Living with ALS
mommazooms (Dec 22, 2008 1:47:08 PM)
mommazooms (Dec 22, 2008 1:57:33 PM)
(This user has left DigiChat)
mommazooms (Dec 22, 2008 1:57:43 PM)
(This user has entered Living with ALS)
jackL (Dec 22, 2008 2:05:37 PM)
(This user has entered Living with ALS)
jackL (Dec 22, 2008 2:06:53 PM)
Hi my name is Jack - I am new to these sites. I was just recently diagnosed (October)
mommazooms (Dec 22, 2008 2:07:43 PM)
Hi Jack! My name is Beth
jackL (Dec 22, 2008 2:08:14 PM)
do you have als
mommazooms (Dec 22, 2008 2:09:03 PM)
October seems to be the month for ALS dx... Mine was in October 1992...
jackL (Dec 22, 2008 2:09:45 PM)
how fast isyour progressing
mommazooms (Dec 22, 2008 2:11:46 PM)
I seem to be “blessed” with a slow progression, I'm still breathing on my own and eating what I'm fed by mouth...
mommazooms (Dec 22, 2008 2:13:12 PM)
How are you doing?
jackL (Dec 22, 2008 2:13:28 PM)
mine is fast progression, I'm breathing at 55% and I can not walk
jackL (Dec 22, 2008 2:14:36 PM)
I am still eating by mouth, but my doctor wants me to put in a feediing tube.
mommazooms (Dec 22, 2008 2:15:29 PM)
I get around in a wheelchair all the time and my breathing is at 88%
jackL (Dec 22, 2008 2:15:42 PM)
I have to make a decesion by my next apt. which is in Jan 09
westjlittle (Dec 22, 2008 2:15:47 PM)
(This user has entered Living with ALS)
westjlittle (Dec 22, 2008 2:16:18 PM)
Hi Beth, Hi Jack?
jackL (Dec 22, 2008 2:16:39 PM)
Hi
mommazooms (Dec 22, 2008 2:16:53 PM)
A feeding tube is a good idea if you have problems eating... Hi West!
westjlittle (Dec 22, 2008 2:17:08 PM)
I Don't think we have met
westjlittle (Dec 22, 2008 2:17:32 PM)
I go by west here
westjlittle (Dec 22, 2008 2:17:42 PM)
but my name is jim
jackL (Dec 22, 2008 2:18:07 PM)
This is my first time on this chat room
mommazooms (Dec 22, 2008 2:18:10 PM)
Jack was dx in October and just got on the chat room
westjlittle (Dec 22, 2008 2:18:43 PM)
I see... we love having new people
westjlittle (Dec 22, 2008 2:18:51 PM)
to the chat
jackL (Dec 22, 2008 2:19:05 PM)
Thank you
mommazooms (Dec 22, 2008 2:19:24 PM)
Jack, may I ask how old you are? I'm 47
jackL (Dec 22, 2008 2:19:31 PM)
59
westjlittle (Dec 22, 2008 2:19:45 PM)
What was your first symtom?
jackL (Dec 22, 2008 2:20:19 PM)
April 2007,
jackL (Dec 22, 2008 2:20:53 PM)
I had trouble moveing my left foot
jackL (Dec 22, 2008 2:21:18 PM)
It just kept getting worse.
westjlittle (Dec 22, 2008 2:21:26 PM)
same for me.. I twisted my ankle it 'never' healed
westjlittle (Dec 22, 2008 2:21:41 PM)
I now know it was foot drop
jackL (Dec 22, 2008 2:21:54 PM)
I went to Cleveland clinc in sept of 08
westjlittle (Dec 22, 2008 2:22:21 PM)
I didn't get diagnoised until months later when I had slurred speech
mommazooms (Dec 22, 2008 2:22:31 PM)
How are you typing, with your hands or with some software? I'm using Dasher and West is typing with his hands...
