Living with ALS
pete46 (Feb 10, 2010 5:56:28 PM)
CRIS (Feb 10, 2010 6:15:19 PM)
(This user has entered Living with ALS)
CRIS (Feb 10, 2010 6:17:00 PM)
hi pete....are you there?
pete46 (Feb 10, 2010 6:19:05 PM)
hi cris
pete46 (Feb 10, 2010 6:19:11 PM)
how are you
pete46 (Feb 10, 2010 6:19:20 PM)
snowing here still
CRIS (Feb 10, 2010 6:19:20 PM)
fine and you?
pete46 (Feb 10, 2010 6:19:25 PM)
i am good
CRIS (Feb 10, 2010 6:19:40 PM)
beautiful day here....sun is out
pete46 (Feb 10, 2010 6:19:59 PM)
sounds nice want to trade?
pete46 (Feb 10, 2010 6:20:19 PM)
still didnpt get movie
CRIS (Feb 10, 2010 6:21:38 PM)
took back movies today...the Michael Moore movie is available
pete46 (Feb 10, 2010 6:22:21 PM)
i dont know if they brought the mail today but no one went to mailbox, at end of driveway
CRIS (Feb 10, 2010 6:22:41 PM)
can they get there?
westjlittle (Feb 10, 2010 6:23:09 PM)
(This user has entered Living with ALS)
pete46 (Feb 10, 2010 6:23:10 PM)
i suppose but i will wait
pete46 (Feb 10, 2010 6:23:15 PM)
hi jim
westjlittle (Feb 10, 2010 6:23:33 PM)
hi
CRIS (Feb 10, 2010 6:23:56 PM)
hi jim....how are feeling today?
pete46 (Feb 10, 2010 6:23:59 PM)
how is it going
westjlittle (Feb 10, 2010 6:24:24 PM)
same
pete46 (Feb 10, 2010 6:24:42 PM)
diahrrea any better
westjlittle (Feb 10, 2010 6:25:28 PM)
i got new infectious disease doc
westjlittle (Feb 10, 2010 6:25:35 PM)
no
pete46 (Feb 10, 2010 6:26:02 PM)
new doc better?
CRIS (Feb 10, 2010 6:26:23 PM)
do you like him?
CRIS (Feb 10, 2010 6:26:32 PM)
what happen to the old one?
westjlittle (Feb 10, 2010 6:27:09 PM)
referral to specialist
pete46 (Feb 10, 2010 6:27:22 PM)
about time
westjlittle (Feb 10, 2010 6:27:37 PM)
figure out bug
pete46 (Feb 10, 2010 6:27:54 PM)
did you get dr house?
CRIS (Feb 10, 2010 6:27:57 PM)
how do they do that? take blood?
pete46 (Feb 10, 2010 6:28:22 PM)
lol
westjlittle (Feb 10, 2010 6:28:49 PM)
blood, stool, phlem
CRIS (Feb 10, 2010 6:29:30 PM)
I hope they find the answer fast, so they can fix it fast
pete46 (Feb 10, 2010 6:29:54 PM)
this has lasted way too long jim
westjlittle (Feb 10, 2010 6:30:27 PM)
white blood count high,body fighting something
westjlittle (Feb 10, 2010 6:30:35 PM)
yes
pete46 (Feb 10, 2010 6:31:21 PM)
still able to go home friday?
westjlittle (Feb 10, 2010 6:31:29 PM)
no
pete46 (Feb 10, 2010 6:31:38 PM)
that sucks
CRIS (Feb 10, 2010 6:31:46 PM)
oh no
westjlittle (Feb 10, 2010 6:31:47 PM)
i thought yes but...
