Living with ALS

Jim_VA (Jun 15, 2009 2:36:36 PM)
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pete46 (Jun 15, 2009 2:55:49 PM)
(This user has entered Living with ALS)

Granpido (Jun 15, 2009 3:18:43 PM)
(This user has entered Living with ALS)

Granpido (Jun 15, 2009 3:19:28 PM)
hiya Pete

pete46 (Jun 15, 2009 3:19:59 PM)
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Jim_VA (Jun 15, 2009 3:21:31 PM)
(This user has entered Living with ALS)

Granpido (Jun 15, 2009 3:22:52 PM)
Hello Jim...how U doing?

Jim_VA (Jun 15, 2009 3:24:32 PM)
hi I am fine ty how are you

Granpido (Jun 15, 2009 3:25:24 PM)
I be doin OK...Jane had me runnin errands this AM...hot in W TX today...

Granpido (Jun 15, 2009 3:25:45 PM)
maybe get to 103

Jim_VA (Jun 15, 2009 3:27:02 PM)
wow

Granpido (Jun 15, 2009 3:27:32 PM)
lucky our humidity is usually about 10%

Granpido (Jun 15, 2009 3:27:40 PM)
lol

Granpido (Jun 15, 2009 3:28:19 PM)
dry heat, not like t ha t stuff u get...

Jim_VA (Jun 15, 2009 3:30:10 PM)
I don't any heat

Granpido (Jun 15, 2009 3:30:56 PM)
like A/C plenty cool...

Jim_VA (Jun 15, 2009 3:31:54 PM)
but better than cold

Granpido (Jun 15, 2009 3:34:12 PM)
I gave Jim Ray your web site, your email addy, and told him about this chat...have not heard back yet...if i go pick him up tomorrow for MDA mtng., I'll let him know we talked again...

Granpido (Jun 15, 2009 3:36:11 PM)
i figure he could use a friend like you, who understands...i don't think he knows anybody else with ALS...

Jim_VA (Jun 15, 2009 3:37:05 PM)
I got caught in an Amarillo ice storm

Granpido (Jun 15, 2009 3:37:19 PM)
rut rho...

Granpido (Jun 15, 2009 3:37:42 PM)
couldn't get out of Dodg e?

Granpido (Jun 15, 2009 3:38:11 PM)
had to sleep in car?

Jim_VA (Jun 15, 2009 3:39:08 PM)
great I hope he uses it

Granpido (Jun 15, 2009 3:39:18 PM)
me too

Jim_VA (Jun 15, 2009 3:40:51 PM)
what a mess

Granpido (Jun 15, 2009 3:41:49 PM)
we W. Texans consider Amarillo the N. Pole...it'll be 55 her and 25 there...

Jim_VA (Jun 15, 2009 3:42:32 PM)
Tlol

Granpido (Jun 15, 2009 3:42:36 PM)
lol

Granpido (Jun 15, 2009 3:43:25 PM)
what were u doin up there?

Jim_VA (Jun 15, 2009 3:43:44 PM)
I had 4 wd

Granpido (Jun 15, 2009 3:43:52 PM)
Niceeeeeeee

Jim_VA (Jun 15, 2009 3:44:45 PM)
hunting in NM

Granpido (Jun 15, 2009 3:45:06 PM)
antelpoe or deer?

Granpido (Jun 15, 2009 3:45:14 PM)
antelope

Jim_VA (Jun 15, 2009 3:45:44 PM)
elk

Granpido (Jun 15, 2009 3:45:52 PM)
aha!

Granpido (Jun 15, 2009 3:46:00 PM)
did u get one?

Jim_VA (Jun 15, 2009 3:48:21 PM)
yep, had an Apache guide'

Granpido (Jun 15, 2009 3:49:26 PM)
they are magnificent creatures...