jackL (Dec 22, 2008 2:22:40 PM)
how is your breathing
jackL (Dec 22, 2008 2:23:31 PM)
I am typing with my hands
westjlittle (Dec 22, 2008 2:23:38 PM)
My breathing has declined. at diagnosis I was at 80% fvc (Oct 06) now at 38%
mommazooms (Dec 22, 2008 2:24:32 PM)
Glad to hear it Jack :)
westjlittle (Dec 22, 2008 2:24:36 PM)
I used to type with hands.. now finger peck
jackL (Dec 22, 2008 2:24:50 PM)
Are you on a ventilator
westjlittle (Dec 22, 2008 2:25:22 PM)
No, but I use bipap when laying down
westjlittle (Dec 22, 2008 2:25:39 PM)
Venting is required at about 20%
westjlittle (Dec 22, 2008 2:26:05 PM)
It is hard to say exactly when
westjlittle (Dec 22, 2008 2:26:26 PM)
I am in wheelchair
jackL (Dec 22, 2008 2:26:39 PM)
So do I. They are giveing me a better. I was at slept center at UPMC
westjlittle (Dec 22, 2008 2:26:49 PM)
That started this fall
westjlittle (Dec 22, 2008 2:26:56 PM)
What is yoru FVC?
jackL (Dec 22, 2008 2:26:58 PM)
yes
mommazooms (Dec 22, 2008 2:27:41 PM)
You might want to try Dasher http://dasher.org.uk/It's free and easy to use...
mommazooms (Dec 22, 2008 2:29:53 PM)
He said his breathing is at 55%
jackL (Dec 22, 2008 2:30:15 PM)
I had the test on Friday, they are giveing me a new machine which is different from the one I am useing now. They said it is better for ALS patients.
mommazooms (Dec 22, 2008 2:32:45 PM)
I wonder what it is? When will you get it?
jackL (Dec 22, 2008 2:33:28 PM)
they just ordered for me today
jackL (Dec 22, 2008 2:35:43 PM)
I cannot remember the name it was called, but is just like the one I am useing now. My doctor said is better for ALS patients. I will try to get you the name as some as my wife comes home.
mommazooms (Dec 22, 2008 2:36:48 PM)
Where do you live? I'm in Enfield, CT Do you have someone to help you during the day? My husband, son and I live with my parents and they help me during the day...
mommazooms (Dec 22, 2008 2:37:41 PM)
Thanks Jack :)
jackL (Dec 22, 2008 2:38:40 PM)
I live in Pittsburgh. With my wife. I have an aid that helps me. My children help a lot to.
Jim_VA (Dec 22, 2008 2:39:30 PM)
(This user has entered Living with ALS)
jackL (Dec 22, 2008 2:39:48 PM)
My breathing machine is AVAPS
mommazooms (Dec 22, 2008 2:39:52 PM)
How old are they? Our son, Rob, is 17 Hi Jim!
jackL (Dec 22, 2008 2:40:42 PM)
my sons are 31 and 29. daughter is 27
westjlittle (Dec 22, 2008 2:41:15 PM)
You can see my family here: http://www.alsandus.org/videos/jimwmda.htm
Jim_VA (Dec 22, 2008 2:41:26 PM)
Hi Beth, Jim, and Jack
westjlittle (Dec 22, 2008 2:42:15 PM)
Courtesy of Jim!
jackL (Dec 22, 2008 2:42:21 PM)
AVAPS is Average VOlume Assured Pressure Support
jackL (Dec 22, 2008 2:42:28 PM)
HI
westjlittle (Dec 22, 2008 2:42:50 PM)
I never heard of AVAPS
jackL (Dec 22, 2008 2:43:00 PM)
It is new
westjlittle (Dec 22, 2008 2:43:24 PM)
Did they say why it was better?
Jim_VA (Dec 22, 2008 2:43:57 PM)
bipap?
westjlittle (Dec 22, 2008 2:44:07 PM)
Something differnt
mommazooms (Dec 22, 2008 2:44:10 PM)
http://bipapavaps.respironics.com/
jackL (Dec 22, 2008 2:44:47 PM)
Better version of the bipap
mommazooms (Dec 22, 2008 2:44:52 PM)
BiPAP®AVAPS™ is Respironics' newest noninvasive ventilator for use in the home, and features AVAPS™ (Average Volume Assured Pressure Support) technology—an algorithm that provides an average tidal volume by automatically adapting pressure support to meet the patient's needs.
