Living with ALS
mommazooms (Jan 25, 2010 1:58:50 PM)
Jim_VA (Jan 25, 2010 2:05:10 PM)
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mommazooms (Jan 25, 2010 2:05:52 PM)
Hi Jim! How are you?
mommazooms (Jan 25, 2010 2:15:50 PM)
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mommazooms (Jan 25, 2010 2:16:15 PM)
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mommazooms (Jan 25, 2010 2:16:16 PM)
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mommazooms (Jan 25, 2010 2:17:21 PM)
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mommazooms (Jan 25, 2010 2:18:20 PM)
Hi Jim! How are you?
Jim_VA (Jan 25, 2010 2:18:52 PM)
i am fine ty how are you?
Jim_VA (Jan 25, 2010 2:19:16 PM)
wb]
mommazooms (Jan 25, 2010 2:20:55 PM)
I'm well, thanks... TY :)
Jim_VA (Jan 25, 2010 2:25:03 PM)
pete had to go to a funeral today
mommazooms (Jan 25, 2010 2:27:35 PM)
Oh, not a family member I hope!
Jim_VA (Jan 25, 2010 2:30:02 PM)
his Aunt died she was in her 90's
mommazooms (Jan 25, 2010 2:32:15 PM)
Nice long life!
Jim_VA (Jan 25, 2010 2:35:14 PM)
my son won an ot game yes very long
mommazooms (Jan 25, 2010 2:36:36 PM)
Yay! They got a taste of winning!
Jim_VA (Jan 25, 2010 2:37:58 PM)
he saw her a few days before she died
mommazooms (Jan 25, 2010 2:39:20 PM)
That's nice
Jim_VA (Jan 25, 2010 2:40:13 PM)
yes he said some are getting it
Jim_VA (Jan 25, 2010 2:45:21 PM)
i will have to talk him into coaching next year
mommazooms (Jan 25, 2010 2:50:47 PM)
He doesn't want to coach next year?
Jim_VA (Jan 25, 2010 2:56:15 PM)
e wants to but some of the mom's are bugging him
mommazooms (Jan 25, 2010 2:59:04 PM)
What are they saying? Tell them if they can do better, they can coach!
Jim_VA (Jan 25, 2010 3:00:29 PM)
they think it is like like little league "everyone plays
pete46 (Jan 25, 2010 3:01:21 PM)
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pete46 (Jan 25, 2010 3:01:29 PM)
hi beth
pete46 (Jan 25, 2010 3:01:32 PM)
hi jim
mommazooms (Jan 25, 2010 3:01:35 PM)
How old are these girls?
mommazooms (Jan 25, 2010 3:02:28 PM)
Hi Pete! Sorry to hear about your aunt
pete46 (Jan 25, 2010 3:03:03 PM)
thank you beth, she was the family matriarch, oldest living relative of the generation above me
pete46 (Jan 25, 2010 3:03:18 PM)
would have been 99 feb 1st
pete46 (Jan 25, 2010 3:03:53 PM)
she still had all her faculties but suffered physically and was in a lot of pain
Jim_VA (Jan 25, 2010 3:08:18 PM)
he won't let them play if they don't come to practices
Jim_VA (Jan 25, 2010 3:09:10 PM)
hi pete
mommazooms (Jan 25, 2010 3:10:06 PM)
Good coaching! Why reward them for not practicing?
Jim_VA (Jan 25, 2010 3:11:53 PM)
they are hs freshman
pete46 (Jan 25, 2010 3:11:56 PM)
how about those uconn girls!
mommazooms (Jan 25, 2010 3:14:11 PM)
They've probably been brought up that everybody is special, so they would not get their feelings hurt!
