Living with ALS

Jim_VA (Jun 28, 2009 2:12:54 PM)
hi

Jim_VA2 (Jun 28, 2009 2:23:26 PM)
(This user has entered Living with ALS)

Jim_VA (Jun 28, 2009 2:24:41 PM)
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pete46 (Jun 28, 2009 3:04:33 PM)
(This user has entered Living with ALS)

pete46 (Jun 28, 2009 3:04:50 PM)
hi jim

Jim_VA2 (Jun 28, 2009 3:06:11 PM)
Hi

pete46 (Jun 28, 2009 3:06:25 PM)
how are you today?

Jim_VA2 (Jun 28, 2009 3:07:23 PM)
How are you I am fine ty

pete46 (Jun 28, 2009 3:07:53 PM)
im fine, quiet afternoon?

Jim_VA2 (Jun 28, 2009 3:08:28 PM)
yep

pete46 (Jun 28, 2009 3:08:56 PM)
evryones gone swinning. :)

pete46 (Jun 28, 2009 3:12:12 PM)
`

Jim_VA2 (Jun 28, 2009 3:12:54 PM)
I was going to tell you that I only know of two people with the same

Jim_VA2 (Jun 28, 2009 3:14:14 PM)
progression as me

pete46 (Jun 28, 2009 3:16:21 PM)
i think mine is more common - toes, ankles, calves, upper legs. almost like its working its way up.

Jim_VA2 (Jun 28, 2009 3:16:58 PM)
both are in west PA

pete46 (Jun 28, 2009 3:17:20 PM)
thats interesting.

Jim_VA2 (Jun 28, 2009 3:17:22 PM)
yes

pete46 (Jun 28, 2009 3:17:51 PM)
were they dx'd before or after you?

Jim_VA2 (Jun 28, 2009 3:19:20 PM)
I have contact with one yes they were

pete46 (Jun 28, 2009 3:21:57 PM)
how is he doing?

Jim_VA2 (Jun 28, 2009 3:22:23 PM)
she works for the University of Pitt medical center

pete46 (Jun 28, 2009 3:22:42 PM)
what kind of work?

Jim_VA2 (Jun 28, 2009 3:23:16 PM)
her hubby has it

pete46 (Jun 28, 2009 3:23:45 PM)
oh, do you know when he was dx'd

Jim_VA2 (Jun 28, 2009 3:25:36 PM)
she works for one of the doctors there not research'

Jim_VA2 (Jun 28, 2009 3:26:16 PM)
I will ask her

pete46 (Jun 28, 2009 3:26:35 PM)
is the hubby on a vent?

Jim_VA2 (Jun 28, 2009 3:27:01 PM)
yes

Jim_VA2 (Jun 28, 2009 3:28:58 PM)
she is scheduled for neck surgery tomorrow]

Jim_VA2 (Jun 28, 2009 3:32:23 PM)
It may be a while before I get an answer

pete46 (Jun 28, 2009 3:32:57 PM)
well i hope it turns out alright.

Jim_VA2 (Jun 28, 2009 3:35:21 PM)
she wrote a book yesterday

pete46 (Jun 28, 2009 3:35:38 PM)
what about

Jim_VA2 (Jun 28, 2009 3:37:31 PM)
someone ran into her car

pete46 (Jun 28, 2009 3:38:29 PM)
oh boy, and neck damage. Jim i have to go will be back in 20 min

Jim_VA2 (Jun 28, 2009 3:39:12 PM)
ok ttyl

pete46 (Jun 28, 2009 3:58:51 PM)
im back

Jim_VA2 (Jun 28, 2009 3:59:21 PM)
wb

pete46 (Jun 28, 2009 3:59:26 PM)
ty

Jim_VA2 (Jun 28, 2009 4:03:36 PM)
the crash ruptured a disk in her neck

pete46 (Jun 28, 2009 4:04:13 PM)
ouch, how long ago?

Jim_VA2 (Jun 28, 2009 4:05:46 PM)
may 26

pete46 (Jun 28, 2009 4:07:47 PM)
well i just hope all turns out well

pete46 (Jun 28, 2009 4:08:52 PM)
ive noticed a slight change in my breathing, it seems that the humidity seems to affect it

Jim_VA2 (Jun 28, 2009 4:09:10 PM)
she is living on vicodin

Jim_VA2 (Jun 28, 2009 4:09:47 PM)
huh

Jim_VA2 (Jun 28, 2009 4:12:23 PM)
I wonder if that could be pressure

pete46 (Jun 28, 2009 4:16:27 PM)
not sure

pete46 (Jun 28, 2009 4:16:51 PM)
whe must be in a lot of pain if shes on vicodin

Jim_VA2 (Jun 28, 2009 4:18:43 PM)
I think she does

Jim_VA2 (Jun 28, 2009 4:19:59 PM)
I have it too

pete46 (Jun 28, 2009 4:20:17 PM)
john hasnt been on the chat line since texas lost to lsu maybe hes in mourning? :)

pete46 (Jun 28, 2009 4:20:59 PM)
jim i have to go. Early dinner. Hope to be back on chat line tomorrow.

Jim_VA2 (Jun 28, 2009 4:21:14 PM)
lol

pete46 (Jun 28, 2009 4:21:20 PM)
lol

pete46 (Jun 28, 2009 4:21:29 PM)
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