Living with ALS

Jim_VA (Jan 7, 2009 6:03:23 PM)
Hi

Jim_VA (Jan 7, 2009 6:07:26 PM)
the

Jim_VA2 (Jan 7, 2009 6:25:29 PM)
(This user has entered Living with ALS)

Jim_VA2 (Jan 7, 2009 6:27:03 PM)
hi

Jim_VA2 (Jan 7, 2009 6:31:39 PM)
ok

Jim_VA2 (Jan 7, 2009 6:32:49 PM)
take

Jim_VA2 (Jan 7, 2009 6:35:26 PM)
care

Jim_VA2 (Jan 7, 2009 6:45:10 PM)
see

Jim_VA2 (Jan 7, 2009 6:48:09 PM)
where

Jim_VA2 (Jan 7, 2009 6:57:07 PM)
are

Jim_VA2 (Jan 7, 2009 7:00:46 PM)
good

momma (Jan 7, 2009 7:01:48 PM)
(This user has entered Living with ALS)

momma (Jan 7, 2009 7:02:14 PM)
hi jim

momma (Jan 7, 2009 7:04:26 PM)
just wanted to say hello and wish you a happy new year maybey ill checked back later

momma (Jan 7, 2009 7:04:29 PM)
(This user has left DigiChat)

Jim_VA2 (Jan 7, 2009 7:08:07 PM)
kitchen

Jim_VA2 (Jan 7, 2009 7:23:27 PM)
about

Jim_VA2 (Jan 7, 2009 7:35:02 PM)
the

Jim_VA2 (Jan 7, 2009 7:44:11 PM)
right

momma (Jan 7, 2009 7:49:44 PM)
(This user has entered Living with ALS)

momma (Jan 7, 2009 7:50:41 PM)
(This user has moved to Parents of Young Adults with DMD)

Jim_VA2 (Jan 7, 2009 7:51:52 PM)
(This user has left DigiChat)

Jim_VA2 (Jan 7, 2009 7:52:23 PM)
(This user has entered Living with ALS)

Jim_VA2 (Jan 7, 2009 7:52:56 PM)
(This user has moved to Parents of Young Adults with DMD)

PaRay (Jan 7, 2009 7:53:32 PM)
(This user has entered Living with ALS)

PaRay (Jan 7, 2009 7:53:39 PM)
(This user has moved to Myotonic Chat Group)

anna (Jan 7, 2009 7:55:25 PM)
(This user has entered Living with ALS)

anna (Jan 7, 2009 7:55:31 PM)
(This user has moved to Parents of Young Adults with DMD)

momma (Jan 7, 2009 8:00:55 PM)
(This user has entered Living with ALS)

momma (Jan 7, 2009 8:00:55 PM)
(This user has left DigiChat)

bette (Jan 7, 2009 8:01:05 PM)
(This user has entered Living with ALS)

bette (Jan 7, 2009 8:01:27 PM)
(This user has left DigiChat)

PaRay (Jan 7, 2009 8:06:47 PM)
(This user has entered Living with ALS)

PaRay (Jan 7, 2009 8:06:56 PM)
(This user has moved to Myotonic Chat Group)

Wes (Jan 7, 2009 8:09:17 PM)
(This user has entered Living with ALS)

Wes (Jan 7, 2009 8:09:17 PM)
(This user has moved to Myotonic Chat Group)

momma (Jan 7, 2009 8:12:12 PM)
(This user has entered Living with ALS)

momma (Jan 7, 2009 8:12:46 PM)
(This user has moved to Parents of Young Adults with DMD)

Jim_VA2 (Jan 7, 2009 8:19:55 PM)
(This user has entered Living with ALS)

eg (Jan 7, 2009 8:22:30 PM)
(This user has entered Living with ALS)

eg (Jan 7, 2009 8:22:47 PM)
Hi just passing through

eg (Jan 7, 2009 8:22:50 PM)
(This user has moved to Parents of Young Adults with DMD)

Jim_VA2 (Jan 7, 2009 8:31:14 PM)
(This user has moved to Parents of Young Adults with DMD)

barryc (Jan 7, 2009 8:31:54 PM)
(This user has entered Living with ALS)

PaRay (Jan 7, 2009 8:32:16 PM)
(This user has entered Living with ALS)

PaRay (Jan 7, 2009 8:32:29 PM)
Hey Barry

Jim_VA2 (Jan 7, 2009 8:32:33 PM)
(This user has entered Living with ALS)

barryc (Jan 7, 2009 8:32:38 PM)
hi ray....what happened to our MMMD chat???

