazooms (Nov 17, 2008 4:44:56 PM)
Lol!
westjlittle (Nov 17, 2008 4:45:23 PM)
Let hillery work on healthcare again
westjlittle (Nov 17, 2008 4:46:07 PM)
This disease has made me think that this is big issue
Jim_VA (Nov 17, 2008 4:46:23 PM)
he seems to want to work with McCain
westjlittle (Nov 17, 2008 4:47:09 PM)
I thiink he wants help to control pork
Jim_VA (Nov 17, 2008 4:47:39 PM)
yes much more than they think
Jim_VA (Nov 17, 2008 4:48:44 PM)
McCain is 100% against pork
westjlittle (Nov 17, 2008 4:48:50 PM)
I think obama was in there long enough to see the problems with pork but not get sucked in
westjlittle (Nov 17, 2008 4:49:17 PM)
I wish that the line item veto was around
westjlittle (Nov 17, 2008 4:49:33 PM)
I haven't heard that recently
westjlittle (Nov 17, 2008 4:49:48 PM)
reagan wanted tjat
Jim_VA (Nov 17, 2008 4:49:58 PM)
has been for years - yes
mommazooms (Nov 17, 2008 4:50:07 PM)
Idk what pork on capital hill is? Excuse my stupidity :)
westjlittle (Nov 17, 2008 4:50:53 PM)
Pork is a gneric term that means adding special apprpriations that are unrelated to at bill
Jim_VA (Nov 17, 2008 4:51:07 PM)
aka earmarks
westjlittle (Nov 17, 2008 4:51:22 PM)
Like adding $100000 for a library on a bill for roads
westjlittle (Nov 17, 2008 4:51:50 PM)
Like the bridge to nowhere in alaska
mommazooms (Nov 17, 2008 4:51:57 PM)
Oh, I see! Thanks...
Jim_VA (Nov 17, 2008 4:54:22 PM)
Hillary wanted $1.5m for a Woodstock anniversary party
Jim_VA (Nov 17, 2008 4:54:39 PM)
example
westjlittle (Nov 17, 2008 4:55:12 PM)
That's abetter example
mommazooms (Nov 17, 2008 4:55:17 PM)
Ha!
mommazooms (Nov 17, 2008 4:56:09 PM)
and she added that to... ?
westjlittle (Nov 17, 2008 4:57:09 PM)
could be anything... poeple hold out votes on vital legislation to get stuff for back home
mommazooms (Nov 17, 2008 4:57:52 PM)
Ok...
Jim_VA (Nov 17, 2008 4:58:31 PM)
I think Stevens and Jefferson are going to be Duke Cunningham's roommates
Jim_VA (Nov 17, 2008 5:00:31 PM)
I think Hillary dropped that when she first decided to run
Jim_VA (Nov 17, 2008 5:01:19 PM)
did not want that publicity
Jim_VA (Nov 17, 2008 5:03:31 PM)
earmarks are attached to bills that will pass
mommazooms (Nov 17, 2008 5:03:49 PM)
See you guys next week! Take care and stay safe! TTFN!
mommazooms (Nov 17, 2008 5:03:55 PM)
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westjlittle (Nov 17, 2008 5:04:09 PM)
It's time to go
westjlittle (Nov 17, 2008 5:04:25 PM)
Bye Jim
Jim_VA (Nov 17, 2008 5:04:49 PM)
ah take care bye
westjlittle (Nov 17, 2008 5:05:01 PM)
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Jim_VA (Nov 17, 2008 5:05:07 PM)
(This user has left DigiChat)