westj_aol_com: couldn't get nurse setup for trnsition
westj_aol_com: insurance issues were a part
westj_aol_com: only 1of25 agencies work with my ins
CRIS (Feb 10, 2010 6:32:22 PM)
that sucks
pete46 (Feb 10, 2010 6:32:22 PM)
wow
pete46 (Feb 10, 2010 6:33:17 PM)
only 1 in 25 agencies? home health agencies
RavenP99 (Feb 10, 2010 6:33:25 PM)
(This user has entered Living with ALS)
pete46 (Feb 10, 2010 6:33:30 PM)
hi raven
RavenP99 (Feb 10, 2010 6:33:41 PM)
Hiya
pete46 (Feb 10, 2010 6:33:46 PM)
bruins won 2 in a row raven
RavenP99 (Feb 10, 2010 6:33:55 PM)
I know
westjlittle (Feb 10, 2010 6:34:22 PM)
yes
CRIS (Feb 10, 2010 6:34:28 PM)
hi raven
RavenP99 (Feb 10, 2010 6:34:35 PM)
HI
pete46 (Feb 10, 2010 6:34:38 PM)
that is too bad jim, any idea when you can get it straightened out and get out of there?
westjlittle (Feb 10, 2010 6:34:48 PM)
n
pete46 (Feb 10, 2010 6:35:58 PM)
any social workers there to help with the ins bullshit?
westjlittle (Feb 10, 2010 6:36:08 PM)
yes
pete46 (Feb 10, 2010 6:36:56 PM)
hopefully that can get straightened out. do they want to keep you there to treat the infection?
westjlittle (Feb 10, 2010 6:37:41 PM)
not issue yet
CRIS (Feb 10, 2010 6:37:45 PM)
they can't send him home with an infection.....that is not right
CRIS (Feb 10, 2010 6:38:15 PM)
where is the other Jim?
pete46 (Feb 10, 2010 6:38:26 PM)
mia
pete46 (Feb 10, 2010 6:38:38 PM)
he may be here later
CRIS (Feb 10, 2010 6:38:39 PM)
I hope he is OK
pete46 (Feb 10, 2010 6:38:56 PM)
his brother is visiting him
CRIS (Feb 10, 2010 6:39:05 PM)
oh...ok
westjlittle (Feb 10, 2010 6:39:31 PM)
i was chatting in yahoo,he reminded me
CRIS (Feb 10, 2010 6:40:05 PM)
do you have yahoo messenger, jim?
westjlittle (Feb 10, 2010 6:40:14 PM)
yes
CRIS (Feb 10, 2010 6:40:24 PM)
may I add you as a friend?
westjlittle (Feb 10, 2010 6:40:35 PM)
sure
westjlittle (Feb 10, 2010 6:41:08 PM)
westj_aol_com
pete46 (Feb 10, 2010 6:41:22 PM)
jim my userid is getfreewilly
pete46 (Feb 10, 2010 6:43:50 PM)
watching hockey raven?
CRIS (Feb 10, 2010 6:44:19 PM)
are you guys looking forward to the Olympics?
RavenP99 (Feb 10, 2010 6:44:25 PM)
yup
pete46 (Feb 10, 2010 6:44:28 PM)
sure
CRIS (Feb 10, 2010 6:44:35 PM)
what event?
pete46 (Feb 10, 2010 6:44:39 PM)
what game raven
pete46 (Feb 10, 2010 6:44:50 PM)
i like lots of them
RavenP99 (Feb 10, 2010 6:44:51 PM)
nyi vs pit
pete46 (Feb 10, 2010 6:44:57 PM)
skiing next week?
CRIS (Feb 10, 2010 6:45:28 PM)
I added you Jim....says it should be in your email
pete46 (Feb 10, 2010 6:45:37 PM)
bruins had lost 10 in a row
pete46 (Feb 10, 2010 6:46:37 PM)
dropped right out of playoffs
pete46 (Feb 10, 2010 6:46:47 PM)
but fighting back now
pete46 (Feb 10, 2010 6:47:04 PM)
next play tampa and panthers
pete46 (Feb 10, 2010 6:47:07 PM)
in fla
RavenP99 (Feb 10, 2010 6:47:27 PM)
cool
westjlittle (Feb 10, 2010 6:48:05 PM)
BBL need bathroom
pete46 (Feb 10, 2010 6:48:09 PM)
ok
westjlittle (Feb 10, 2010 6:48:12 PM)
(This user has left DigiChat)
CRIS (Feb 10, 2010 6:49:12 PM)
poor baby...must not be easy
pete46 (Feb 10, 2010 6:50:04 PM)
its horrible, similar thing happened to another pals who got trach. picked up some hospital staff infection
RavenP99 (Feb 10, 2010 6:51:58 PM)
good fight going on..there getting naked,,,hehe
CRIS (Feb 10, 2010 6:52:04 PM)
the congressman that just passes away went in for gall bladder operation, developed infection for intestines being snipped and waited too long to go get it checked....3 days
pete46 (Feb 10, 2010 6:52:05 PM)
lol
RavenP99 (Feb 10, 2010 6:52:11 PM)
both lost their shirts
pete46 (Feb 10, 2010 6:52:29 PM)
who was that cris
CRIS (Feb 10, 2010 6:53:10 PM)
the one that just passed away yesterday or day before...forgot his name...senior moment
pete46 (Feb 10, 2010 6:53:28 PM)
lol
pete46 (Feb 10, 2010 6:56:19 PM)
hospitals can be dangerous
CRIS (Feb 10, 2010 6:57:49 PM)
so I have been told
pete46 (Feb 10, 2010 6:59:37 PM)
and you have never been in one overnite?