PaRay (Jan 7, 2009 8:32:58 PM)
Guess we forgot to pay the bill.

Jim_VA2 (Jan 7, 2009 8:33:07 PM)
Hi

barryc (Jan 7, 2009 8:33:19 PM)
ha! Ray...

barryc (Jan 7, 2009 8:33:26 PM)
Hi Jim

PaRay (Jan 7, 2009 8:33:49 PM)
Barry switch to the Myotonic chat

PaRay (Jan 7, 2009 8:33:53 PM)
(This user has moved to Myotonic Chat Group)

barryc (Jan 7, 2009 8:33:59 PM)
(This user has left DigiChat)

barryc (Jan 7, 2009 8:35:15 PM)
(This user has entered Living with ALS)

Jim_VA2 (Jan 7, 2009 8:35:33 PM)
wb

barryc (Jan 7, 2009 8:36:02 PM)
what is going on? MMD chat has disappeared

barryc (Jan 7, 2009 8:36:39 PM)
Jim,,,, are you a regular on ALS chat? if so, where are the chatters?

PaRay (Jan 7, 2009 8:37:02 PM)
(This user has entered Living with ALS)

Jim_VA2 (Jan 7, 2009 8:37:15 PM)
don't know

Jim_VA2 (Jan 7, 2009 8:37:23 PM)
yes

barryc (Jan 7, 2009 8:37:49 PM)
uhm... well, hi JIM and EG

PaRay (Jan 7, 2009 8:38:23 PM)
I am back again Barry.

Jim_VA2 (Jan 7, 2009 8:38:56 PM)
wednesday is slow

barryc (Jan 7, 2009 8:39:31 PM)
Jim,,, if we ever get the MMD chat to work, Ray and I invite you to come visit...

Jim_VA2 (Jan 7, 2009 8:39:32 PM)
sometimes I

barryc (Jan 7, 2009 8:39:57 PM)
Ray, is a famous engineer from PA

Jim_VA2 (Jan 7, 2009 8:40:27 PM)
"go to DMD

PaRay (Jan 7, 2009 8:40:35 PM)
Just hanging around in the cool dam weather.

barryc (Jan 7, 2009 8:40:54 PM)
cool??? how about ulta freezing?

PaRay (Jan 7, 2009 8:41:26 PM)
Had a good day today. The ice had melted by noon.

Jim_VA2 (Jan 7, 2009 8:41:38 PM)
I am in FL

barryc (Jan 7, 2009 8:41:55 PM)
Ray...how did you bath Ann> did you use a shower wheelchair?

barryc (Jan 7, 2009 8:42:02 PM)
I am in FL too

PaRay (Jan 7, 2009 8:42:58 PM)
No we used Redibath wipes, The same as they use in the Hospital

PaRay (Jan 7, 2009 8:43:19 PM)
Heat them up in the microwave.

barryc (Jan 7, 2009 8:43:23 PM)
so you bathed Ann in her bed?

Jim_VA2 (Jan 7, 2009 8:43:30 PM)
Daytona Beach Shores here

barryc (Jan 7, 2009 8:43:42 PM)
Clearwater Beach here

PaRay (Jan 7, 2009 8:43:55 PM)
She sat on a chair in the bathroom. Same difference.

Jim_VA2 (Jan 7, 2009 8:44:18 PM)
nice

PaRay (Jan 7, 2009 8:44:26 PM)
Had waterless shampoo caps for her hair.

PaRay (Jan 7, 2009 8:44:40 PM)
I will send you the info.

barryc (Jan 7, 2009 8:45:01 PM)
Ray, do me a favor... send me info as you said... via email

PaRay (Jan 7, 2009 8:46:31 PM)
I bought them online. I don't think that they were available locally.

barryc (Jan 7, 2009 8:46:43 PM)
how did you get ann to the toilet? did she use a commode chair?

larrye (Jan 7, 2009 8:47:00 PM)
(This user has entered Living with ALS)

PaRay (Jan 7, 2009 8:47:19 PM)
Yep It was higher than a comode.

