Living with ALS

mommazooms (Jun 29, 2009 1:59:23 PM)
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mommazooms (Jun 29, 2009 2:00:58 PM)
(This user has entered Living with ALS)

Jim_VA (Jun 29, 2009 2:03:24 PM)
(This user has entered Living with ALS)

mommazooms (Jun 29, 2009 2:04:00 PM)
Hi Jim!

Jim_VA (Jun 29, 2009 2:04:53 PM)
Hi

Jim_VA (Jun 29, 2009 2:05:16 PM)
Beth

Jim_VA (Jun 29, 2009 2:07:34 PM)
are watching the PatientsLikeMe forum topic "CBS News reports a cure for Lou Gehrigs Disease?" which has 2 new posts.

mommazooms (Jun 29, 2009 2:08:34 PM)
No, I haven't seen it! I'm going there now...

Jim_VA (Jun 29, 2009 2:09:55 PM)
k

mommazooms (Jun 29, 2009 2:15:08 PM)
Just read the thread, seems like I'm watching the news at 630pm this week!

Jim_VA (Jun 29, 2009 2:16:08 PM)
lol

mommazooms (Jun 29, 2009 2:17:21 PM)
It'd be great if it's news we haven't heard before! If they rehash the SSDD, I'll be pissed...

Jim_VA (Jun 29, 2009 2:17:37 PM)
so will I

Jim_VA (Jun 29, 2009 2:19:22 PM)
yes they have talked about for 8 years

pete46 (Jun 29, 2009 2:22:14 PM)
(This user has entered Living with ALS)

pete46 (Jun 29, 2009 2:22:40 PM)
hello

mommazooms (Jun 29, 2009 2:22:52 PM)
Hi Pete! How are you?

pete46 (Jun 29, 2009 2:23:11 PM)
i'm ok Beth, how are you?

Jim_VA (Jun 29, 2009 2:23:30 PM)
Howdy

pete46 (Jun 29, 2009 2:23:36 PM)
hi Jim

mommazooms (Jun 29, 2009 2:23:45 PM)
Great, thanks :)

pete46 (Jun 29, 2009 2:23:54 PM)
glad to hear it

pete46 (Jun 29, 2009 2:24:55 PM)
i think i actually see a little sunshine out my window!

Jim_VA (Jun 29, 2009 2:25:07 PM)
new stuff

mommazooms (Jun 29, 2009 2:25:52 PM)
Yes, it's here! Sunshine! :D

pete46 (Jun 29, 2009 2:26:44 PM)
still looking for a van. theyre so expensive.

mommazooms (Jun 29, 2009 2:29:34 PM)
Yeah, most everything we need is! :(

pete46 (Jun 29, 2009 2:30:36 PM)
I've been looking at a couple of dealers, Rideaway and Rollx

pete46 (Jun 29, 2009 2:30:53 PM)
have you ever heard of either one?

mommazooms (Jun 29, 2009 2:31:46 PM)
No

Jim_VA (Jun 29, 2009 2:32:24 PM)
(This user has left DigiChat)

pete46 (Jun 29, 2009 2:33:14 PM)
i want ot get one as soon as possible. i figure i'm gonna need one eventually so i might as well get it while i'm still able to drive.

mommazooms (Jun 29, 2009 2:34:26 PM)
Then you can be chauffered around :)

mommazooms (Jun 29, 2009 2:34:59 PM)
After you can drive

pete46 (Jun 29, 2009 2:35:53 PM)
well i figure when i get my power w/c i can drive myself while my hands and arms are still strong enough.

mommazooms (Jun 29, 2009 2:36:01 PM)
Meant to say: After you can't drive

mommazooms (Jun 29, 2009 2:36:37 PM)
Yep

pete46 (Jun 29, 2009 2:37:05 PM)
Beth you seem to be typing exceptionally fast today!

mommazooms (Jun 29, 2009 2:38:37 PM)
Lol! Thanks... No more than usual, I think the sunshine has a positive effect on me!

pete46 (Jun 29, 2009 2:38:59 PM)
lol

pete46 (Jun 29, 2009 2:40:48 PM)
is life back to normal after the graduation?

pete46 (Jun 29, 2009 2:43:55 PM)
`

mommazooms (Jun 29, 2009 2:44:26 PM)
Yeah, it's weird having him driving himself everywhere! I had 17 years of having him ask for a ride to go anywhere during summer vacations, now he's like “See ya mom!”