CRIS (Feb 10, 2010 7:00:12 PM)
correct....I am very lucky
pete46 (Feb 10, 2010 7:01:48 PM)
have you heard from hen lately?
CRIS (Feb 10, 2010 7:03:31 PM)
your ears must be ringing....I am chatting with her now on yahoo...she is fine
pete46 (Feb 10, 2010 7:04:29 PM)
thats good is she going to wc gang later
CRIS (Feb 10, 2010 7:05:08 PM)
I will ask
CRIS (Feb 10, 2010 7:06:41 PM)
she said yes, she plans on being there
RavenP99 (Feb 10, 2010 7:06:49 PM)
got snow pete?
pete46 (Feb 10, 2010 7:06:58 PM)
yup still snowing
RavenP99 (Feb 10, 2010 7:07:10 PM)
sunny here today
pete46 (Feb 10, 2010 7:07:20 PM)
temp?
RavenP99 (Feb 10, 2010 7:07:30 PM)
but never got of the 4o's
pete46 (Feb 10, 2010 7:07:41 PM)
been a cold winter
RavenP99 (Feb 10, 2010 7:08:03 PM)
getting down to 28 tonight
pete46 (Feb 10, 2010 7:08:08 PM)
brrr
RavenP99 (Feb 10, 2010 7:08:19 PM)
naw
pete46 (Feb 10, 2010 7:08:19 PM)
its below that now here
RavenP99 (Feb 10, 2010 7:08:34 PM)
-28 is cold
pete46 (Feb 10, 2010 7:08:42 PM)
yes it is
RavenP99 (Feb 10, 2010 7:08:59 PM)
think that the temp of my feet
pete46 (Feb 10, 2010 7:09:11 PM)
lol
RavenP99 (Feb 10, 2010 7:09:14 PM)
popcicles
pete46 (Feb 10, 2010 7:09:20 PM)
chilly piggies
RavenP99 (Feb 10, 2010 7:09:28 PM)
heheh
pete46 (Feb 10, 2010 7:09:34 PM)
hahaha
RavenP99 (Feb 10, 2010 7:09:45 PM)
need a good foot rub
pete46 (Feb 10, 2010 7:10:02 PM)
me too
pete46 (Feb 10, 2010 7:10:16 PM)
among other things
RavenP99 (Feb 10, 2010 7:10:38 PM)
;-}
CRIS (Feb 10, 2010 7:10:39 PM)
stop it, pete
pete46 (Feb 10, 2010 7:10:39 PM)
legs, arms back,
pete46 (Feb 10, 2010 7:10:47 PM)
etc
pete46 (Feb 10, 2010 7:11:24 PM)
and what did you two think i meant!
pete46 (Feb 10, 2010 7:11:44 PM)
lol
CRIS (Feb 10, 2010 7:11:53 PM)
what you wanted us to think....lol
pete46 (Feb 10, 2010 7:12:03 PM)
lol
pete46 (Feb 10, 2010 7:13:26 PM)
and how are your piggies cris
CRIS (Feb 10, 2010 7:13:48 PM)
cold.....always are
pete46 (Feb 10, 2010 7:13:57 PM)
mine too
CRIS (Feb 10, 2010 7:14:30 PM)
and I have a space heater right here by my feet
pete46 (Feb 10, 2010 7:14:38 PM)
wlw
pete46 (Feb 10, 2010 7:14:40 PM)
wow
pete46 (Feb 10, 2010 7:14:51 PM)
dont burn them
CRIS (Feb 10, 2010 7:15:10 PM)
with thick socks and UGG's slippers
pete46 (Feb 10, 2010 7:15:31 PM)
bad circulaion?