jackL (Dec 22, 2008 2:45:15 PM)
Thats it
westjlittle (Dec 22, 2008 2:47:34 PM)
The difference between a bipap and a bipap with avaps is based on volume of air instead of just pressure
Jim_VA (Dec 22, 2008 2:48:08 PM)
I am beyond bipap
jackL (Dec 22, 2008 2:48:14 PM)
My doctor thinks its a little better
westjlittle (Dec 22, 2008 2:48:21 PM)
So a BIPAP will vary the pressurebut ignores the volume of air you breathe in
westjlittle (Dec 22, 2008 2:49:06 PM)
AVAPS will increase/decrease pressure to make sure you have proper volume of air
jackL (Dec 22, 2008 2:49:08 PM)
Its a newer version
westjlittle (Dec 22, 2008 2:49:22 PM)
I'm calling my doc too
westjlittle (Dec 22, 2008 2:49:34 PM)
it sounds better
Jim_VA (Dec 22, 2008 2:50:31 PM)
Is the pressure adjustable
jackL (Dec 22, 2008 2:50:33 PM)
I have only used it at sleep center,but it seems better than the one I am useing now.
mommazooms (Dec 22, 2008 2:50:35 PM)
Yeah, it does... I'll keep this in mind when I need it
westjlittle (Dec 22, 2008 2:50:44 PM)
We learned something new today!!
jackL (Dec 22, 2008 2:50:46 PM)
yes
Jim_VA (Dec 22, 2008 2:51:21 PM)
Interesting
mommazooms (Dec 22, 2008 2:51:49 PM)
Yeah, thanks Jack!
jackL (Dec 22, 2008 2:52:15 PM)
Your welcome
westjlittle (Dec 22, 2008 2:52:22 PM)
It's explained here: http://avaps.respironics.com/technology.asp
Jim_VA (Dec 22, 2008 2:52:51 PM)
I like volume and pressure
jackL (Dec 22, 2008 2:53:28 PM)
Jim were are you from
Jim_VA (Dec 22, 2008 2:54:08 PM)
Arlington Virginia you
jackL (Dec 22, 2008 2:54:40 PM)
Pittsburgh, Pa a Steeler fam
Jim_VA (Dec 22, 2008 2:55:36 PM)
I am in Florida right now
jackL (Dec 22, 2008 2:55:47 PM)
Is anyone on a feeding tube, my doctor recommend it for me
jackL (Dec 22, 2008 2:56:02 PM)
Whats the temp their
Jim_VA (Dec 22, 2008 2:56:14 PM)
yes
westjlittle (Dec 22, 2008 2:57:18 PM)
I get 80% of calories from tube
westjlittle (Dec 22, 2008 2:57:45 PM)
I am down to only smooth foods like applesacuce
jackL (Dec 22, 2008 2:58:01 PM)
How long have you been on a feeding tube
Jim_VA (Dec 22, 2008 2:58:04 PM)
54 wind
westjlittle (Dec 22, 2008 2:58:04 PM)
Other foods are dangerous
westjlittle (Dec 22, 2008 2:58:27 PM)
I started using in august due to weight loss
Jim_VA (Dec 22, 2008 2:58:54 PM)
78 tomorrow
westjlittle (Dec 22, 2008 2:58:57 PM)
I'm in denver btw
jackL (Dec 22, 2008 2:59:14 PM)
I lost 15 pounds in past three months
westjlittle (Dec 22, 2008 2:59:32 PM)
So you are sunning by the pool?
jackL (Dec 22, 2008 2:59:46 PM)
have you picked up any weight
westjlittle (Dec 22, 2008 2:59:52 PM)
That is a sign
westjlittle (Dec 22, 2008 2:59:58 PM)
Yes
westjlittle (Dec 22, 2008 3:00:21 PM)
I aim for 2000+ cal per day
westjlittle (Dec 22, 2008 3:00:42 PM)
At least five cans of ensuer plus
westjlittle (Dec 22, 2008 3:00:51 PM)
per day
Jim_VA (Dec 22, 2008 3:00:57 PM)
Jack do you know Rich Holland
jackL (Dec 22, 2008 3:01:05 PM)
no
jackL (Dec 22, 2008 3:02:21 PM)
Are you takeing any drugs for ALS
Jim_VA (Dec 22, 2008 3:02:53 PM)
Rilutek
westjlittle (Dec 22, 2008 3:02:53 PM)
Rilutek and setraline for emotional
mommazooms (Dec 22, 2008 3:02:58 PM)
No
Jim_VA (Dec 22, 2008 3:03:31 PM)
green tea
westjlittle (Dec 22, 2008 3:03:52 PM)
Pomagranite martinis
jackL (Dec 22, 2008 3:03:53 PM)
any side affects
westjlittle (Dec 22, 2008 3:04:03 PM)
no
mommazooms (Dec 22, 2008 3:04:21 PM)
Lol!
