Living with ALS

pete46 (Nov 4, 2009 5:59:38 PM)
(This user has entered Living with ALS)

pete46 (Nov 4, 2009 6:00:58 PM)
hi paper

paper (Nov 4, 2009 6:01:10 PM)
(This user has left DigiChat)

Jim_VA (Nov 4, 2009 6:09:22 PM)
(This user has entered Living with ALS)

pete46 (Nov 4, 2009 6:09:45 PM)
hi jim

pete46 (Nov 4, 2009 6:12:11 PM)
'

Jim_VA (Nov 4, 2009 6:14:17 PM)
Hi Pete how are you

pete46 (Nov 4, 2009 6:14:41 PM)
i'm good jim how about you

Jim_VA (Nov 4, 2009 6:15:27 PM)
I am fine ty'

pete46 (Nov 4, 2009 6:15:43 PM)
are you ready for the game 6?

pete46 (Nov 4, 2009 6:15:52 PM)
come on pedro

Jim_VA (Nov 4, 2009 6:16:23 PM)
yes

pete46 (Nov 4, 2009 6:16:41 PM)
i'd like to see a game 7

Jim_VA (Nov 4, 2009 6:18:05 PM)
that would be nice

pete46 (Nov 4, 2009 6:18:46 PM)
i think that my home health care is stopping. that means no more home health aide

Jim_VA (Nov 4, 2009 6:20:49 PM)
ouch

pete46 (Nov 4, 2009 6:21:10 PM)
not sure what i'm gonna do

pete46 (Nov 4, 2009 6:21:24 PM)
i need my showers :)

Jim_VA (Nov 4, 2009 6:21:37 PM)
\

Jim_VA (Nov 4, 2009 6:23:09 PM)
I have never had one

pete46 (Nov 4, 2009 6:23:25 PM)
family take care of you?

Jim_VA (Nov 4, 2009 6:25:01 PM)
yes wife and nurses

pete46 (Nov 4, 2009 6:25:17 PM)
private nurses?

Jim_VA (Nov 4, 2009 6:26:07 PM)
boys sometimes

Jim_VA (Nov 4, 2009 6:26:17 PM)
yes

Jim_VA (Nov 4, 2009 6:27:23 PM)
private

pete46 (Nov 4, 2009 6:27:27 PM)
ins pay

Jim_VA (Nov 4, 2009 6:27:43 PM)
no

pete46 (Nov 4, 2009 6:27:52 PM)
expensive?

Jim_VA (Nov 4, 2009 6:29:12 PM)
18-25 hour

pete46 (Nov 4, 2009 6:31:20 PM)
still have them?

Jim_VA (Nov 4, 2009 6:31:20 PM)
got 3 retired rn's here

pete46 (Nov 4, 2009 6:31:40 PM)
do you need them because you're vented?

Jim_VA (Nov 4, 2009 6:32:33 PM)
3 days a week

pete46 (Nov 4, 2009 6:32:57 PM)
what do they do?

Jim_VA (Nov 4, 2009 6:38:26 PM)
no anyone can learn trach care

pete46 (Nov 4, 2009 6:44:23 PM)
so why rn's

Jim_VA (Nov 4, 2009 6:44:36 PM)
they baby sit

pete46 (Nov 4, 2009 6:45:03 PM)
expensive baby sitters :)

Jim_VA (Nov 4, 2009 6:47:18 PM)
they know what to do in an emergency

pete46 (Nov 4, 2009 6:47:29 PM)
i see

pete46 (Nov 4, 2009 6:47:50 PM)
i think i'm going to bank my voice

pete46 (Nov 4, 2009 6:48:39 PM)
jim west suggested it and gave me a link to get the software

Jim_VA (Nov 4, 2009 6:50:54 PM)
good idea

pete46 (Nov 4, 2009 6:51:33 PM)
do you use dynovox or an equivalent

Jim_VA (Nov 4, 2009 6:56:17 PM)
no bul i have been thinking about it

pete46 (Nov 4, 2009 6:57:23 PM)
are you still able to talk?