CRIS (Feb 10, 2010 7:15:40 PM)
cold right down to the BONE
RavenP99 (Feb 10, 2010 7:15:55 PM)
mine too,,,,it sucks
pete46 (Feb 10, 2010 7:16:05 PM)
that reminds me i have to raise my legs
CRIS (Feb 10, 2010 7:16:32 PM)
does that help?
pete46 (Feb 10, 2010 7:17:26 PM)
`i have swollen feet and ankles
pete46 (Feb 10, 2010 7:17:37 PM)
trying to get it to go down
RavenP99 (Feb 10, 2010 7:17:44 PM)
lol
CRIS (Feb 10, 2010 7:17:55 PM)
did that just develop?
RavenP99 (Feb 10, 2010 7:18:17 PM)
(This user has left DigiChat)
pete46 (Feb 10, 2010 7:18:50 PM)
` fddc zxx
pete46 (Feb 10, 2010 7:19:12 PM)
hard to typw with feet agbove heart
CRIS (Feb 10, 2010 7:19:21 PM)
are we talking about the same thing?
pete46 (Feb 10, 2010 7:19:41 PM)
raising legs
CRIS (Feb 10, 2010 7:20:05 PM)
what happen to Raven?
pete46 (Feb 10, 2010 7:20:12 PM)
dunno
pete46 (Feb 10, 2010 7:21:54 PM)
she likes to watch hockey
CRIS (Feb 10, 2010 7:24:35 PM)
I am glad she enjoys that....it can be exciting
pete46 (Feb 10, 2010 7:25:13 PM)
yup i like towatch the bruins
Jim_VA (Feb 10, 2010 7:25:16 PM)
(This user has entered Living with ALS)
pete46 (Feb 10, 2010 7:25:23 PM)
hi jim
CRIS (Feb 10, 2010 7:25:31 PM)
hi jim
CRIS (Feb 10, 2010 7:25:55 PM)
Raven and Jim were here, but left
CRIS (Feb 10, 2010 7:33:02 PM)
are you having a nice visit with your brother, Jim?
Jim_VA (Feb 10, 2010 7:33:21 PM)
hi cris and ;and
CRIS (Feb 10, 2010 7:44:08 PM)
(This user has left DigiChat)
pete46 (Feb 10, 2010 7:45:52 PM)
jim you still here?
Jim_VA (Feb 10, 2010 7:47:44 PM)
yes
pete46 (Feb 10, 2010 7:48:04 PM)
jim west was here earlier
pete46 (Feb 10, 2010 7:48:20 PM)
his infection not getting better yet
Jim_VA (Feb 10, 2010 7:50:17 PM)
yes he was probably tired
pete46 (Feb 10, 2010 7:50:45 PM)
he said he might be back later
Jim_VA (Feb 10, 2010 7:52:00 PM)
he was in his wheelchair
pete46 (Feb 10, 2010 7:52:55 PM)
celtics are playing new orleans
pete46 (Feb 10, 2010 7:53:16 PM)
uconn women are playing depaul up by 20 at halftime
pete46 (Feb 10, 2010 7:53:29 PM)
going after 63 in a row
Jim_VA (Feb 10, 2010 7:54:37 PM)
great record
pete46 (Feb 10, 2010 8:02:43 PM)
yes
Jim_VA (Feb 10, 2010 8:29:22 PM)
do you remember Ann Meyers not sure of the spelling
pete46 (Feb 10, 2010 8:34:36 PM)
yes a geat basketball player
westjlittle (Feb 10, 2010 8:34:37 PM)
(This user has entered Living with ALS)
pete46 (Feb 10, 2010 8:34:55 PM)
wb jim
pete46 (Feb 10, 2010 8:35:00 PM)
brb
Jim_VA (Feb 10, 2010 8:35:33 PM)
i think her brother played at UCLA
westjlittle (Feb 10, 2010 8:36:32 PM)