Granpido (Jun 15, 2009 3:50:00 PM)
over by Taos?

pete46 (Jun 15, 2009 3:51:21 PM)
(This user has entered Living with ALS)

pete46 (Jun 15, 2009 3:51:31 PM)
hello

Granpido (Jun 15, 2009 3:51:38 PM)
Hiya Pete

pete46 (Jun 15, 2009 3:52:06 PM)
Hi john, jim

Jim_VA (Jun 15, 2009 3:52:12 PM)
(This user has left DigiChat)

pete46 (Jun 15, 2009 3:52:25 PM)
did i scare jim away :)

Granpido (Jun 15, 2009 3:52:47 PM)
Jim has been tellin me about elk hunting in NM...lol

Granpido (Jun 15, 2009 3:53:21 PM)
he needs a new provider...

pete46 (Jun 15, 2009 3:53:39 PM)
sounds like fun :)

pete46 (Jun 15, 2009 3:54:09 PM)
jim just sent me some good info on w/c's

pete46 (Jun 15, 2009 3:54:17 PM)
very helpful

Granpido (Jun 15, 2009 3:54:27 PM)
??

jenniesue (Jun 15, 2009 3:55:00 PM)
(This user has entered Living with ALS)

pete46 (Jun 15, 2009 3:55:01 PM)
about the options available for power wheel chairs

Granpido (Jun 15, 2009 3:55:10 PM)
aha

pete46 (Jun 15, 2009 3:55:12 PM)
hi jennie

Granpido (Jun 15, 2009 3:55:24 PM)
hi jennie

jenniesue (Jun 15, 2009 3:55:43 PM)
HI EVERYONE

pete46 (Jun 15, 2009 3:56:16 PM)
hows everything jennie

jenniesue (Jun 15, 2009 3:57:22 PM)
everything is good with me. how about you?

pete46 (Jun 15, 2009 3:58:29 PM)
things are ok. do you have als?

jenniesue (Jun 15, 2009 3:59:04 PM)
yes, was diagnosed last august.

pete46 (Jun 15, 2009 3:59:38 PM)
same as me, dx'd last aug.

pete46 (Jun 15, 2009 4:00:06 PM)
i'm 63 from Massachusetts

jenniesue (Jun 15, 2009 4:00:52 PM)
59 from Missouri. how has it affected you

pete46 (Jun 15, 2009 4:01:20 PM)
it has affected my legs for the most part

pete46 (Jun 15, 2009 4:01:36 PM)
(This user has left DigiChat)

pete46 (Jun 15, 2009 4:01:53 PM)
(This user has entered Living with ALS)

Granpido (Jun 15, 2009 4:02:03 PM)
i'm gonna let u 2 talk while i go get sumthin to eat...hope to be bak in alittle while...

pete46 (Jun 15, 2009 4:02:26 PM)
i somehow got disconnected. but i'm back

Jim_VA (Jun 15, 2009 4:02:30 PM)
(This user has entered Living with ALS)

Granpido (Jun 15, 2009 4:02:47 PM)
my real name is John, Jennie...

pete46 (Jun 15, 2009 4:02:54 PM)
so far it affects my legs for the most part

pete46 (Jun 15, 2009 4:03:00 PM)
wb jim

pete46 (Jun 15, 2009 4:03:33 PM)
don't eat too mch john :)

Granpido (Jun 15, 2009 4:03:44 PM)
:-)

Granpido (Jun 15, 2009 4:03:53 PM)
(This user has left DigiChat)

jenniesue (Jun 15, 2009 4:04:10 PM)
i can no longer speak, use my right hand, and am rapidly losing strength in my left hand and bogh legs.

Jim_VA (Jun 15, 2009 4:04:13 PM)
(This user has left DigiChat)

jenniesue (Jun 15, 2009 4:04:46 PM)
but other than that, everything is good

pete46 (Jun 15, 2009 4:05:17 PM)
hopefully the progression will go slowly

Jim_VA (Jun 15, 2009 4:06:15 PM)
(This user has entered Living with ALS)

jenniesue (Jun 15, 2009 4:06:32 PM)
hope so, but whatever happens, happens. I just don't worry about iy.

pete46 (Jun 15, 2009 4:07:06 PM)
your welcome. i can still talk ok. My main problem is with my legs. I can no longer walk at all without a walker. fortunately my upperbody strength is still pretty good.