Jim_VA (Jan 25, 2010 3:15:26 PM)
he says they are lazy
Jim_VA (Jan 25, 2010 3:16:34 PM)
yep
mommazooms (Jan 25, 2010 3:18:50 PM)
They're rolling! You have to check this link out: http://espn.go.com/espnradio/show?showId=scottvanpelt2009 got towards the bottom of the page and look for this description under the heading ‘One Big Thing’ “Scott Van Pelt praises the UConn women's basketball team ”
Jim_VA (Jan 25, 2010 3:20:50 PM)
k
pete46 (Jan 25, 2010 3:27:16 PM)
i just listened to it and it is so true
pete46 (Jan 25, 2010 3:28:01 PM)
no one comes close
mommazooms (Jan 25, 2010 3:29:02 PM)
Isn't it?
mommazooms (Jan 25, 2010 3:38:58 PM)
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mommazooms (Jan 25, 2010 3:39:50 PM)
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mommazooms (Jan 25, 2010 3:39:51 PM)
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mommazooms (Jan 25, 2010 3:41:47 PM)
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pete46 (Jan 25, 2010 3:42:05 PM)
wb beth
mommazooms (Jan 25, 2010 3:42:17 PM)
ty
Jim_VA (Jan 25, 2010 3:42:18 PM)
`wb
mommazooms (Jan 25, 2010 3:42:29 PM)
ty
pete46 (Jan 25, 2010 3:44:35 PM)
the uconn men aren't as strong though and coach has more health issues
Jim_VA (Jan 25, 2010 3:45:28 PM)
I'd rather watch UCONN football
mommazooms (Jan 25, 2010 3:45:59 PM)
No, but they did beat #1 Texas!
pete46 (Jan 25, 2010 3:46:05 PM)
any suggestions for dental work, i have reached the point where i can't get in and out of a dental chair
pete46 (Jan 25, 2010 3:46:25 PM)
they did, i didn't know that, this weekend?
mommazooms (Jan 25, 2010 3:48:00 PM)
My dentist works on me in my chair, they rearrange the room a little and I tilt back in my chair.
mommazooms (Jan 25, 2010 3:53:54 PM)
Does your chair tilt? I wonder if your dentist would work on you in your chair?
mommazooms (Jan 25, 2010 3:54:55 PM)
They played them last week
pete46 (Jan 25, 2010 3:55:07 PM)
ok
Jim_VA (Jan 25, 2010 3:57:43 PM)
i am trying to find one down here
Jim_VA (Jan 25, 2010 3:58:37 PM)
i need a 36
mommazooms (Jan 25, 2010 3:59:09 PM)
I wonder if 1-800-Dentist would be able to find someone for you?
Jim_VA (Jan 25, 2010 3:59:34 PM)
" door
mommazooms (Jan 25, 2010 4:01:14 PM)
That might be hard to come by! I wonder if ALSA or MDA could suggest someone?
Jim_VA (Jan 25, 2010 4:01:56 PM)
my wheelchair is so big
mommazooms (Jan 25, 2010 4:02:37 PM)
I'm lucky because I'm not my dentists first PALS
pete46 (Jan 25, 2010 4:03:08 PM)
i will try alsa
pete46 (Jan 25, 2010 4:03:27 PM)
the social worder from mda/als is coming tomorrow
Jim_VA (Jan 25, 2010 4:04:09 PM)
interesting
pete46 (Jan 25, 2010 4:04:55 PM)
i'll ask her
mommazooms (Jan 25, 2010 4:05:26 PM)
I wonder if there is a dental school in the area that would work on you?
pete46 (Jan 25, 2010 4:05:44 PM)
thats a thought
Jim_VA (Jan 25, 2010 4:07:54 PM)
down here ALSA is in Tampa
mommazooms (Jan 25, 2010 4:08:32 PM)
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mommazooms (Jan 25, 2010 4:08:49 PM)
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mommazooms (Jan 25, 2010 4:08:49 PM)
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pete46 (Jan 25, 2010 4:09:18 PM)
i go to a mda/als clinic in worcester. thats where the social worker is out of
mommazooms (Jan 25, 2010 4:09:39 PM)
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Jim_VA (Jan 25, 2010 4:09:53 PM)
3 hours
Jim_VA (Jan 25, 2010 4:10:12 PM)
wb
mommazooms (Jan 25, 2010 4:10:23 PM)
ty
pete46 (Jan 25, 2010 4:10:26 PM)
20 min drive to worcseter iven from connecticutt
mommazooms (Jan 25, 2010 4:10:54 PM)
When I've seen the UConn dental school in commercials, they have an open area with several chairs and no walls
pete46 (Jan 25, 2010 4:11:44 PM)
with my pwc, im thinking they can just work on me in my chair
mommazooms (Jan 25, 2010 4:12:20 PM)
It's easy to do
mommazooms (Jan 25, 2010 4:14:07 PM)
Sometimes I have to elevate and then recline the back of my chair, other times I just tilt
pete46 (Jan 25, 2010 4:14:44 PM)
so dr works on you in your chair beth?