mommazooms (Jun 29, 2009 2:45:02 PM)
and he's off on his own!

pete46 (Jun 29, 2009 2:45:36 PM)
is he going to college?

mommazooms (Jun 29, 2009 2:48:25 PM)
Sorry, had to talk to my mother...

pete46 (Jun 29, 2009 2:48:50 PM)
quite alright, i'm not going anywhere. :)

Jim_VA2 (Jun 29, 2009 2:50:30 PM)
(This user has entered Living with ALS)

pete46 (Jun 29, 2009 2:50:42 PM)
wb jim

mommazooms (Jun 29, 2009 2:50:48 PM)
Lol! Yes, he's been accepted to the Connecticut Culinary Institute in Hartford, where he will be taking the Advanced Italian course that will put him in Italy in October 2010 for three months!

mommazooms (Jun 29, 2009 2:51:14 PM)
WB!

pete46 (Jun 29, 2009 2:51:18 PM)
wow thats great

mommazooms (Jun 29, 2009 2:52:09 PM)
Thanks, he's looking forward to it!

Jim_VA2 (Jun 29, 2009 2:52:25 PM)
ty

pete46 (Jun 29, 2009 2:52:45 PM)
i'm sure you'll miss him

Jim_VA2 (Jun 29, 2009 2:54:52 PM)
RJ?

mommazooms (Jun 29, 2009 2:55:30 PM)
Yeah, but I'll have his txts & emails to keep me in touch! I told him to go, have fun!

mommazooms (Jun 29, 2009 2:55:54 PM)
Yes, RJ

pete46 (Jun 29, 2009 2:56:01 PM)
good for you

Jim_VA2 (Jun 29, 2009 2:56:15 PM)
yes

pete46 (Jun 29, 2009 2:57:14 PM)
Beth, does the humidity affect your breathing at all? Mine seems a bit more difficult when humid.

Jim_VA2 (Jun 29, 2009 2:57:14 PM)
is

mommazooms (Jun 29, 2009 2:57:24 PM)
I can't hold him back, he may never have this opportunity again!

mommazooms (Jun 29, 2009 2:59:46 PM)
Not really, it affects my movements - what little I can do on my own - and wipes me out!

Jim_VA2 (Jun 29, 2009 3:01:00 PM)
is Tom on twitter

mommazooms (Jun 29, 2009 3:01:46 PM)
Yeah

Jim_VA2 (Jun 29, 2009 3:04:27 PM)
he must like it

mommazooms (Jun 29, 2009 3:06:41 PM)
who must like what?

Jim_VA2 (Jun 29, 2009 3:08:34 PM)
Tom

Jim_VA2 (Jun 29, 2009 3:08:55 PM)
Twitter

mommazooms (Jun 29, 2009 3:10:07 PM)
Ah... I just tweeted him to say we're missing him in the chat room!

Jim_VA2 (Jun 29, 2009 3:10:58 PM)
great

Jim_VA2 (Jun 29, 2009 3:14:27 PM)
I probably should look at it but. ..

Jim_VA2 (Jun 29, 2009 3:15:17 PM)
(This user has left DigiChat)

mommazooms (Jun 29, 2009 3:16:40 PM)
I don't think his computer is cooperating with him today!

pete46 (Jun 29, 2009 3:16:59 PM)
i guess not

Jim_VA2 (Jun 29, 2009 3:17:45 PM)
(This user has entered Living with ALS)

mommazooms (Jun 29, 2009 3:18:22 PM)
(This user has left DigiChat)

mommazooms (Jun 29, 2009 3:20:14 PM)
(This user has entered Living with ALS)

mommazooms (Jun 29, 2009 3:20:38 PM)
...and I'm back!

pete46 (Jun 29, 2009 3:20:42 PM)
wb

Jim_VA2 (Jun 29, 2009 3:20:43 PM)
my server again

Jim_VA2 (Jun 29, 2009 3:21:06 PM)
wb

mommazooms (Jun 29, 2009 3:21:52 PM)
TY!

pete46 (Jun 29, 2009 3:21:54 PM)
i was having a real problem staying connected about a week ago

Jim_VA2 (Jun 29, 2009 3:23:59 PM)
my oldest son retired today

mommazooms (Jun 29, 2009 3:25:25 PM)
Wow!

pete46 (Jun 29, 2009 3:27:17 PM)
double wow! :)

Jim_VA2 (Jun 29, 2009 3:28:13 PM)
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pete46 (Jun 29, 2009 3:30:10 PM)
his son must have retired at a young age

Jim_VA (Jun 29, 2009 3:30:52 PM)
(This user has entered Living with ALS)

pete46 (Jun 29, 2009 3:32:17 PM)
wb jim

mommazooms (Jun 29, 2009 3:32:32 PM)
WB! How old is your son?