Since no one came -- I had a bowel accident
I had to be cleaned up
I can not hold the diareaha for more than
5 minutes
first called at 5 to 6pm responded 6-20 clean 7pm
westjlittle (Feb 10, 2010 8:37:19 PM)
rang 3 times
Jim_VA (Feb 10, 2010 8:37:43 PM)
jim more questions
westjlittle (Feb 10, 2010 8:37:46 PM)
"we're coming"
westjlittle (Feb 10, 2010 8:39:16 PM)
just now got settled
westjlittle (Feb 10, 2010 8:39:49 PM)
i'mreally mad
pete46 (Feb 10, 2010 8:41:17 PM)
back
pete46 (Feb 10, 2010 8:41:27 PM)
just read back
pete46 (Feb 10, 2010 8:41:31 PM)
thats horrible jim
Jim_VA (Feb 10, 2010 8:41:40 PM)
i was given some stuff in the hospital to make me go oh brother
westjlittle (Feb 10, 2010 8:42:42 PM)
nothing has made me feel so helpless
pete46 (Feb 10, 2010 8:42:58 PM)
i can imagine
pete46 (Feb 10, 2010 8:43:12 PM)
i wonder if nursing homes are like that
westjlittle (Feb 10, 2010 8:43:44 PM)
sittin in crap for 45 min
Jim_VA (Feb 10, 2010 8:43:52 PM)
you should be over that
pete46 (Feb 10, 2010 8:44:19 PM)
can only imagine how you feel
pete46 (Feb 10, 2010 8:44:31 PM)
has it happened before jim?
westjlittle (Feb 10, 2010 8:45:41 PM)
not really but they usually take 10-15 min
pete46 (Feb 10, 2010 8:45:52 PM)
which is bad
pete46 (Feb 10, 2010 8:46:12 PM)
and you have to hold it while you wait
Jim_VA (Feb 10, 2010 8:46:24 PM)
what formula
westjlittle (Feb 10, 2010 8:46:28 PM)
yes
pete46 (Feb 10, 2010 8:47:10 PM)
you gotta get out of there jim or they better change their response time
westjlittle (Feb 10, 2010 8:47:20 PM)
peed self last night 20 min wait
pete46 (Feb 10, 2010 8:47:45 PM)
thats bad
momma (Feb 10, 2010 8:48:55 PM)
(This user has entered Living with ALS)
westjlittle (Feb 10, 2010 8:48:58 PM)
pepta... can't see whole label supposedly easy to digest
momma (Feb 10, 2010 8:49:08 PM)
(This user has left DigiChat)
pete46 (Feb 10, 2010 8:50:35 PM)
2 games in row celtics have blown big leads in the 3rd quarter
pete46 (Feb 10, 2010 8:54:06 PM)
i hope you can get out of there jim
Jim_VA (Feb 10, 2010 8:55:04 PM)
do you change inner cannulas every day
westjlittle (Feb 10, 2010 8:55:37 PM)
no
westjlittle (Feb 10, 2010 8:58:30 PM)
RT says i have thin mucus change weekly for me
westjlittle (Feb 10, 2010 8:59:15 PM)
in room now
westjlittle (Feb 10, 2010 9:01:29 PM)
do you?
Jim_VA (Feb 10, 2010 9:02:33 PM)
ask what kind of trach
westjlittle (Feb 10, 2010 9:04:25 PM)
RT Gone now
pete46 (Feb 10, 2010 9:05:47 PM)
jim do they have a lift to get you on and off toilet or do they manually lift you?
pete46 (Feb 10, 2010 9:06:21 PM)
take more than one person?