Jim_VA (Nov 4, 2009 6:58:55 PM)
i need an eye-gaze system

Jim_VA (Nov 4, 2009 7:00:36 PM)
no talkie no walkie]

pete46 (Nov 4, 2009 7:01:38 PM)
lol

pete46 (Nov 4, 2009 7:02:03 PM)
no walkie but still talkie for me

Jim_VA (Nov 4, 2009 7:02:25 PM)
we use a letter board

Jim_VA (Nov 4, 2009 7:02:35 PM)
lol

pete46 (Nov 4, 2009 7:02:43 PM)
jim said i should do it while my voice is still relatively strong

pete46 (Nov 4, 2009 7:02:58 PM)
not fmailiar with letter board

Jim_VA (Nov 4, 2009 7:03:11 PM)
yes

Jim_VA (Nov 4, 2009 7:05:37 PM)
it was given to me by a hospital

pete46 (Nov 4, 2009 7:05:55 PM)
that was nice

Jim_VA (Nov 4, 2009 7:06:57 PM)
yes

Jim_VA (Nov 4, 2009 7:07:41 PM)
funny thing

Jim_VA (Nov 4, 2009 7:09:02 PM)
when i took it in a

Jim_VA (Nov 4, 2009 7:18:07 PM)
GA hospital the doctor said that he had never seen one and he asked permission to copy the info so he could order some

Jim_VA (Nov 4, 2009 7:18:44 PM)
lol

Jim_VA (Nov 4, 2009 7:20:03 PM)
they were very nice

pete46 (Nov 4, 2009 7:22:26 PM)
lol

paper (Nov 4, 2009 7:24:36 PM)
(This user has entered Living with ALS)

paper (Nov 4, 2009 7:24:45 PM)
hi guys

pete46 (Nov 4, 2009 7:24:53 PM)
hi paper

paper (Nov 4, 2009 7:26:03 PM)
Vote for Abbey for Gap Kid! MDA's National Goodwill Ambassador, who has CMT, needs votes in Gap's online contest

Jim_VA (Nov 4, 2009 7:26:24 PM)
one of the nurses had a brother with ALS

pete46 (Nov 4, 2009 7:26:38 PM)
at ga hospital?

paper (Nov 4, 2009 7:26:38 PM)
Visit www.gap.com/castingcall and enter Abbey's ID number, 54938491.

paper (Nov 4, 2009 7:27:32 PM)
little abbey needs our help click on the url or copy and paste it and vote for her to win

Jim_VA (Nov 4, 2009 7:28:14 PM)
hi paper

paper (Nov 4, 2009 7:28:20 PM)
hey

paper (Nov 4, 2009 7:28:40 PM)
http://www.mda.org/publications/Quest/extra/Oct09/abbey-gap-kid.html

Jim_VA (Nov 4, 2009 7:29:17 PM)
will do \

paper (Nov 4, 2009 7:29:33 PM)
this is the quest url all about abbey you can click on the url from that page also

pete46 (Nov 4, 2009 7:29:34 PM)
i just voted for abbey U.

paper (Nov 4, 2009 7:29:41 PM)
yaaaaaa

paper (Nov 4, 2009 7:29:51 PM)
you can vote once a day

pete46 (Nov 4, 2009 7:30:16 PM)
what is the contest all about

paper (Nov 4, 2009 7:30:19 PM)
lets make her a winner email all your friends so they can vote too

paper (Nov 4, 2009 7:30:40 PM)
she will become the national spokes kid for the gap

paper (Nov 4, 2009 7:30:59 PM)
you can read all about it in quest online

paper (Nov 4, 2009 7:31:13 PM)
i put up the web addy for her quest page

pete46 (Nov 4, 2009 7:31:45 PM)
2 - 0 yankees :(

Jim_VA (Nov 4, 2009 7:33:19 PM)
carp

paper (Nov 4, 2009 7:36:12 PM)
when is the world serries over

paper (Nov 4, 2009 7:36:36 PM)
put it this way i want my reg shows back on

pete46 (Nov 4, 2009 7:36:43 PM)
when one of the teams wins 4 games

paper (Nov 4, 2009 7:36:55 PM)
when will that be

paper (Nov 4, 2009 7:37:07 PM)
is any of them close

pete46 (Nov 4, 2009 7:37:15 PM)
if the yankees win tonite it will be over else one more game