Jim_VA (Jun 29, 2009 3:33:38 PM)
ty 49

mommazooms (Jun 29, 2009 3:34:20 PM)
Ok, I'm depressed!

Jim_VA (Jun 29, 2009 3:34:55 PM)
lol

mommazooms (Jun 29, 2009 3:35:17 PM)
What did he do? Print money?

Jim_VA (Jun 29, 2009 3:37:02 PM)
he had 30 years with verizon

mommazooms (Jun 29, 2009 3:38:40 PM)
Wow! Must invested well...

mommazooms (Jun 29, 2009 3:39:25 PM)
Idk they've been around that long!

mommazooms (Jun 29, 2009 3:39:53 PM)
*have

Jim_VA (Jun 29, 2009 3:41:01 PM)
they offered him a 500k buyout

mommazooms (Jun 29, 2009 3:42:12 PM)
Sh!t! I want that offer!

Jim_VA (Jun 29, 2009 3:43:03 PM)
he is a qualified teacher

Jim_VA (Jun 29, 2009 3:44:17 PM)
history and special ed

mommazooms (Jun 29, 2009 3:45:14 PM)
& he worked at Verizon?

Jim_VA (Jun 29, 2009 3:47:04 PM)
engineer at verizon

mommazooms (Jun 29, 2009 3:48:47 PM)
So is he going to teach now?

Jim_VA (Jun 29, 2009 3:49:55 PM)
he has got to find another job

Jim_VA (Jun 29, 2009 3:53:34 PM)
yes he has two young girls

pete46 (Jun 29, 2009 3:55:34 PM)
i have a son in law that works at Verizon

pete46 (Jun 29, 2009 3:56:47 PM)
shower time, i'll be back in 20 minutes

Jim_VA (Jun 29, 2009 3:57:22 PM)
k

mommazooms (Jun 29, 2009 3:57:23 PM)
and a nice nest egg :)

mommazooms (Jun 29, 2009 3:58:28 PM)
20 minutes for a shower? Mine takes twice as long

Jim_VA (Jun 29, 2009 4:01:14 PM)
verizon paid for his college]

mommazooms (Jun 29, 2009 4:01:53 PM)
That's great!

Jim_VA (Jun 29, 2009 4:06:11 PM)
lol a 20 minute shower would prune me

mommazooms (Jun 29, 2009 4:10:14 PM)
I must be doing something wrong! It takes me, from the time I get my feet on to walk in the BR, until I'm dressed and walking out - 40-45 minutes...

Jim_VA (Jun 29, 2009 4:14:35 PM)
mine were about 10 minutes

pete46 (Jun 29, 2009 4:15:51 PM)
i'm back

mommazooms (Jun 29, 2009 4:15:53 PM)
Ralph would have me in & out in 20 minutes... My mother is 1) not as strong, 2) afraid she's going to break me & 3) slow. She doesn't scrub with the washcloth, she's so frigging gentle I wanna scream!

Jim_VA (Jun 29, 2009 4:17:18 PM)
lol

Jim_VA (Jun 29, 2009 4:19:31 PM)
I never used a washcloth

mommazooms (Jun 29, 2009 4:21:32 PM)
Really? What'd you use?

pete46 (Jun 29, 2009 4:21:56 PM)
i just use a bar of soap in my hand!

Jim_VA (Jun 29, 2009 4:23:29 PM)
you should see the shower at my hunt club

Jim_VA (Jun 29, 2009 4:23:52 PM)
hands

mommazooms (Jun 29, 2009 4:24:11 PM)
We always had washclothes... I like scrubbing all the sticky & sweat off me!

Jim_VA (Jun 29, 2009 4:26:05 PM)
it was an outshower

mommazooms (Jun 29, 2009 4:26:08 PM)
I want my skin to feel clean! I use Irish Spring

mommazooms (Jun 29, 2009 4:27:38 PM)
Do you guys use a rolling shower chair? I have a bench seat chair.

mommazooms (Jun 29, 2009 4:28:30 PM)
I'll be back in 20 minutes... Dinner time

Jim_VA (Jun 29, 2009 4:28:34 PM)
complete with snake skins

Jim_VA (Jun 29, 2009 4:28:43 PM)
k

pete46 (Jun 29, 2009 4:29:44 PM)
i used to enjoy showering outside

Jim_VA (Jun 29, 2009 4:32:38 PM)
we used during the winter

pete46 (Jun 29, 2009 4:34:25 PM)
was it heated

Jim_VA (Jun 29, 2009 4:35:53 PM)
we slept with door open

pete46 (Jun 29, 2009 4:36:12 PM)
bundled up?