jenniesue (Jun 15, 2009 4:07:50 PM)
that's good. are yoi still able to eat

pete46 (Jun 15, 2009 4:08:34 PM)
yes, and i keep putting on weight becausse my daughter in law is such a good cook. :)

jenniesue (Jun 15, 2009 4:08:48 PM)
LOL

pete46 (Jun 15, 2009 4:08:54 PM)
lol can you eat

jenniesue (Jun 15, 2009 4:09:19 PM)
I keep losing weight!

pete46 (Jun 15, 2009 4:09:32 PM)
slowly i hope

pete46 (Jun 15, 2009 4:09:53 PM)
is your breathing ok?

Jim_VA (Jun 15, 2009 4:11:06 PM)
hi sue and pete

jenniesue (Jun 15, 2009 4:11:26 PM)
Actually, it is holding pretty steady now that i have lost 40lbs. i am having no problems breathing

pete46 (Jun 15, 2009 4:11:37 PM)
jim are you getting disconnected?

Jim_VA (Jun 15, 2009 4:12:01 PM)
yes

jenniesue (Jun 15, 2009 4:12:40 PM)
hi jim. i visited your website last night, lota of good inffo

pete46 (Jun 15, 2009 4:12:50 PM)
i'm glad your breathing is ok. my vital lung cap. had gone from 97 to 78 to 66 but has gone back to 86

Jim_VA (Jun 15, 2009 4:12:52 PM)
froze once

pete46 (Jun 15, 2009 4:13:19 PM)
jim ty for the info on the power wheelchair. did you get my email?

Jim_VA (Jun 15, 2009 4:14:14 PM)
ty it needs work

Jim_VA (Jun 15, 2009 4:14:28 PM)
no

jenniesue (Jun 15, 2009 4:15:11 PM)
i have to be away from the computer, but will be back asap

Jim_VA (Jun 15, 2009 4:15:28 PM)
k

pete46 (Jun 15, 2009 4:15:29 PM)
nice chatting

pete46 (Jun 15, 2009 4:16:39 PM)
jim i sent a reply via facebook. still a little unsure if i am using correctly. next time youre on facebook, check your inbox. see if its there

pete46 (Jun 15, 2009 4:18:10 PM)
sue was dx'd last aug same as me but affecting her differently

Jim_VA (Jun 15, 2009 4:20:36 PM)
ok I only did Farm Town with Beth today

pete46 (Jun 15, 2009 4:21:20 PM)
(This user has left DigiChat)

pete46 (Jun 15, 2009 4:21:53 PM)
(This user has entered Living with ALS)

pete46 (Jun 15, 2009 4:22:09 PM)
i got disconnected too

Jim_VA (Jun 15, 2009 4:22:26 PM)
wb'

pete46 (Jun 15, 2009 4:22:43 PM)
the worst part is that i don't know im disconnected unless i try to send message

pete46 (Jun 15, 2009 4:22:46 PM)
gttb

Jim_VA (Jun 15, 2009 4:23:29 PM)
yes

pete46 (Jun 15, 2009 4:25:01 PM)
i sent you an email thru facebook

pete46 (Jun 15, 2009 4:25:07 PM)
yesterday

pete46 (Jun 15, 2009 4:25:14 PM)
a reply to yours

Jim_VA (Jun 15, 2009 4:25:18 PM)
Beth and I play Farm

pete46 (Jun 15, 2009 4:25:46 PM)
how do you play?

