Living with ALS

pete46 (Jun 24, 2009 6:02:16 PM)
`

Jim_VA (Jun 24, 2009 6:06:41 PM)
(This user has entered Living with ALS)

pete46 (Jun 24, 2009 6:07:59 PM)
hi jim

Jim_VA (Jun 24, 2009 6:08:44 PM)
Hi Pete

pete46 (Jun 24, 2009 6:09:09 PM)
how are you tonite?

Jim_VA (Jun 24, 2009 6:10:26 PM)
How are you I am fine ty

pete46 (Jun 24, 2009 6:10:56 PM)
i'm fine it stopped raining finally

Jim_VA (Jun 24, 2009 6:11:52 PM)
that is good

pete46 (Jun 24, 2009 6:12:17 PM)
hows things in VA

Jim_VA (Jun 24, 2009 6:14:03 PM)
great here

pete46 (Jun 24, 2009 6:14:15 PM)
not too hot is it

Jim_VA (Jun 24, 2009 6:15:34 PM)
about 89''

pete46 (Jun 24, 2009 6:16:04 PM)
its still in the 60's here

Jim_VA (Jun 24, 2009 6:16:44 PM)
that was earlier

Jim_VA (Jun 24, 2009 6:17:04 PM)
'

Jim_VA (Jun 24, 2009 6:21:07 PM)
They were talking 70s by the end of the baseball game]

pete46 (Jun 24, 2009 6:21:32 PM)
the red sox are playing washington tonite

Jim_VA (Jun 24, 2009 6:23:34 PM)
yes my bro went last night

pete46 (Jun 24, 2009 6:24:03 PM)
the red sox beat them pretty good last night

Jim_VA (Jun 24, 2009 6:27:10 PM)
he found a way to get $5 seats

pete46 (Jun 24, 2009 6:27:26 PM)
wow

pete46 (Jun 24, 2009 6:28:47 PM)
when i was a kid you could get bleacher seats for the red sox games for 50 cents.

Jim_VA (Jun 24, 2009 6:30:02 PM)
lol

pete46 (Jun 24, 2009 6:30:11 PM)
lol

Jim_VA (Jun 24, 2009 6:35:09 PM)
they had about the same at grifith stadium

pete46 (Jun 24, 2009 6:35:37 PM)
those were the days.

Jim_VA (Jun 24, 2009 6:36:40 PM)
roast out there

pete46 (Jun 24, 2009 6:37:47 PM)
i used to go to the games and watch ted williams

Jim_VA (Jun 24, 2009 6:38:05 PM)
yes they wer

Jim_VA (Jun 24, 2009 6:40:27 PM)
he was special

pete46 (Jun 24, 2009 6:40:52 PM)
then he went and managed washington

Jim_VA (Jun 24, 2009 6:42:18 PM)
he served wwll

pete46 (Jun 24, 2009 6:42:54 PM)
now his head is frozen

Jim_VA (Jun 24, 2009 6:46:34 PM)
what do they call that cryo

pete46 (Jun 24, 2009 6:47:02 PM)
cryogenics i think

Jim_VA (Jun 24, 2009 6:49:39 PM)
yes liquid nitrogen

pete46 (Jun 24, 2009 6:50:11 PM)
his son had it done to him

Jim_VA (Jun 24, 2009 6:53:00 PM)
that is what they keep excess stem cells in

pete46 (Jun 24, 2009 6:54:33 PM)
i fell again today. my legs seem to get little worse every day

Jim_VA (Jun 24, 2009 6:57:30 PM)
(This user has left DigiChat)

Jim_VA2 (Jun 24, 2009 7:04:05 PM)
(This user has entered Living with ALS)

pete46 (Jun 24, 2009 7:04:19 PM)
wb

Jim_VA2 (Jun 24, 2009 7:07:13 PM)
ty

pete46 (Jun 24, 2009 7:07:37 PM)
get disconnected?

Jim_VA2 (Jun 24, 2009 7:10:32 PM)
sorry to hear about the fall

pete46 (Jun 24, 2009 7:12:14 PM)
i was getting up from my chair and my legs gave way

Jim_VA2 (Jun 24, 2009 7:15:25 PM)
any warning

pete46 (Jun 24, 2009 7:17:26 PM)
not really, i was hurrying to get the phone and i didn't straighten out my legs. i was expecting a phone call from someone about a van and my phone was on the other side of the bed

Jim_VA2 (Jun 24, 2009 7:23:06 PM)
when I fell there was no warning total surprise

pete46 (Jun 24, 2009 7:24:18 PM)
it was my fault for rushing. i know my legs are very weak and i need to take my time when getting out of a chair.

Jim_VA2 (Jun 24, 2009 7:26:35 PM)
it was like a broken spine

pete46 (Jun 24, 2009 7:26:50 PM)
wow

Jim_VA2 (Jun 24, 2009 7:30:12 PM)
my grandson got me out of the bath room once

pete46 (Jun 24, 2009 7:32:00 PM)
yeah, last week my son helped me out of the bathroom.