mommazooms (Jan 25, 2010 4:16:28 PM)
yes & for cleaning too
mommazooms (Jan 25, 2010 4:16:37 PM)
I don't know about you but I can't drink/swish/spit, we devised a way around it!
pete46 (Jan 25, 2010 4:17:01 PM)
i can still do that, how about xrays?
mommazooms (Jan 25, 2010 4:17:38 PM)
In the chair with no problems
pete46 (Jan 25, 2010 4:18:34 PM)
sounds like a plan
mommazooms (Jan 25, 2010 4:21:05 PM)
Let them rearrange the room a bit - the dential chair doesn't move much - and let them tell you where to park :)
pete46 (Jan 25, 2010 4:21:15 PM)
dinner time, back in 20
mommazooms (Jan 25, 2010 4:21:37 PM)
k, me too
CRIS (Jan 25, 2010 4:31:03 PM)
(This user has entered Living with ALS)
CRIS (Jan 25, 2010 4:31:42 PM)
anybody here?
Jim_VA (Jan 25, 2010 4:32:45 PM)
yo
CRIS (Jan 25, 2010 4:33:20 PM)
where is everybody?
Jim_VA (Jan 25, 2010 4:33:40 PM)
hi
CRIS (Jan 25, 2010 4:34:55 PM)
hi
Jim_VA (Jan 25, 2010 4:34:56 PM)
they
CRIS (Jan 25, 2010 4:35:41 PM)
they what
Jim_VA (Jan 25, 2010 4:36:08 PM)
are
Jim_VA (Jan 25, 2010 4:37:14 PM)
eating
pete46 (Jan 25, 2010 4:38:01 PM)
back
CRIS (Jan 25, 2010 4:38:05 PM)
oh, thats right, it is 3 hours later there....are you OK?
pete46 (Jan 25, 2010 4:38:11 PM)
well hello cris
CRIS (Jan 25, 2010 4:38:20 PM)
hello pete
pete46 (Jan 25, 2010 4:38:29 PM)
how are you today?
CRIS (Jan 25, 2010 4:38:30 PM)
heard you were eating
pete46 (Jan 25, 2010 4:38:41 PM)
just finished
pete46 (Jan 25, 2010 4:38:45 PM)
brb
Jim_VA (Jan 25, 2010 4:39:00 PM)
pig
pete46 (Jan 25, 2010 4:40:46 PM)
i ate that fast huh jim
pete46 (Jan 25, 2010 4:41:08 PM)
just a salad and ham cheese pasta casserole
CRIS (Jan 25, 2010 4:41:28 PM)
yummy....how was your day, pete?
pete46 (Jan 25, 2010 4:41:53 PM)
its my 7 yr olds favorite meal
pete46 (Jan 25, 2010 4:42:21 PM)
my day was good. went to wake/funeral/mercy meal for my aunt
pete46 (Jan 25, 2010 4:43:05 PM)
jim did you know ken timmons?
pete46 (Jan 25, 2010 4:43:30 PM)
on some chats as ken-OH
pete46 (Jan 25, 2010 4:43:45 PM)
he had his vent removed today
CRIS (Jan 25, 2010 4:44:30 PM)
how did you find that out, pete?
pete46 (Jan 25, 2010 4:44:33 PM)
how was your day cris
pete46 (Jan 25, 2010 4:44:43 PM)
on a different als chat line
CRIS (Jan 25, 2010 4:45:13 PM)
It is going OK....I bet you are tired
Jim_VA (Jan 25, 2010 4:45:32 PM)
yes he was young
pete46 (Jan 25, 2010 4:45:47 PM)
i actually took a short nap this afternoon
Jim_VA (Jan 25, 2010 4:45:54 PM)
why
pete46 (Jan 25, 2010 4:46:09 PM)
tired of fighting the disease is what i was told
Jim_VA (Jan 25, 2010 4:47:49 PM)
too bad
CRIS (Jan 25, 2010 4:47:57 PM)
I had a friend from LGMD chat that did not want a trach and the disease took her too
pete46 (Jan 25, 2010 4:48:33 PM)
that happens a lot with als cris
CRIS (Jan 25, 2010 4:48:36 PM)
she was only 35
pete46 (Jan 25, 2010 4:48:46 PM)
very young
CRIS (Jan 25, 2010 4:49:02 PM)
I know, pete
Jim_VA (Jan 25, 2010 4:49:22 PM)
it will do that
CRIS (Jan 25, 2010 4:50:16 PM)
have you heard from your friend who was going to get a vent?