Jim_VA (Feb 10, 2010 9:08:10 PM)
do you have an inner cannula
westjlittle (Feb 10, 2010 9:11:02 PM)
yes
westjlittle (Feb 10, 2010 9:11:31 PM)
bedpan on bed
westjlittle (Feb 10, 2010 9:12:05 PM)
two to roll me over
pete46 (Feb 10, 2010 9:12:31 PM)
they have to get there act together
westjlittle (Feb 10, 2010 9:13:01 PM)
pray for me new nurse tonight
pete46 (Feb 10, 2010 9:13:13 PM)
oh boy
westjlittle (Feb 10, 2010 9:13:28 PM)
just met her
Jim_VA (Feb 10, 2010 9:13:30 PM)
grab that ah and find out what you have :-)
westjlittle (Feb 10, 2010 9:15:27 PM)
they dont get close enouh to grab ;-)
pete46 (Feb 10, 2010 9:15:39 PM)
lol
westjlittle (Feb 10, 2010 9:16:22 PM)
smart like rats
Jim_VA (Feb 10, 2010 9:16:31 PM)
is it a she
Jim_VA (Feb 10, 2010 9:16:43 PM)
lol
westjlittle (Feb 10, 2010 9:17:17 PM)
both depends on shift
westjlittle (Feb 10, 2010 9:17:47 PM)
RTs are nice
westjlittle (Feb 10, 2010 9:18:32 PM)
knowledgable
westjlittle (Feb 10, 2010 9:18:56 PM)
to me at least
pete46 (Feb 10, 2010 9:18:58 PM)
i'm surprised they don't put one of those condom catheters on you for peeing
pete46 (Feb 10, 2010 9:19:47 PM)
i see on plm l lot of guys use them
Jim_VA (Feb 10, 2010 9:19:57 PM)
you have got to bs them a bit
westjlittle (Feb 10, 2010 9:20:34 PM)
i had foley catheter but made them remove
westjlittle (Feb 10, 2010 9:21:20 PM)
when start to get better
pete46 (Feb 10, 2010 9:21:44 PM)
is a foley catheter one that goes up inside you?
westjlittle (Feb 10, 2010 9:21:53 PM)
yes
pete46 (Feb 10, 2010 9:22:15 PM)
the condom catheter is less invasive
pete46 (Feb 10, 2010 9:22:26 PM)
might want to try it
westjlittle (Feb 10, 2010 9:23:15 PM)
i got samples but didnt try
pete46 (Feb 10, 2010 9:24:56 PM)
i remember having a foley catheter years ago when i had prostrate problems, blood clots were in bladder and clogged it up. i couldnt pee. had to go to emergency room at hospital.
pete46 (Feb 10, 2010 9:25:23 PM)
not a nice feeling, having to pee real bad and nothing would come out
pete46 (Feb 10, 2010 9:25:30 PM)
happened twice
pete46 (Feb 10, 2010 9:26:13 PM)
looks like celtics blew another one
westjlittle (Feb 10, 2010 9:27:21 PM)
i am worn out i think i will go let me give the email i'm using work email hard to access
pete46 (Feb 10, 2010 9:27:51 PM)
ok
Jim_VA (Feb 10, 2010 9:27:59 PM)
make a word pages@26pt say your the best
westjlittle (Feb 10, 2010 9:28:30 PM)
westjlittle at hotmail.com
Jim_VA (Feb 10, 2010 9:29:14 PM)
then flash'em
westjlittle (Feb 10, 2010 9:29:35 PM)
send me your yahoo IMid
westjlittle (Feb 10, 2010 9:30:24 PM)
bye guys
pete46 (Feb 10, 2010 9:30:29 PM)
i have that email address i think. will send id
pete46 (Feb 10, 2010 9:30:36 PM)
bye jim and good luck
pete46 (Feb 10, 2010 9:30:43 PM)
got my prayers
westjlittle (Feb 10, 2010 9:31:12 PM)
(This user has left DigiChat)
Jim_VA (Feb 10, 2010 9:31:35 PM)
bye
pete46 (Feb 10, 2010 9:31:40 PM)
well jim have a good night
pete46 (Feb 10, 2010 9:32:06 PM)
i'm gonna say hi to hen in wc gang
Jim_VA (Feb 10, 2010 9:33:02 PM)
take care ttyl][
Jim_VA (Feb 10, 2010 9:33:57 PM)
gnight
pete46 (Feb 10, 2010 9:34:04 PM)
gnight jim
pete46 (Feb 10, 2010 9:34:10 PM)
(This user has moved to Wheelchair Gang)
Jim_VA (Feb 10, 2010 9:34:46 PM)
(This user has left DigiChat)