Jim_VA (Jun 29, 2009 4:39:12 PM)
we had a portable heater in it

pete46 (Jun 29, 2009 4:39:44 PM)
that helps

Jim_VA (Jun 29, 2009 4:42:44 PM)
my sleeping bag had 5lbs of down

MARTHIKA (Jun 29, 2009 4:42:53 PM)
(This user has entered Living with ALS)

pete46 (Jun 29, 2009 4:42:58 PM)
you needed it

MARTHIKA (Jun 29, 2009 4:43:13 PM)
HELLO

MARTHIKA (Jun 29, 2009 4:43:18 PM)
ANYONE THERE

pete46 (Jun 29, 2009 4:43:20 PM)
hi marthika

MARTHIKA (Jun 29, 2009 4:43:27 PM)
HI PETE HOW ARE U

pete46 (Jun 29, 2009 4:43:29 PM)
yes two of us

Jim_VA (Jun 29, 2009 4:43:30 PM)
hi

MARTHIKA (Jun 29, 2009 4:43:35 PM)
HI JIM

pete46 (Jun 29, 2009 4:43:40 PM)
im good thanks and you

MARTHIKA (Jun 29, 2009 4:43:50 PM)
FINE THANKS

MARTHIKA (Jun 29, 2009 4:43:55 PM)
WHERE U AT?

pete46 (Jun 29, 2009 4:44:14 PM)
im in MAssachusetts how about you

MARTHIKA (Jun 29, 2009 4:44:22 PM)
NEW YORK

MARTHIKA (Jun 29, 2009 4:44:28 PM)
U HAVE MD

pete46 (Jun 29, 2009 4:44:47 PM)
no ALS how about you

MARTHIKA (Jun 29, 2009 4:45:03 PM)
I HAVE MUSCULAR DYSTROPHY

MARTHIKA (Jun 29, 2009 4:45:07 PM)
HOW OLD ARE U

pete46 (Jun 29, 2009 4:45:13 PM)
63

MARTHIKA (Jun 29, 2009 4:45:29 PM)
OHHH GOOD IAM 22

Jim_VA (Jun 29, 2009 4:45:30 PM)
arlington

pete46 (Jun 29, 2009 4:45:38 PM)
i was dx'd last aug

MARTHIKA (Jun 29, 2009 4:45:49 PM)
OHHH GOOD

MARTHIKA (Jun 29, 2009 4:46:03 PM)
SO WHAT U DO NOW?

pete46 (Jun 29, 2009 4:46:09 PM)
can barely walk now

MARTHIKA (Jun 29, 2009 4:46:18 PM)
OHHH OKAY

pete46 (Jun 29, 2009 4:47:00 PM)
how long have you had MD

MARTHIKA (Jun 29, 2009 4:47:14 PM)
I WANT TO GET A CAR BUT I DONT KNOW IF I WILL ABLE TO DRIVE

Jim_VA (Jun 29, 2009 4:47:28 PM)
Hi

MARTHIKA (Jun 29, 2009 4:47:39 PM)
ABOUT 12 YEARS I CAN BARELY WALK I USE A WHEELCHAIR

MARTHIKA (Jun 29, 2009 4:47:44 PM)
JIM HI

MARTHIKA (Jun 29, 2009 4:47:46 PM)
HOW ARE U

MARTHIKA (Jun 29, 2009 4:47:52 PM)
COME ENJOY US

MARTHIKA (Jun 29, 2009 4:47:53 PM)
LOL

pete46 (Jun 29, 2009 4:47:59 PM)
i am looking for a van with hand controls and a power ramp

MARTHIKA (Jun 29, 2009 4:48:17 PM)
WILL ME TOO BUT I DONT HAVE $ LOL IAM BROKE LOL

pete46 (Jun 29, 2009 4:48:26 PM)
lol

pete46 (Jun 29, 2009 4:48:34 PM)
i know the feeling

Jim_VA (Jun 29, 2009 4:48:48 PM)
great ty

MARTHIKA (Jun 29, 2009 4:49:04 PM)
I KNOW SUCKS! WILL IAM WORKING BUT IAM A SINGLE MOM SO SOMTIMES IS HARD

MARTHIKA (Jun 29, 2009 4:49:19 PM)
JIM WHERE U AT?