Jim_VA2 (Jun 24, 2009 7:33:12 PM)
not good

pete46 (Jun 24, 2009 7:33:45 PM)
another time i had to crawl out of the bathroom to my bed so i could get up

Jim_VA2 (Jun 24, 2009 7:38:05 PM)
wow bathrooms are dangerous places

pete46 (Jun 24, 2009 7:38:53 PM)
i guess. getting in and out of the tub or getting up from the toilet seat.

PaRay (Jun 24, 2009 7:40:13 PM)
(This user has entered Living with ALS)

PaRay (Jun 24, 2009 7:40:24 PM)
(This user has moved to Myotonic Chat Group)

wes (Jun 24, 2009 7:40:43 PM)
(This user has entered Living with ALS)

wes (Jun 24, 2009 7:40:45 PM)
(This user has moved to Myotonic Chat Group)

Jim_VA2 (Jun 24, 2009 7:41:42 PM)
yes all of the hard stuff

pete46 (Jun 24, 2009 7:42:16 PM)
i dont think i'll be able to use do things myself much longer

Jim_VA2 (Jun 24, 2009 7:43:52 PM)
to bang your head on

pete46 (Jun 24, 2009 7:44:10 PM)
dont want to do that

Jim_VA2 (Jun 24, 2009 7:45:17 PM)
no

Jim_VA2 (Jun 24, 2009 7:47:11 PM)
I couldn't breathe when I fell

pete46 (Jun 24, 2009 7:47:29 PM)
uh oh

pete46 (Jun 24, 2009 7:47:44 PM)
good thing your grandson was there

pete46 (Jun 24, 2009 7:48:07 PM)
how long ago was that

Jim_VA2 (Jun 24, 2009 7:50:51 PM)
I thought he was going to kill me 2001

Jim_VA2 (Jun 24, 2009 7:55:36 PM)
he grabbed around the chest from behind and carried me to the vent

pete46 (Jun 24, 2009 7:56:22 PM)
that was in 2001

Jim_VA2 (Jun 24, 2009 7:56:56 PM)
yes

pete46 (Jun 24, 2009 7:57:16 PM)
you didnt need the vent all the time then?

Jim_VA2 (Jun 24, 2009 7:58:58 PM)
not at first'

pete46 (Jun 24, 2009 8:01:26 PM)
but you needed to get to it when you fell because you stopped breathing?

pete46 (Jun 24, 2009 8:03:57 PM)
i changed my icon

Jim_VA2 (Jun 24, 2009 8:04:05 PM)
when I got in bed had to have it

pete46 (Jun 24, 2009 8:04:12 PM)
i see

Jim_VA2 (Jun 24, 2009 8:04:14 PM)
lol

pete46 (Jun 24, 2009 8:04:17 PM)
lol

pete46 (Jun 24, 2009 8:04:59 PM)
did you ever use non-invasive vent? is that the same as bi pap?

Jim_VA2 (Jun 24, 2009 8:06:39 PM)
I slept sitting up for 6 months

pete46 (Jun 24, 2009 8:08:17 PM)
without the vent?

Jim_VA2 (Jun 24, 2009 8:09:13 PM)
no 'I just stopped breathing

Jim_VA2 (Jun 24, 2009 8:11:53 PM)
sitting up sleeping was before/I quit breathing

pete46 (Jun 24, 2009 8:12:32 PM)
but was it because of breathing difficulties?

Jim_VA2 (Jun 24, 2009 8:16:30 PM)
Yes

pete46 (Jun 24, 2009 8:16:59 PM)
was that before you were dx'd?

Jim_VA2 (Jun 24, 2009 8:20:34 PM)
(This user has left DigiChat)

pete46 (Jun 24, 2009 8:24:47 PM)
`

Jim_VA (Jun 24, 2009 8:26:16 PM)
(This user has entered Living with ALS)

pete46 (Jun 24, 2009 8:26:26 PM)
wb

Jim_VA (Jun 24, 2009 8:26:40 PM)
(This user has left DigiChat)

Jim_VA2 (Jun 24, 2009 8:37:46 PM)
(This user has entered Living with ALS)

pete46 (Jun 24, 2009 8:37:57 PM)
wb jim

Jim_VA2 (Jun 24, 2009 8:38:49 PM)
y[

pete46 (Jun 24, 2009 8:39:12 PM)
disconnected?

Jim_VA2 (Jun 24, 2009 8:43:02 PM)
I think it is server

pete46 (Jun 24, 2009 8:43:33 PM)
oh

Jim_VA2 (Jun 24, 2009 8:57:12 PM)
(This user has left DigiChat)

pete46 (Jun 24, 2009 9:05:55 PM)
(This user has left DigiChat)