Jim_VA (Jun 15, 2009 4:28:53 PM)
'you plant crops and harvest them

pete46 (Jun 15, 2009 4:29:18 PM)
do you have a big garden

Jim_VA (Jun 15, 2009 4:30:44 PM)
and you can add buildings

pete46 (Jun 15, 2009 4:31:22 PM)
(This user has left DigiChat)

pete46 (Jun 15, 2009 4:34:05 PM)
(This user has entered Living with ALS)

Jim_VA (Jun 15, 2009 4:34:21 PM)
yes as big as you can get

pete46 (Jun 15, 2009 4:34:36 PM)
im back :) disconnected again

Jim_VA (Jun 15, 2009 4:34:50 PM)
wb

pete46 (Jun 15, 2009 4:34:53 PM)
ty

pete46 (Jun 15, 2009 4:34:59 PM)
gtbb

Jim_VA (Jun 15, 2009 4:35:44 PM)
it is fun

pete46 (Jun 15, 2009 4:36:26 PM)
jenniesue are you still there?

pete46 (Jun 15, 2009 4:37:47 PM)
`

pete46 (Jun 15, 2009 4:38:22 PM)
if i enter a . im just checking that im still connected. :)

jenniesue (Jun 15, 2009 4:39:14 PM)
I'm back.

pete46 (Jun 15, 2009 4:39:40 PM)
welcome back do you prefer jennie or sue?

jenniesue (Jun 15, 2009 4:40:05 PM)
I go by Sue

pete46 (Jun 15, 2009 4:40:30 PM)
good, fewer key strokes. :)

jenniesue (Jun 15, 2009 4:40:36 PM)
yep

Jim_VA (Jun 15, 2009 4:40:53 PM)
`I had an invite to play poker with a guy in greece

pete46 (Jun 15, 2009 4:41:08 PM)
online?

pete46 (Jun 15, 2009 4:41:32 PM)
or are you going to Athens? :)

jenniesue (Jun 15, 2009 4:42:19 PM)
that's the nice thing about the web - you get to meet people from all over the world

Jim_VA (Jun 15, 2009 4:42:20 PM)
yes he has ALS

pete46 (Jun 15, 2009 4:42:59 PM)
does he come on the chat line?

pete46 (Jun 15, 2009 4:43:41 PM)
i was on with a fellow from india with als. he said the care isnt very good there

pete46 (Jun 15, 2009 4:43:52 PM)
i wonder how it is in greece

Jim_VA (Jun 15, 2009 4:44:13 PM)
NOT here

pete46 (Jun 15, 2009 4:44:50 PM)
is there other als chatlines that yoe know of?

Jim_VA (Jun 15, 2009 4:45:54 PM)
PLM and facebook

pete46 (Jun 15, 2009 4:46:21 PM)
where on facebook?

pete46 (Jun 15, 2009 4:48:37 PM)
sue, are you still walking?

Jim_VA (Jun 15, 2009 4:49:27 PM)
sigma chat lower right corner on facebook

pete46 (Jun 15, 2009 4:49:35 PM)
ty

pete46 (Jun 15, 2009 4:50:17 PM)
`

Jim_VA (Jun 15, 2009 4:50:54 PM)
only your friends are there

pete46 (Jun 15, 2009 4:51:18 PM)
oh

pete46 (Jun 15, 2009 4:53:07 PM)
`

Jim_VA (Jun 15, 2009 4:53:22 PM)
I am going there before the next chat

jenniesue (Jun 15, 2009 4:53:27 PM)
I am still walking but it is increasingly getting harder. I have a power chair on order; just waiting for all the paperwork to clear

pete46 (Jun 15, 2009 4:55:06 PM)
i am going for a wheel chair evaluation soon. i have to wait until im on medicare as ins doesnt cover that much. how long ago did you order yours.

Jim_VA (Jun 15, 2009 4:56:44 PM)
I think I have about 140 friends on facebook

pete46 (Jun 15, 2009 4:57:21 PM)
(This user has left DigiChat)

Jim_VA (Jun 15, 2009 5:00:06 PM)
are you getting the Quantum 600 chair

pete46 (Jun 15, 2009 5:00:18 PM)
(This user has entered Living with ALS)

pete46 (Jun 15, 2009 5:00:19 PM)
(This user has left DigiChat)

Jim_VA (Jun 15, 2009 5:10:24 PM)
it is time to go -- take care nice chatting with you do come back soon adios

Jim_VA (Jun 15, 2009 5:12:36 PM)
(This user has left DigiChat)

jenniesue (Jun 15, 2009 5:44:10 PM)
(This user has left DigiChat)