westjlittle (Dec 22, 2008 3:04:27 PM)
Headches from the martinis ;_)
westjlittle (Dec 22, 2008 3:04:31 PM)
:-)
jackL (Dec 22, 2008 3:05:07 PM)
they are good, I use to wook for liiquor control board in Pa
westjlittle (Dec 22, 2008 3:05:30 PM)
I had side effects with amitriptyline
jackL (Dec 22, 2008 3:05:36 PM)
They are healthy
Jim_VA (Dec 22, 2008 3:05:38 PM)
did you get the cap Jim?
westjlittle (Dec 22, 2008 3:05:48 PM)
Not yet
westjlittle (Dec 22, 2008 3:07:19 PM)
Were you the head liquor sampler?
jackL (Dec 22, 2008 3:07:32 PM)
I wish i was
westjlittle (Dec 22, 2008 3:07:49 PM)
I write software and make silly comments
jackL (Dec 22, 2008 3:08:10 PM)
good. I like that
westjlittle (Dec 22, 2008 3:08:17 PM)
I'm supposed to be working but no one is in office this week
Jim_VA (Dec 22, 2008 3:08:33 PM)
starting Rilutek you must watch your liver through blood count
Jim_VA (Dec 22, 2008 3:09:10 PM)
wahoo huh
jackL (Dec 22, 2008 3:09:12 PM)
have you noticed a difference
mommazooms (Dec 22, 2008 3:09:49 PM)
You're the boss West!
westjlittle (Dec 22, 2008 3:10:28 PM)
I didn't have any symptoms with rilutek but some people in my support group claim to have decreased lung function
jackL (Dec 22, 2008 3:11:04 PM)
is decreased lung function a side affect
westjlittle (Dec 22, 2008 3:11:21 PM)
I don't think so
Jim_VA (Dec 22, 2008 3:11:44 PM)
I have been taking for years. It went up at first
jackL (Dec 22, 2008 3:12:04 PM)
How much
mommazooms (Dec 22, 2008 3:12:58 PM)
Liver function is affected and that's what the bloodwork is for...
mommazooms (Dec 22, 2008 3:13:43 PM)
That's what my neuro said
Jim_VA (Dec 22, 2008 3:13:47 PM)
no a few points
westjlittle (Dec 22, 2008 3:15:35 PM)
fudge... some work arrived by email
Jim_VA (Dec 22, 2008 3:16:17 PM)
it leveled off in a couple of months
Jim_VA (Dec 22, 2008 3:17:35 PM)
when were you diagnosed Jack
jackL (Dec 22, 2008 3:17:58 PM)
oct 10 2008 at cleveland clinc
Jim_VA (Dec 22, 2008 3:18:50 PM)
Do you go to UP
jackL (Dec 22, 2008 3:20:10 PM)
I now go doctors at UPMC in Pittsburgh ALS clinc
Jim_VA (Dec 22, 2008 3:21:16 PM)
that is a good place
westjlittle (Dec 22, 2008 3:21:18 PM)
Did I tell you my Fiesta bowl tickets were confirmed...
Jim_VA (Dec 22, 2008 3:21:48 PM)
great
Jim_VA (Dec 22, 2008 3:22:15 PM)
AZ
westjlittle (Dec 22, 2008 3:22:15 PM)
Supposedly they are wheelchair seats
mommazooms (Dec 22, 2008 3:22:49 PM)
Who's playing?
westjlittle (Dec 22, 2008 3:23:41 PM)
Are you being silly! Texas vs. Ohio State
jackL (Dec 22, 2008 3:24:07 PM)
GO Ohio State
mommazooms (Dec 22, 2008 3:24:16 PM)
Lol! Yeah, I was ;)
Jim_VA (Dec 22, 2008 3:24:23 PM)
nice - up the hill
mommazooms (Dec 22, 2008 3:25:44 PM)
Oh, West! You have competition :)
westjlittle (Dec 22, 2008 3:26:00 PM)
Jim is there a way to delete Jackl from the system?
mommazooms (Dec 22, 2008 3:26:31 PM)
Lol!