paper (Nov 4, 2009 7:37:22 PM)
gesh

paper (Nov 4, 2009 7:37:29 PM)
i hope they win

pete46 (Nov 4, 2009 7:37:33 PM)
boo

paper (Nov 4, 2009 7:41:37 PM)
(This user has moved to Myotonic Chat Group)

pete46 (Nov 4, 2009 7:47:53 PM)
2 - 1 yankees

Jim_VA (Nov 4, 2009 7:51:36 PM)
there is life in mudville

pete46 (Nov 4, 2009 7:51:44 PM)
lol

Jim_VA (Nov 4, 2009 7:52:04 PM)
lol

pete46 (Nov 4, 2009 7:52:29 PM)
pedro doesnt look too sharp

Jim_VA (Nov 4, 2009 7:54:37 PM)
my wife has taken over the tv

pete46 (Nov 4, 2009 7:55:36 PM)
need another tv :)

pete46 (Nov 4, 2009 7:56:08 PM)
shes not a base ball fan?

Jim_VA (Nov 4, 2009 7:56:34 PM)
got 5

Jim_VA (Nov 4, 2009 7:56:59 PM)
no

pete46 (Nov 4, 2009 7:57:26 PM)
base loaded for yankees with one out

Jim_VA (Nov 4, 2009 7:58:12 PM)
dp

pete46 (Nov 4, 2009 7:58:23 PM)
i hope

pete46 (Nov 4, 2009 7:58:27 PM)
a rod is up

Jim_VA (Nov 4, 2009 7:59:03 PM)
oh my

Jim_VA (Nov 4, 2009 7:59:23 PM)
k\

pete46 (Nov 4, 2009 8:00:48 PM)
struck him out

Jim_VA (Nov 4, 2009 8:02:01 PM)
k great

pete46 (Nov 4, 2009 8:04:09 PM)
4 - 1

pete46 (Nov 4, 2009 8:04:24 PM)
im gonna switch to the celtics

pete46 (Nov 4, 2009 8:04:27 PM)
lol

Jim_VA (Nov 4, 2009 8:05:21 PM)
lol

pete46 (Nov 4, 2009 8:27:42 PM)
even the celtics are losing

Jim_VA (Nov 4, 2009 8:30:07 PM)
that is surprising

pete46 (Nov 4, 2009 8:31:26 PM)
its still the third quater

pete46 (Nov 4, 2009 8:32:37 PM)
there playing minn your old state

Jim_VA (Nov 4, 2009 8:34:00 PM)
plenty of time

pete46 (Nov 4, 2009 8:34:19 PM)
yeah

pete46 (Nov 4, 2009 8:55:02 PM)
did you ever get a hold of the chatmaster?

Jim_VA (Nov 4, 2009 8:57:38 PM)
sent the letter she take care of it

pete46 (Nov 4, 2009 8:58:28 PM)
celtics have tied it up but 7-1 yankees

pete46 (Nov 4, 2009 8:59:09 PM)
hedicki matsui drove in 6 of the 7 runs

Jim_VA (Nov 4, 2009 9:00:01 PM)
I do not expect a response

Jim_VA (Nov 4, 2009 9:00:26 PM)
wow

Jim_VA (Nov 4, 2009 9:01:14 PM)
that is over

Jim_VA (Nov 4, 2009 9:02:37 PM)
celtics?

pete46 (Nov 4, 2009 9:02:54 PM)
down one

pete46 (Nov 4, 2009 9:03:59 PM)
two nights in a row they look a little tirred

Jim_VA (Nov 4, 2009 9:04:19 PM)
it is PP time

Jim_VA (Nov 4, 2009 9:04:49 PM)
lol

pete46 (Nov 4, 2009 9:04:57 PM)
lol

Jim_VA (Nov 4, 2009 9:05:59 PM)
he can really play

Jim_VA (Nov 4, 2009 9:10:56 PM)
It is time to go take care ttyl gnight

pete46 (Nov 4, 2009 9:11:51 PM)
bye jim

pete46 (Nov 4, 2009 9:12:01 PM)
(This user has left DigiChat)

Jim_VA (Nov 4, 2009 9:13:26 PM)
(This user has left DigiChat)