Living with ALS

Jim_VA (Oct 26, 2009 2:36:39 PM)
(This user has entered Living with ALS)

mommazooms (Oct 26, 2009 2:37:25 PM)
Hi Jim! How are you? I'm well, thanks...

Jim_VA (Oct 26, 2009 2:37:57 PM)
'

mommazooms (Oct 26, 2009 2:38:31 PM)
Woke up at 615a to 34 degrees :)

Jim_VA (Oct 26, 2009 2:39:05 PM)
'I am fine ty]

Jim_VA (Oct 26, 2009 2:40:19 PM)
upper 80's here

Jim_VA (Oct 26, 2009 2:40:39 PM)
hot

mommazooms (Oct 26, 2009 2:41:54 PM)
I'm sure! How are you feeling in that weather?

Jim_VA (Oct 26, 2009 2:45:33 PM)
I don't go out when it's hot

mommazooms (Oct 26, 2009 2:46:44 PM)
Lol! I wouldn't either! Do you have a/c in the house?

Jim_VA (Oct 26, 2009 2:48:49 PM)
yes

mommazooms (Oct 26, 2009 2:51:29 PM)
How weird is it having Christmas in the heat? I'm guessing you've celebrated in the snow before ALS...

Jim_VA (Oct 26, 2009 2:53:08 PM)
this heat is unusual

Jim_VA (Oct 26, 2009 2:54:29 PM)
yes kind of strange

pete46 (Oct 26, 2009 2:55:03 PM)
(This user has entered Living with ALS)

pete46 (Oct 26, 2009 2:55:21 PM)
hi beth, jim

pete46 (Oct 26, 2009 2:55:32 PM)
how is everybody?

mommazooms (Oct 26, 2009 2:55:39 PM)
Hi Pete! How are you? I'm well, thanks...

pete46 (Oct 26, 2009 2:56:05 PM)
i got my power chair last week

Jim_VA (Oct 26, 2009 2:56:27 PM)
we always wanted snow

mommazooms (Oct 26, 2009 2:56:38 PM)
YAY! Congratulations!

mommazooms (Oct 26, 2009 2:57:14 PM)
How are you doing with it?

pete46 (Oct 26, 2009 2:57:47 PM)
getting used to it

Jim_VA (Oct 26, 2009 2:58:00 PM)
Hi

pete46 (Oct 26, 2009 2:58:17 PM)
haven't been able to get it outside yet, still need a small ramp for front door step

Jim_VA (Oct 26, 2009 2:58:36 PM)
Pete

pete46 (Oct 26, 2009 2:58:52 PM)
hppefully that will be all set soon as the van is coming maybe wed or thur

pete46 (Oct 26, 2009 2:59:01 PM)
whats new jim

mommazooms (Oct 26, 2009 2:59:11 PM)
Don't you feel more independent? I did when I got my first one in May ’96 :)

pete46 (Oct 26, 2009 2:59:34 PM)
i think once i am able to get outside i will

pete46 (Oct 26, 2009 2:59:54 PM)
right now i can only use it for what i used the manual chair for

pete46 (Oct 26, 2009 3:00:34 PM)
once i am driving in the van i am sure i will feel a lot more independent

Jim_VA (Oct 26, 2009 3:00:37 PM)
5

pete46 (Oct 26, 2009 3:00:57 PM)
i dont think dasher works on the chat line

mommazooms (Oct 26, 2009 3:01:14 PM)
Is your son-in-law handy? Could he make a ramp?

pete46 (Oct 26, 2009 3:01:43 PM)
yes i think he will just needs to find the time hes awfully busy

pete46 (Oct 26, 2009 3:02:28 PM)
well the dreaded yankees are in the world series again

mommazooms (Oct 26, 2009 3:02:40 PM)
It doesn't for me! I have to cut/paste what I write into the chat box :(

pete46 (Oct 26, 2009 3:03:00 PM)
whats up with you're giants beth?

mommazooms (Oct 26, 2009 3:03:18 PM)
Go Phillies!

pete46 (Oct 26, 2009 3:03:42 PM)
i got a feeling washington is going to play well tonite jim. what do you think>

mommazooms (Oct 26, 2009 3:04:03 PM)
I have no idea! I don't know what's going on!