Jim_VA (Dec 22, 2008 3:27:00 PM)
lol lol TX will kick there rump roast lol
westjlittle (Dec 22, 2008 3:28:36 PM)
I feel OSU has the best defense that we faced this year. It's going to be good game
Jim_VA (Dec 22, 2008 3:28:50 PM)
I heard OS mi
westjlittle (Dec 22, 2008 3:29:38 PM)
All kidding aside, Jack, it's time to do stuff like bowl games or vacations
jackL (Dec 22, 2008 3:30:18 PM)
Vacations sound good
westjlittle (Dec 22, 2008 3:30:22 PM)
I also recommend using "Modeltalker" to record voice and pharases
Jim_VA (Dec 22, 2008 3:30:28 PM)
might not show up
westjlittle (Dec 22, 2008 3:31:13 PM)
Why? They get the privildege of playing the team that defeated OU
westjlittle (Dec 22, 2008 3:31:26 PM)
Oh that makes sense then
Jim_VA (Dec 22, 2008 3:33:04 PM)
TN is going to be interesting next year
jackL (Dec 22, 2008 3:33:12 PM)
do you have any trouble flying, because of breathing problems with ALS
westjlittle (Dec 22, 2008 3:33:59 PM)
No but last summer when I flew overnight to eurpoe, I could nto sleep
westjlittle (Dec 22, 2008 3:34:29 PM)
I have more trouble with the not walking well part
Jim_VA (Dec 22, 2008 3:34:39 PM)
depends on what equipment you need
Jim_VA (Dec 22, 2008 3:35:31 PM)
do you need the bipap
jackL (Dec 22, 2008 3:35:44 PM)
yes to sleep
westjlittle (Dec 22, 2008 3:36:50 PM)
I was worried about it but I was only a little uncomfortable. If you have the dough, business class has plugs
Jim_VA (Dec 22, 2008 3:37:25 PM)
cannot breathe on your back?
jackL (Dec 22, 2008 3:37:33 PM)
I cannot lay flat when I sleep. I
jackL (Dec 22, 2008 3:38:25 PM)
it's like someone knocked the breathe out of me
Jim_VA (Dec 22, 2008 3:38:39 PM)
that is what happened to me
westjlittle (Dec 22, 2008 3:39:31 PM)
brb
Jim_VA (Dec 22, 2008 3:39:40 PM)
unusual in ALS
Jim_VA (Dec 22, 2008 3:40:55 PM)
Rich Holland is the same
Jim_VA (Dec 22, 2008 3:43:34 PM)
Have the doctors check your O2 periodically
Jim_VA (Dec 22, 2008 3:44:32 PM)
also CO2
westjlittle (Dec 22, 2008 3:46:06 PM)
back
westjlittle (Dec 22, 2008 3:47:07 PM)
anything else you are wondering about javk?
Jim_VA (Dec 22, 2008 3:49:49 PM)
it's tea time brb
jackL (Dec 22, 2008 3:52:07 PM)
How long have you been on this chat line
westjlittle (Dec 22, 2008 3:52:55 PM)
about tow years
mommazooms (Dec 22, 2008 3:53:42 PM)
On & off about 5 years
westjlittle (Dec 22, 2008 3:54:59 PM)
I was basically i your position two years ago
Jim_VA (Dec 22, 2008 3:58:17 PM)
back
jackL (Dec 22, 2008 3:58:22 PM)
This is all new to me. I am trying to gather all information I can.
Jim_VA (Dec 22, 2008 3:58:30 PM)
2
westjlittle (Dec 22, 2008 3:59:25 PM)
We can help cut to the real issues
jackL (Dec 22, 2008 3:59:43 PM)
Are their any studies or trails going on ALS in your area
Jim_VA (Dec 22, 2008 3:59:43 PM)
three years or so
mommazooms (Dec 22, 2008 3:59:48 PM)
WB! What brand of tea do you drink?
westjlittle (Dec 22, 2008 4:00:18 PM)
Have you seen the other online forums like Patientslikeme or alsforums?