pete46 (Jun 29, 2009 4:49:41 PM)
how many kids

MARTHIKA (Jun 29, 2009 4:49:46 PM)
ONE

pete46 (Jun 29, 2009 4:49:52 PM)
how old

MARTHIKA (Jun 29, 2009 4:49:56 PM)
3 YEARS

MARTHIKA (Jun 29, 2009 4:50:27 PM)
WHAT ABOUT U

pete46 (Jun 29, 2009 4:50:30 PM)
she's still a baby. you've got your hands full. :)

MARTHIKA (Jun 29, 2009 4:50:41 PM)
LOL I GUESS

MARTHIKA (Jun 29, 2009 4:50:42 PM)
LOL

pete46 (Jun 29, 2009 4:51:02 PM)
im living with my sons family now. 4 grandkids, 4 to 15

MARTHIKA (Jun 29, 2009 4:51:12 PM)
WOW LOL

pete46 (Jun 29, 2009 4:51:16 PM)
lol

MARTHIKA (Jun 29, 2009 4:52:10 PM)
SO YOU COME TO THE CHAT ALLWAYS OR NO

pete46 (Jun 29, 2009 4:52:59 PM)
to the ALS chatline most of the time. This ends at 6 but theres another one tonite at 9

MARTHIKA (Jun 29, 2009 4:53:12 PM)
OOHH OKAY

MARTHIKA (Jun 29, 2009 4:53:22 PM)
I WILL TRY TO GO IN LATER

pete46 (Jun 29, 2009 4:53:32 PM)
hope to chat again

MARTHIKA (Jun 29, 2009 4:53:41 PM)
I HOPE

MARTHIKA (Jun 29, 2009 4:53:45 PM)
BUT NICE YO MEET U

MARTHIKA (Jun 29, 2009 4:53:50 PM)
MY NAME IS MARTHA MERA

MARTHIKA (Jun 29, 2009 4:53:56 PM)
=)

pete46 (Jun 29, 2009 4:53:59 PM)
pretty name

MARTHIKA (Jun 29, 2009 4:54:11 PM)
JEJEJE

MARTHIKA (Jun 29, 2009 4:54:13 PM)
THANK U

pete46 (Jun 29, 2009 4:54:24 PM)
yw

MARTHIKA (Jun 29, 2009 4:55:01 PM)
LOL

Jim_VA (Jun 29, 2009 4:55:12 PM)
I make most chats

MARTHIKA (Jun 29, 2009 4:55:26 PM)
JIM

MARTHIKA (Jun 29, 2009 4:55:30 PM)
WHAT'S UX

MARTHIKA (Jun 29, 2009 4:56:29 PM)
JIM IAM SENDING U A MSG

Jim_VA (Jun 29, 2009 4:56:45 PM)
but I am slow typing

MARTHIKA (Jun 29, 2009 4:56:56 PM)
OHH OKAY

pete46 (Jun 29, 2009 4:57:15 PM)
martha, you type real fast

pete46 (Jun 29, 2009 4:57:39 PM)
do you do a lot of texting?

MARTHIKA (Jun 29, 2009 4:57:54 PM)
JAJAJAJA

MARTHIKA (Jun 29, 2009 4:57:56 PM)
SORRY

MARTHIKA (Jun 29, 2009 4:58:08 PM)
WILL U KNOW YOUNG PEOPLE LOL

pete46 (Jun 29, 2009 4:58:18 PM)
lol

MARTHIKA (Jun 29, 2009 4:58:47 PM)
LOL

pete46 (Jun 29, 2009 4:59:32 PM)
well its 6 so i'm leaving, martha nice meeting you and hope to chat again, bye jim

MARTHIKA (Jun 29, 2009 4:59:50 PM)
OKAY TAKE CARE

pete46 (Jun 29, 2009 4:59:53 PM)
(This user has left DigiChat)

MARTHIKA (Jun 29, 2009 4:59:54 PM)
I HOPE TOO

MARTHIKA (Jun 29, 2009 5:01:03 PM)
(This user has left DigiChat)

Jim_VA (Jun 29, 2009 5:02:39 PM)
(This user has left DigiChat)

mommazooms (Jun 29, 2009 5:03:46 PM)
(This user has left DigiChat)