Jim_VA (Oct 26, 2009 3:04:18 PM)
amen

pete46 (Oct 26, 2009 3:04:40 PM)
hows the weather in fla jim?

pete46 (Oct 26, 2009 3:04:45 PM)
hot down there

Jim_VA (Oct 26, 2009 3:06:31 PM)
i think that they are going for Tebow

pete46 (Oct 26, 2009 3:06:46 PM)
xould be

Jim_VA (Oct 26, 2009 3:07:46 PM)
unusually hot \

pete46 (Oct 26, 2009 3:08:30 PM)
we've had a couple of real nice days yesterday and today

Jim_VA (Oct 26, 2009 3:08:53 PM)
upper 80's

pete46 (Oct 26, 2009 3:09:11 PM)
what is it usually?

Jim_VA (Oct 26, 2009 3:09:31 PM)
that is good

Jim_VA (Oct 26, 2009 3:10:40 PM)
upper 70's

pete46 (Oct 26, 2009 3:11:13 PM)
i'm not a big hot weather fan myself

mommazooms (Oct 26, 2009 3:12:43 PM)
Did you guys get your flu shots? Have we talked about this yet? I got mine, now I'm waiting for an H1N1 shot

Jim_VA (Oct 26, 2009 3:13:50 PM)
sorry about wednesday evening

pete46 (Oct 26, 2009 3:14:01 PM)
i got my regular one. I'm waiting for h1n1 also. I think they put me on a list at the clinic

pete46 (Oct 26, 2009 3:14:24 PM)
what happened wednesday?

Jim_VA (Oct 26, 2009 3:14:50 PM)
no h1n1

Jim_VA (Oct 26, 2009 3:17:22 PM)
i could not respond

mommazooms (Oct 26, 2009 3:17:44 PM)
My mother works serving lunch at the local elementary school, she said they have a confirmed case of H1N1!

pete46 (Oct 26, 2009 3:17:45 PM)
i went to the clinic friday. my fvc when i am laying on my back keeps going up! it has been higher than when i am sitting and has gone from 38 to 80 to 82 to 89 ?

pete46 (Oct 26, 2009 3:18:30 PM)
sorry it started at 78

mommazooms (Oct 26, 2009 3:18:37 PM)
Wow!

pete46 (Oct 26, 2009 3:18:38 PM)
not 38

pete46 (Oct 26, 2009 3:18:59 PM)
have no idea why and they dont either

Jim_VA (Oct 26, 2009 3:19:51 PM)
i had swiner in the 50's

pete46 (Oct 26, 2009 3:20:38 PM)
whats swiner? a strain of the flu? i dont remember it

pete46 (Oct 26, 2009 3:22:14 PM)
44

Jim_VA (Oct 26, 2009 3:22:26 PM)
swine

pete46 (Oct 26, 2009 3:23:31 PM)
sorry, i typed 44 when i meant to hit 44 on tv remote. :)

pete46 (Oct 26, 2009 3:23:49 PM)
not too good at multi tasking :)

Jim_VA (Oct 26, 2009 3:24:00 PM)
lol

pete46 (Oct 26, 2009 3:24:05 PM)
lol

pete46 (Oct 26, 2009 3:24:41 PM)
i changed the channel to 'According to jim' on tbs

pete46 (Oct 26, 2009 3:24:53 PM)
i have never seen it before

mommazooms (Oct 26, 2009 3:25:40 PM)
That's a funny show!

Jim_VA (Oct 26, 2009 3:29:23 PM)
hey I got some pictures of a 55 nomad

pete46 (Oct 26, 2009 3:30:00 PM)
oh ya, where'd you get them?