Jim_VA (Dec 22, 2008 4:01:01 PM)
dragonwell tea
jackL (Dec 22, 2008 4:01:05 PM)
yes, but i have not tried them yet
westjlittle (Dec 22, 2008 4:01:28 PM)
All the forums can be taxing but I like https://www.patientslikeme.com/home
westjlittle (Dec 22, 2008 4:02:02 PM)
On PLM you can see what others are doing and progression
Jim_VA (Dec 22, 2008 4:02:25 PM)
you should join it
mommazooms (Dec 22, 2008 4:02:49 PM)
Available everywhere? What do you put in it? What are the benefits?
jackL (Dec 22, 2008 4:02:56 PM)
I think i will. It sounds good
westjlittle (Dec 22, 2008 4:03:32 PM)
Look for me I go by westjlittle there too
Jim_VA (Dec 22, 2008 4:03:38 PM)
it is from china
mommazooms (Dec 22, 2008 4:04:01 PM)
It's a great place for answers and a great place to vent!
mommazooms (Dec 22, 2008 4:06:10 PM)
I'm there also - mzooms
Jim_VA (Dec 22, 2008 4:07:31 PM)
powerful antioxidants
mommazooms (Dec 22, 2008 4:09:18 PM)
Great, I think I'll pick some up...
Jim_VA (Dec 22, 2008 4:09:52 PM)
I will send you a link to where I get it
mommazooms (Dec 22, 2008 4:10:23 PM)
Thanks...
Jim_VA (Dec 22, 2008 4:11:35 PM)
and instructions on how to fix it
Jim_VA (Dec 22, 2008 4:11:55 PM)
:o)
westjlittle (Dec 22, 2008 4:12:16 PM)
I need to reboot back in minute
westjlittle (Dec 22, 2008 4:12:21 PM)
(This user has left DigiChat)
mommazooms (Dec 22, 2008 4:13:38 PM)
Oh, it's not in a teabag?
Jim_VA (Dec 22, 2008 4:13:46 PM)
Jack how old are you
Jim_VA (Dec 22, 2008 4:14:57 PM)
lol no tea leaves
mommazooms (Dec 22, 2008 4:16:36 PM)
Jim, have you any news about Dan? So it's REAL tea? ;)
Jim_VA (Dec 22, 2008 4:18:21 PM)
I am going to get some white monkey tea next yes real tea
westjlittle (Dec 22, 2008 4:20:04 PM)
(This user has entered Living with ALS)
Jim_VA (Dec 22, 2008 4:20:11 PM)
I have not talked to Dan lately
Jim_VA (Dec 22, 2008 4:20:20 PM)
wb
westjlittle (Dec 22, 2008 4:20:34 PM)
thankx
mommazooms (Dec 22, 2008 4:20:35 PM)
WB!
mommazooms (Dec 22, 2008 4:21:23 PM)
I was wondering how he was healing up
Jim_VA (Dec 22, 2008 4:21:33 PM)
officially you infuse tea
westjlittle (Dec 22, 2008 4:22:35 PM)
I thought you infused bombs
Jim_VA (Dec 22, 2008 4:22:35 PM)
I am going to write him a note
Jim_VA (Dec 22, 2008 4:22:53 PM)
lol
mommazooms (Dec 22, 2008 4:22:56 PM)
It sounds very British
mommazooms (Dec 22, 2008 4:23:40 PM)
that's defuse :)
westjlittle (Dec 22, 2008 4:23:57 PM)
I'm confused
westjlittle (Dec 22, 2008 4:24:10 PM)
and amused
Jim_VA (Dec 22, 2008 4:24:25 PM)
I got my pot from the UK LOL
jackL (Dec 22, 2008 4:25:09 PM)
can you spare some
mommazooms (Dec 22, 2008 4:25:42 PM)
Do you have little watercress sandwiches with your tea?
Jim_VA (Dec 22, 2008 4:25:44 PM)
AKA infuser
westjlittle (Dec 22, 2008 4:26:14 PM)
Ensure has watercress flaver
mommazooms (Dec 22, 2008 4:27:43 PM)
I think I have a tea ball - stainless steel with holes all over... How does that taste?