Jim_VA2 (Jan 7, 2009 8:47:24 PM)
hi

barryc (Jan 7, 2009 8:47:37 PM)
what was higher than a commode?

PaRay (Jan 7, 2009 8:47:53 PM)
The potty chair.

barryc (Jan 7, 2009 8:48:14 PM)
do you have info about potty chair, too?

PaRay (Jan 7, 2009 8:48:14 PM)
They are adjustable.

PaRay (Jan 7, 2009 8:48:36 PM)
I will find it.

larrye (Jan 7, 2009 8:48:56 PM)
hi there i just dropped in as a visitor as i dont have als i have sma2 so hello all

barryc (Jan 7, 2009 8:49:01 PM)
thanx again,,,, ray .... you are a veritable resource...

barryc (Jan 7, 2009 8:49:29 PM)
larry... ray and I are caregivers on MMD chat...but our chat is non operating today

snaped (Jan 7, 2009 8:49:44 PM)
(This user has entered Living with ALS)

PaRay (Jan 7, 2009 8:49:47 PM)
Join the crowd Larry. We just popped in and took over.

PaRay (Jan 7, 2009 8:49:57 PM)
Hey Snaped.

snaped (Jan 7, 2009 8:50:05 PM)
Fluff said it was down

larrye (Jan 7, 2009 8:50:07 PM)
ic then how are you both

barryc (Jan 7, 2009 8:50:07 PM)
hey... I did not take over... I snaped...

barryc (Jan 7, 2009 8:50:16 PM)
fluff is cool

barryc (Jan 7, 2009 8:50:40 PM)
ray... how did ann wipe her private parts on the potty chair?

larrye (Jan 7, 2009 8:51:14 PM)
myotonic chat room

PaRay (Jan 7, 2009 8:51:16 PM)
Very carefully!!!!!!!!!!!!!!!!!!!

snaped (Jan 7, 2009 8:51:24 PM)
Time change? Or is MMD chat down?

barryc (Jan 7, 2009 8:51:46 PM)
ok ok....bc

PaRay (Jan 7, 2009 8:52:06 PM)
MDA forgot to let us in. Happened one other time.

larrye (Jan 7, 2009 8:52:17 PM)
lol

barryc (Jan 7, 2009 8:52:23 PM)
MDA forgot? dementia

snaped (Jan 7, 2009 8:52:36 PM)
k,I have to fix everything here too

PaRay (Jan 7, 2009 8:52:52 PM)
Jim we just took over your ALS chat

larrye (Jan 7, 2009 8:53:02 PM)
(This user has moved to Wheelchair Gang)

Jim_VA2 (Jan 7, 2009 8:53:13 PM)
no problem

barryc (Jan 7, 2009 8:53:17 PM)
invasion of the MMD chatters...

snaped (Jan 7, 2009 8:53:30 PM)
im soory too

snaped (Jan 7, 2009 8:54:01 PM)
(This user has left DigiChat)

Jim_VA2 (Jan 7, 2009 8:54:02 PM)
I have someone here

PaRay (Jan 7, 2009 8:54:08 PM)
I will email them in the morning.

barryc (Jan 7, 2009 8:54:17 PM)
esta bien

barryc (Jan 7, 2009 8:55:09 PM)
well... I suppose we should kick off the chat line... thanx ALS dudes for putting up with me....

barryc (Jan 7, 2009 8:55:16 PM)
(This user has left DigiChat)

PaRay (Jan 7, 2009 8:56:09 PM)
Me too. Have a good week.

PaRay (Jan 7, 2009 8:56:13 PM)
(This user has left DigiChat)

Jim_VA2 (Jan 7, 2009 8:57:04 PM)
(This user has left DigiChat)

budmello (Jan 7, 2009 9:02:20 PM)
(This user has entered Living with ALS)

budmello (Jan 7, 2009 9:02:28 PM)
(This user has moved to Wheelchair Gang)