pete46 (Jan 25, 2010 4:50:45 PM)
no not yet, jim knows him very well from this chat line also
Jim_VA (Jan 25, 2010 4:51:47 PM)
does dave q go in there
mommazooms (Jan 25, 2010 4:51:54 PM)
I'm back... Hi Cris, I'm Beth
CRIS (Jan 25, 2010 4:52:07 PM)
hi beth
Jim_VA (Jan 25, 2010 4:52:13 PM)
wb
pete46 (Jan 25, 2010 4:53:14 PM)
wb beth
CRIS (Jan 25, 2010 4:54:17 PM)
where are you from, Beth?
mommazooms (Jan 25, 2010 4:54:31 PM)
TY!
mommazooms (Jan 25, 2010 4:54:59 PM)
CT, you?
CRIS (Jan 25, 2010 4:55:08 PM)
Calif
mommazooms (Jan 25, 2010 4:55:57 PM)
I have a cousin in Bakersfield
mommazooms (Jan 25, 2010 4:56:39 PM)
Are you a PALS or CALS?
CRIS (Jan 25, 2010 4:57:00 PM)
oh wow....I am only 45 minutes from there....I am in the mountains
CRIS (Jan 25, 2010 4:57:12 PM)
what is that?
pete46 (Jan 25, 2010 4:57:29 PM)
cris is a good friend i met on wheelchair gang chat line and she has come on to visit
pete46 (Jan 25, 2010 4:57:41 PM)
pals = paiients with als
pete46 (Jan 25, 2010 4:57:52 PM)
cals = caretakers of patients with als
pete46 (Jan 25, 2010 4:58:16 PM)
meaybe there should be a fals, friends of patients with als
CRIS (Jan 25, 2010 4:58:48 PM)
none of the above....just a friend who has LGMD and cares for my chat friends
mommazooms (Jan 25, 2010 4:58:53 PM)
Oh, ok... :) Welcome!
CRIS (Jan 25, 2010 4:59:49 PM)
ty, momma
mommazooms (Jan 25, 2010 5:00:37 PM)
Nice to meet you! Just as the chats ending :(
CRIS (Jan 25, 2010 5:01:23 PM)
yes, it was nice to see you all....take care
mommazooms (Jan 25, 2010 5:01:42 PM)
TTFN!
mommazooms (Jan 25, 2010 5:01:44 PM)
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CRIS (Jan 25, 2010 5:02:05 PM)
what does ttfn mean?
pete46 (Jan 25, 2010 5:02:30 PM)
ta ta for now?
CRIS (Jan 25, 2010 5:02:47 PM)
not my favorite expression....lol
pete46 (Jan 25, 2010 5:03:29 PM)
nolt sure it thats what it means
pete46 (Jan 25, 2010 5:03:34 PM)
just a guess
CRIS (Jan 25, 2010 5:03:49 PM)
makes sense
CRIS (Jan 25, 2010 5:05:56 PM)
I need to get my afternoon snack, so I will bid you two farewell
CRIS (Jan 25, 2010 5:07:21 PM)
bye bye Pete and Jim
pete46 (Jan 25, 2010 5:07:38 PM)
talk soon again i hope
pete46 (Jan 25, 2010 5:07:45 PM)
enjoy your snack
CRIS (Jan 25, 2010 5:07:49 PM)
I hope so too
CRIS (Jan 25, 2010 5:07:52 PM)
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pete46 (Jan 25, 2010 5:08:20 PM)
jim i am going now too, i should be back tonite
Jim_VA (Jan 25, 2010 5:09:20 PM)
it's pig time for me take care
pete46 (Jan 25, 2010 5:09:36 PM)
ok jim you too
pete46 (Jan 25, 2010 5:10:05 PM)
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Jim_VA (Jan 25, 2010 5:18:40 PM)
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