Jim_VA (Dec 22, 2008 4:27:49 PM)
no but I know where some watercress grows
Jim_VA (Dec 22, 2008 4:28:31 PM)
I use one
jackL (Dec 22, 2008 4:31:26 PM)
I have to sign off now. I would like to wish you all a Merry Christmas and a healthy holiday. GOD BLESS JACK
westjlittle (Dec 22, 2008 4:31:41 PM)
Merry Christmas
jackL (Dec 22, 2008 4:32:20 PM)
I will be back this was very interesting
mommazooms (Dec 22, 2008 4:32:45 PM)
I'm going to dinner now and I'm going to sign off... I want to wish everyone a blessed and merry Christmas! I'll see you next Monday! Bye all...
westjlittle (Dec 22, 2008 4:32:48 PM)
We aim to please
jackL (Dec 22, 2008 4:33:00 PM)
(This user has left DigiChat)
westjlittle (Dec 22, 2008 4:33:13 PM)
Beye Beth merry Christmas
mommazooms (Dec 22, 2008 4:33:26 PM)
(This user has left DigiChat)
westjlittle (Dec 22, 2008 4:33:49 PM)
It's just you and me now
Jim_VA (Dec 22, 2008 4:33:53 PM)
Watercress is a Manatee delicacy
Jim_VA (Dec 22, 2008 4:34:43 PM)
that is normal
westjlittle (Dec 22, 2008 4:35:51 PM)
Now what do we talk about?????????????
westjlittle (Dec 22, 2008 4:36:07 PM)
I have off until Jan 7
westjlittle (Dec 22, 2008 4:36:16 PM)
starting tommorrow
Jim_VA (Dec 22, 2008 4:36:24 PM)
TX will kick OSU big A
westjlittle (Dec 22, 2008 4:36:41 PM)
I'm hoping for 60 points
Jim_VA (Dec 22, 2008 4:36:53 PM)
nice
westjlittle (Dec 22, 2008 4:37:04 PM)
That was OU joke
westjlittle (Dec 22, 2008 4:37:29 PM)
You can bet TX will be running up the score next year
westjlittle (Dec 22, 2008 4:37:48 PM)
We always put in scond team
Jim_VA (Dec 22, 2008 4:37:50 PM)
they may get it
westjlittle (Dec 22, 2008 4:38:26 PM)
I still wish we were playing AL
Jim_VA (Dec 22, 2008 4:38:30 PM)
everyone will
Jim_VA (Dec 22, 2008 4:39:15 PM)
that would be interesting
westjlittle (Dec 22, 2008 4:39:18 PM)
Except TN you mean right?
Jim_VA (Dec 22, 2008 4:39:35 PM)
lol
westjlittle (Dec 22, 2008 4:40:27 PM)
Broncos blew it yesterday
Jim_VA (Dec 22, 2008 4:41:11 PM)
TN should have a great D-fence
westjlittle (Dec 22, 2008 4:41:40 PM)
Did you ever go to the games?
