Living with ALS

Jim_VA (Feb 3, 2010 5:56:00 PM)
(This user has entered Living with ALS)

Jim_VA (Feb 3, 2010 5:56:44 PM)
(This user has left DigiChat)

pete46 (Feb 3, 2010 5:56:45 PM)
hi jim

Jim_VA (Feb 3, 2010 6:02:13 PM)
(This user has entered Living with ALS)

pete46 (Feb 3, 2010 6:04:38 PM)
you there jim?

Jim_VA (Feb 3, 2010 6:07:55 PM)
hi pete how are you

pete46 (Feb 3, 2010 6:08:11 PM)
good jim, did you read the email from jim west?

Jim_VA (Feb 3, 2010 6:11:51 PM)
yes but i haven't answered yet

pete46 (Feb 3, 2010 6:12:18 PM)
its good to know that his trach went fine

Jim_VA (Feb 3, 2010 6:16:48 PM)
i will write to him after the chat

pete46 (Feb 3, 2010 6:17:09 PM)
i'm sure he will be glad to hear from you

Jim_VA (Feb 3, 2010 6:20:59 PM)
i had to send Pam a note today

pete46 (Feb 3, 2010 6:21:16 PM)
is that his wife?

Jim_VA (Feb 3, 2010 6:22:40 PM)
no the girl from

Jim_VA (Feb 3, 2010 6:23:22 PM)
Pitt

pete46 (Feb 3, 2010 6:23:38 PM)
is she a pals?

Jim_VA (Feb 3, 2010 6:25:39 PM)
no her hubby

pete46 (Feb 3, 2010 6:25:59 PM)
she has been on here right?

pete46 (Feb 3, 2010 6:27:51 PM)
brb

Jim_VA (Feb 3, 2010 6:27:56 PM)
i don't think so

Jim_VA (Feb 3, 2010 6:28:08 PM)
k

pete46 (Feb 3, 2010 6:34:43 PM)
back

pete46 (Feb 3, 2010 6:34:55 PM)
i think i met someone from pitt on this chat

pete46 (Feb 3, 2010 6:35:08 PM)
maybe not though

Jim_VA (Feb 3, 2010 6:40:10 PM)
wb she may have

pete46 (Feb 3, 2010 6:41:56 PM)
or on jeannies chat line

Jim_VA (Feb 3, 2010 6:42:04 PM)
i don't remember her

pete46 (Feb 3, 2010 6:42:33 PM)
why are you sending note?

pete46 (Feb 3, 2010 6:42:42 PM)
if i might be nosey?

Jim_VA (Feb 3, 2010 6:43:15 PM)
that is possible

Jim_VA (Feb 3, 2010 6:44:15 PM)
to Jim?

pete46 (Feb 3, 2010 6:44:49 PM)
i thought you said you were sending note to pam from pitt

Jim_VA (Feb 3, 2010 6:45:07 PM)
or Pam

pete46 (Feb 3, 2010 6:45:56 PM)
pam

Jim_VA (Feb 3, 2010 6:48:49 PM)
she has problems her hubby continues to eat and he is choking

pete46 (Feb 3, 2010 6:49:04 PM)
no peg?

Jim_VA (Feb 3, 2010 6:50:26 PM)
won't talk about one

pete46 (Feb 3, 2010 6:50:52 PM)
some pals refuse to get them

Jim_VA (Feb 3, 2010 6:52:44 PM)
yes

pete46 (Feb 3, 2010 6:53:09 PM)
and refuse bipaps and of course a lot refuse vents

Jim_VA (Feb 3, 2010 6:56:58 PM)
a sick society

pete46 (Feb 3, 2010 6:57:25 PM)
yes jim

Jim_VA (Feb 3, 2010 7:01:27 PM)
40% of Japanese go on vents and 5

Jim_VA (Feb 3, 2010 7:02:53 PM)
% of americans

pete46 (Feb 3, 2010 7:03:00 PM)
not right

pete46 (Feb 3, 2010 7:03:33 PM)
because of cost and because of drs giving advice as to cons of being vented

Jim_VA (Feb 3, 2010 7:07:35 PM)
i wrote an article about doctors a few years ago

pete46 (Feb 3, 2010 7:09:58 PM)
the head neuro at the leahy clinic who runs the als clinic there was the first neuro that actually discussed als with me. He made getting vented sound like a very selfish thing to do

Jim_VA (Feb 3, 2010 7:11:54 PM)
their attitude about living is horrible

pete46 (Feb 3, 2010 7:12:13 PM)
yes

Jim_VA (Feb 3, 2010 7:17:23 PM)
there was 3 doctors in the hunt club

Jim_VA (Feb 3, 2010 7:23:44 PM)
they are all dead now

pete46 (Feb 3, 2010 7:24:08 PM)
from als?

