Living with ALS

Jim_VA (Jan 17, 2010 3:12:44 PM)
(This user has entered Living with ALS)

pete46 (Jan 17, 2010 3:12:54 PM)
hi jim

Jim_VA (Jan 17, 2010 3:15:50 PM)
hi pete

pete46 (Jan 17, 2010 3:16:05 PM)
how are you?

Jim_VA (Jan 17, 2010 3:21:05 PM)
i am great ty are you]

pete46 (Jan 17, 2010 3:21:06 PM)
did you watch the minn game?

pete46 (Jan 17, 2010 3:21:16 PM)
i am good jim

Jim_VA (Jan 17, 2010 3:24:18 PM)
6

pete46 (Jan 17, 2010 3:25:07 PM)
all the home teams in romps so far this weekend with just the jets sd left

Jim_VA (Jan 17, 2010 3:26:43 PM)
;yes

pete46 (Jan 17, 2010 3:43:21 PM)
i am rooting for sd

Jim_VA (Jan 17, 2010 3:44:31 PM)
i like rivers but not turner

pete46 (Jan 17, 2010 3:54:43 PM)
a pals i met has a nephew that plays for SD. hes a safety

Jim_VA (Jan 17, 2010 4:02:07 PM)
nice

pete46 (Jan 17, 2010 4:02:42 PM)
have you talked to jim west at all?

Jim_VA (Jan 17, 2010 4:03:38 PM)
no

pete46 (Jan 17, 2010 4:04:19 PM)
i happened to see his profile on plm and it said his fvc was down to 5. I wonder if he got vent?

pete46 (Jan 17, 2010 4:07:37 PM)
the last i talked to him, he was working from home and was going to the texas ala game in pasadena.

Jim_VA (Jan 17, 2010 4:07:57 PM)
wow not good

Jim_VA (Jan 17, 2010 4:09:22 PM)
yes

pete46 (Jan 17, 2010 4:10:38 PM)
it was only 9 on aug 7th. He had told me that he was using bipap day and night

Jim_VA (Jan 17, 2010 4:12:40 PM)
can

pete46 (Jan 17, 2010 4:13:49 PM)
i just looked at his profile and frs is only 3, i hope he is alright

pete46 (Jan 17, 2010 4:34:19 PM)
he hasn't been on for a while that i know of

Jim_VA (Jan 17, 2010 4:40:55 PM)
i think so

pete46 (Jan 17, 2010 4:43:40 PM)
jim, was your onset respiratory?

Jim_VA (Jan 17, 2010 4:43:52 PM)
not for several weeks

Jim_VA (Jan 17, 2010 4:46:54 PM)
yes i stopped breathing

pete46 (Jan 17, 2010 4:47:55 PM)
did you havr other sumptoms at that time? arms? legs? swallowing? talking?

Jim_VA (Jan 17, 2010 4:49:40 PM)
not really

pete46 (Jan 17, 2010 4:50:11 PM)
did they know it was als when they vented you?

Jim_VA (Jan 17, 2010 4:55:28 PM)
no dx 3 months after ventilator

pete46 (Jan 17, 2010 4:57:02 PM)
and you wwere syill eathing, talking, walking then?

Jim_VA (Jan 17, 2010 4:59:38 PM)
yes

pete46 (Jan 17, 2010 5:00:09 PM)
did they do emg tests for diagnosis?

Jim_VA (Jan 17, 2010 5:09:50 PM)
that andiesal tap muscle and nerve biopsies

Jim_VA (Jan 17, 2010 5:11:09 PM)
spinal tap

pete46 (Jan 17, 2010 5:11:49 PM)
they didn't do all thet for me. i guess they got enough info from what they did to make diagnosis. So they must have suspected als in your case.

Jim_VA (Jan 17, 2010 5:16:37 PM)
all except emg were negative

pete46 (Jan 17, 2010 5:17:30 PM)
is the spinal tap and nerve biopsies generally positive if als?

Jim_VA (Jan 17, 2010 5:21:43 PM)
i don't think so]

pete46 (Jan 17, 2010 5:29:44 PM)
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Jim_VA (Jan 17, 2010 5:31:52 PM)
(This user has left DigiChat)