Jim_VA (Dec 22, 2008 4:42:14 PM)
Giants was a great game
westjlittle (Dec 22, 2008 4:44:08 PM)
Missed that game... We went to the lego store. Grandma gave money, Logan vincent picked
Jim_VA (Dec 22, 2008 4:44:16 PM)
no but my son had season tickets for a number of years
westjlittle (Dec 22, 2008 4:44:35 PM)
I was building a Martian invader and a robot for two hours
Jim_VA (Dec 22, 2008 4:44:40 PM)
neat
Jim_VA (Dec 22, 2008 4:44:58 PM)
lol
Jim_VA (Dec 22, 2008 4:46:21 PM)
the trip to Knoxville grr
Jim_VA (Dec 22, 2008 4:47:08 PM)
he drove it
westjlittle (Dec 22, 2008 4:47:18 PM)
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westjlittle (Dec 22, 2008 4:50:25 PM)
(This user has entered Living with ALS)
Jim_VA (Dec 22, 2008 4:50:31 PM)
wb over the weekend
westjlittle (Dec 22, 2008 4:50:37 PM)
I got dumped
westjlittle (Dec 22, 2008 4:50:49 PM)
hard
Jim_VA (Dec 22, 2008 4:52:15 PM)
he would leave Friday and return Sunday
westjlittle (Dec 22, 2008 4:52:54 PM)
When I am cured that is what I will do too
Jim_VA (Dec 22, 2008 4:53:31 PM)
about 500 miles one way
westjlittle (Dec 22, 2008 4:54:49 PM)
That's doable... I would go home for the weekend in college from Austin to OKC. 400 miles.. of course I would drive 90 miles an hour
Jim_VA (Dec 22, 2008 4:55:09 PM)
I could go to the swamp from here
Jim_VA (Dec 22, 2008 4:55:19 PM)
lol
westjlittle (Dec 22, 2008 4:55:35 PM)
My best time was five hours... I told my mother six and she freaked out
westjlittle (Dec 22, 2008 4:55:51 PM)
I guess I should tell her the real time
westjlittle (Dec 22, 2008 4:56:33 PM)
Amazingly I never got a ticket... those were the days
Jim_VA (Dec 22, 2008 4:56:35 PM)
the swamp is probably 50 miles
westjlittle (Dec 22, 2008 4:58:39 PM)
You should go weh TN plays
Jim_VA (Dec 22, 2008 4:59:21 PM)
yep I bet the gator tickets are tough to get
westjlittle (Dec 22, 2008 4:59:53 PM)
Next year for sure when they are nat champ
Jim_VA (Dec 22, 2008 5:00:36 PM)
get a student
Jim_VA (Dec 22, 2008 5:01:20 PM)
or become a student
westjlittle (Dec 22, 2008 5:01:40 PM)
Yea... go back to school... perhaps elementary education lots of girls there
westjlittle (Dec 22, 2008 5:01:51 PM)
avoid engineering
Jim_VA (Dec 22, 2008 5:02:29 PM)
you can donate
Jim_VA (Dec 22, 2008 5:03:16 PM)
that always helps
westjlittle (Dec 22, 2008 5:03:27 PM)
I'm not loaded that much
westjlittle (Dec 22, 2008 5:03:53 PM)
I have a foot that I'm not using. :-)
Jim_VA (Dec 22, 2008 5:04:14 PM)
they will take anything
Jim_VA (Dec 22, 2008 5:05:09 PM)
bummer lost control?
westjlittle (Dec 22, 2008 5:05:50 PM)
i can' move foot for a year
Jim_VA (Dec 22, 2008 5:06:14 PM)
Wow
westjlittle (Dec 22, 2008 5:06:52 PM)
I told you that I can't move anything below my knees
westjlittle (Dec 22, 2008 5:07:13 PM)
My thighs are going now
westjlittle (Dec 22, 2008 5:07:40 PM)
It's a wonder that I can use a walker
Jim_VA (Dec 22, 2008 5:07:43 PM)
that is difficult
Jim_VA (Dec 22, 2008 5:08:57 PM)
I would rather have arms
westjlittle (Dec 22, 2008 5:09:31 PM)
Breathing, eating, arms
Jim_VA (Dec 22, 2008 5:10:24 PM)
did jack say how old he was
westjlittle (Dec 22, 2008 5:10:30 PM)
59
Jim_VA (Dec 22, 2008 5:10:46 PM)
ah
Jim_VA (Dec 22, 2008 5:12:01 PM)
he is in a tough spot
westjlittle (Dec 22, 2008 5:12:52 PM)
It's hard early on but if he is reaching out that is good
Jim_VA (Dec 22, 2008 5:13:59 PM)
I don't know how long bipap will work
westjlittle (Dec 22, 2008 5:15:07 PM)
It varies... I say a poll on PLM. Most people vent about at 10-20%
Jim_VA (Dec 22, 2008 5:15:18 PM)
Green Bay tonight
westjlittle (Dec 22, 2008 5:15:19 PM)
If they are venting...
westjlittle (Dec 22, 2008 5:16:33 PM)
I gotto go Peepee so I'm loggin off BYE jim
Jim_VA (Dec 22, 2008 5:17:06 PM)
I was 50% and two weeks later 0
Jim_VA (Dec 22, 2008 5:17:21 PM)
bye
westjlittle (Dec 22, 2008 5:17:27 PM)
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Jim_VA (Dec 22, 2008 5:17:36 PM)
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