Jim_VA (Oct 26, 2009 3:31:41 PM)
it is a tow car

pete46 (Oct 26, 2009 3:32:28 PM)
?

pete46 (Oct 26, 2009 3:32:41 PM)
i thought it was like a station wagon

Jim_VA (Oct 26, 2009 3:32:51 PM)
a friend built it

Jim_VA (Oct 26, 2009 3:33:10 PM)
yes

pete46 (Oct 26, 2009 3:34:43 PM)
they were sweeeet!

Jim_VA (Oct 26, 2009 3:35:04 PM)
it has 540 hp hemi

pete46 (Oct 26, 2009 3:35:28 PM)
MUSCLE

mommazooms (Oct 26, 2009 3:38:26 PM)
ol

mommazooms (Oct 26, 2009 3:38:41 PM)
lol*

Jim_VA (Oct 26, 2009 3:40:00 PM)
he tows an enclosed 3 car trailer

pete46 (Oct 26, 2009 3:40:58 PM)
so he needs the muscle

Jim_VA (Oct 26, 2009 3:42:45 PM)
it has disk brakes

Jim_VA (Oct 26, 2009 3:45:09 PM)
front and rear\

pete46 (Oct 26, 2009 3:45:59 PM)
nice

Jim_VA (Oct 26, 2009 3:48:03 PM)
it is really nice

Jim_VA (Oct 26, 2009 3:51:21 PM)
i will put the pictures on facebook one day this week

pete46 (Oct 26, 2009 3:51:41 PM)
i look forward to seeing them

mommazooms (Oct 26, 2009 3:52:16 PM)
yeah!

Jim_VA (Oct 26, 2009 4:00:29 PM)
Johns Hopkins is trying stem cells on rats with als related breathing problems'

pete46 (Oct 26, 2009 4:03:09 PM)
hopefully they will get some good results

mommazooms (Oct 26, 2009 4:07:34 PM)
Hey guys, I have to go have dinner, meatloaf and I won't be back tonight. Ralph has pics he has to work on. I'll see you on Facebook! Take care...

pete46 (Oct 26, 2009 4:08:00 PM)
see you beth

pete46 (Oct 26, 2009 4:08:19 PM)
enjoy the meatloaf

mommazooms (Oct 26, 2009 4:08:44 PM)
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Jim_VA (Oct 26, 2009 4:08:52 PM)
yes I may make an appointment when I get back

pete46 (Oct 26, 2009 4:09:09 PM)
good idea

Jim_VA (Oct 26, 2009 4:12:59 PM)
the guy doing the experiments is my neuro there

Jim_VA (Oct 26, 2009 4:13:41 PM)
Maragakis

pete46 (Oct 26, 2009 4:13:46 PM)
so you got a good connection

Jim_VA (Oct 26, 2009 4:15:25 PM)
I hope

Jim_VA (Oct 26, 2009 4:18:48 PM)
i have been to 6 neuros

pete46 (Oct 26, 2009 4:19:07 PM)
ive been to 3 myself

Jim_VA (Oct 26, 2009 4:19:56 PM)
one is g

Jim_VA (Oct 26, 2009 4:20:52 PM)
from iran

pete46 (Oct 26, 2009 4:21:40 PM)
jim i have to go eat be back in 20 min

Jim_VA (Oct 26, 2009 4:22:02 PM)
k

pete46 (Oct 26, 2009 4:39:45 PM)
i'm back

pete46 (Oct 26, 2009 4:40:08 PM)
stuffed salmon and fresh green beans wilt roasted almond slices

pete46 (Oct 26, 2009 4:40:19 PM)
i love salmon

Jim_VA (Oct 26, 2009 4:40:23 PM)
(This user has left DigiChat)

pete46 (Oct 26, 2009 4:53:37 PM)
(This user has left DigiChat)