Jim_VA (Feb 3, 2010 7:25:55 PM)
2 from cancer

Jim_VA (Feb 3, 2010 7:28:13 PM)
the other old age

pete46 (Feb 3, 2010 7:28:28 PM)
ok

pete46 (Feb 3, 2010 7:32:51 PM)
(This user has left DigiChat)

pete46 (Feb 3, 2010 7:38:43 PM)
(This user has entered Living with ALS)

pete46 (Feb 3, 2010 7:38:52 PM)
got disconnected jim

Jim_VA (Feb 3, 2010 7:41:38 PM)
wb

pete46 (Feb 3, 2010 7:41:47 PM)
ty

Jim_VA (Feb 3, 2010 8:04:23 PM)
can you spend the money in your trust account

pete46 (Feb 3, 2010 8:05:16 PM)
you mean the pooled trust i am setting up?

Jim_VA (Feb 3, 2010 8:06:12 PM)
yes

pete46 (Feb 3, 2010 8:07:22 PM)
yes. they hold the money and i can spend it on just about anything. her's a link explaining it http://www.familytrustofmass.org/Program%20Description.pdf

pete46 (Feb 3, 2010 8:08:10 PM)
i am actually in another one but this will explain how it works. not sure if this is available in all states

Jim_VA (Feb 3, 2010 8:30:48 PM)
great ty

pete46 (Feb 3, 2010 8:31:09 PM)
looks like a good deal

pete46 (Feb 3, 2010 8:31:30 PM)
if i didnt put money in trust medicaid uses it fires

pete46 (Feb 3, 2010 8:31:33 PM)
first

Jim_VA (Feb 3, 2010 8:34:16 PM)
ill study it later

pete46 (Feb 3, 2010 8:34:22 PM)
ok

Jim_VA (Feb 3, 2010 8:36:25 PM)
it looks good

Jim_VA (Feb 3, 2010 8:39:47 PM)
have you heard of Harrel's

pete46 (Feb 3, 2010 8:40:01 PM)
nope

Jim_VA (Feb 3, 2010 8:42:00 PM)
Ice Cream

pete46 (Feb 3, 2010 8:43:12 PM)
no i havent

pete46 (Feb 3, 2010 8:43:19 PM)
heard of it

Jim_VA (Feb 3, 2010 8:57:40 PM)
there was across from harvard sq

pete46 (Feb 3, 2010 8:58:09 PM)
how long ago

Jim_VA (Feb 3, 2010 8:58:47 PM)
96

pete46 (Feb 3, 2010 8:59:29 PM)
good ice cream?

Jim_VA (Feb 3, 2010 9:00:29 PM)
excellent

Jim_VA (Feb 3, 2010 9:07:20 PM)
made on site

pete46 (Feb 3, 2010 9:09:58 PM)
ok jim i will see you this weekend

Jim_VA (Feb 3, 2010 9:10:17 PM)
take care

pete46 (Feb 3, 2010 9:10:33 PM)
celtics are starting 4th quarter and i am going to watch it

Jim_VA (Feb 3, 2010 9:11:16 PM)
ttyl]

Jim_VA (Feb 3, 2010 9:12:11 PM)
go celtics

pete46 (Feb 3, 2010 9:12:32 PM)
pierce is out with an injury

Jim_VA (Feb 3, 2010 9:13:36 PM)
that hurts

Jim_VA (Feb 3, 2010 9:14:10 PM)
gnight

pete46 (Feb 3, 2010 9:14:12 PM)
talk later jim

Jim_VA (Feb 3, 2010 9:14:26 PM)
ok

Jim_VA (Feb 3, 2010 9:14:38 PM)
(This user has left DigiChat)

pete46 (Feb 3, 2010 9:57:30 PM)
(This user has moved to Wheelchair Gang)