Living with ALS

CRIS (Mar 10, 2010 6:30:55 PM)
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pete46 (Mar 10, 2010 7:02:58 PM)
(This user has entered Living with ALS)

CRIS (Mar 10, 2010 7:15:00 PM)
(This user has entered Living with ALS)

CRIS (Mar 10, 2010 7:15:25 PM)
hi pete

pete46 (Mar 10, 2010 7:15:32 PM)
hi cris

CRIS (Mar 10, 2010 7:16:07 PM)
where are the jim's....lol

pete46 (Mar 10, 2010 7:16:51 PM)
not sure, just got on myself

pete46 (Mar 10, 2010 7:17:28 PM)
i received some bad news

CRIS (Mar 10, 2010 7:17:42 PM)
oh no, what?

pete46 (Mar 10, 2010 7:17:59 PM)
my older sister has breast cancer

CRIS (Mar 10, 2010 7:18:47 PM)
oh pete....I am sorry to hear that...did she find out by a breast examination?

pete46 (Mar 10, 2010 7:19:08 PM)
i guess, how else can you find out?

CRIS (Mar 10, 2010 7:19:27 PM)
feel a lump yourself

pete46 (Mar 10, 2010 7:19:54 PM)
no i think they found it with a mammagram

CRIS (Mar 10, 2010 7:20:37 PM)
my best girlfriend had it about 6 years ago....she is cancer free now

pete46 (Mar 10, 2010 7:20:37 PM)
she found out and didnt tell anyone because she didnt want people to worry

pete46 (Mar 10, 2010 7:20:51 PM)
she is going for surgery friday

CRIS (Mar 10, 2010 7:21:17 PM)
tell me what she told you or do you want to do that in private?

pete46 (Mar 10, 2010 7:21:44 PM)
she said it is very small, 1/3 of an inch and she doesnt think she will need chemo

pete46 (Mar 10, 2010 7:22:20 PM)
my younger sister had it a few years ago and is doing well

CRIS (Mar 10, 2010 7:22:57 PM)
that is good news....my girlfriend had the surgery too and was sore for a couple of weeks...does it run in the family?

pete46 (Mar 10, 2010 7:23:32 PM)
my mother had cancer three times before she died

pete46 (Mar 10, 2010 7:23:42 PM)
her family had a lot of it

pete46 (Mar 10, 2010 7:24:06 PM)
only two on my fathers side had it out of 11

pete46 (Mar 10, 2010 7:25:13 PM)
although thats a lot i guess

CRIS (Mar 10, 2010 7:25:56 PM)
we have it in our family too, but not breast....mostly stomach area

pete46 (Mar 10, 2010 7:27:27 PM)
any time you hear cancer its scary

CRIS (Mar 10, 2010 7:28:22 PM)
I understand your sister not telling you and you being upset....my sister had a mini stroke (TIA) and was in hospital several days

pete46 (Mar 10, 2010 7:29:17 PM)
she hasnt had it easy, buried her husband, son, grandson within last 5 years. she is 70 and still works full time, i think to pay off the funerals

CRIS (Mar 10, 2010 7:29:37 PM)
did not tell us until much after. I told her anytime there is an overnite stay in the hospital....tell us

pete46 (Mar 10, 2010 7:29:37 PM)
she is supposed to retire this summer

CRIS (Mar 10, 2010 7:29:45 PM)
what does she do?

pete46 (Mar 10, 2010 7:31:06 PM)
she is a nurse but what she does now is works for a high end nursing home. she travels to hospitals screening patients that are trying to get into her NH

CRIS (Mar 10, 2010 7:32:36 PM)
it is very expensive to bury someone....you found that out

pete46 (Mar 10, 2010 7:33:28 PM)
yes and when her husband was sick, he needed a full time home health person with him while she worked which she had to pay for

CRIS (Mar 10, 2010 7:34:04 PM)
did he have cancer?

pete46 (Mar 10, 2010 7:34:49 PM)
yes 1st lung cancer, then it spread to his brain and he had brain cancer, had an operation and he was never the same.

CRIS (Mar 10, 2010 7:36:09 PM)
how long did he need help?

pete46 (Mar 10, 2010 7:36:24 PM)
i forget but it was quite a while

pete46 (Mar 10, 2010 7:36:29 PM)
over a year

CRIS (Mar 10, 2010 7:37:09 PM)
yes, that can eat up your savings

pete46 (Mar 10, 2010 7:37:27 PM)
i am sure it did

CRIS (Mar 10, 2010 7:40:01 PM)
where does your sister live?

pete46 (Mar 10, 2010 7:40:36 PM)
in worcester

CRIS (Mar 10, 2010 7:40:59 PM)
are you going to visit her before the surgery?

CRIS (Mar 10, 2010 7:41:17 PM)
does she have help when she gets home?

pete46 (Mar 10, 2010 7:41:25 PM)
i cant as i cant get into her house

CRIS (Mar 10, 2010 7:41:37 PM)
I understand

pete46 (Mar 10, 2010 7:42:06 PM)
her daughter is coming to her house and will be with her until saturday

pete46 (Mar 10, 2010 7:42:23 PM)
and then my younger sister will go over with her

CRIS (Mar 10, 2010 7:42:40 PM)
thats good

jbp (Mar 10, 2010 7:42:50 PM)
(This user has entered Living with ALS)

pete46 (Mar 10, 2010 7:43:01 PM)
she said the dr told her she could go back to work monday so it cant be too bad an operation

pete46 (Mar 10, 2010 7:43:04 PM)
hi jbp

pete46 (Mar 10, 2010 7:43:30 PM)
how are you>

CRIS (Mar 10, 2010 7:43:33 PM)
hi jbp

pete46 (Mar 10, 2010 7:44:27 PM)
she isnt planning on going back until tuesday though she told me

jbp (Mar 10, 2010 7:45:05 PM)
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CRIS (Mar 10, 2010 7:45:35 PM)
she will have to see how she is feeling

pete46 (Mar 10, 2010 7:46:34 PM)
yes and also my younger sister said that the dr cant be sure how bad the tumor is for sure until they do the surgery

JIM_VA (Mar 10, 2010 7:47:16 PM)
(This user has entered Living with ALS)

CRIS (Mar 10, 2010 7:47:18 PM)
yes, they have to see how many lymph nodes it has affected

pete46 (Mar 10, 2010 7:47:24 PM)
with mary they thought it was real small but when they went in, the tumor was vertical and three times as big as they thought

pete46 (Mar 10, 2010 7:47:31 PM)
hi jim

CRIS (Mar 10, 2010 7:47:38 PM)
hi jim

CRIS (Mar 10, 2010 7:47:59 PM)
did she go thru radiation and chemo?

pete46 (Mar 10, 2010 7:48:26 PM)
no she hasnt had anything said dr said didnt think she would need chemo

CRIS (Mar 10, 2010 7:48:38 PM)
no, your other sister

pete46 (Mar 10, 2010 7:49:04 PM)
oh yes, she had chemo for a long time and suffered greatly with it

pete46 (Mar 10, 2010 7:49:18 PM)
i think she had radiation too

JIM_VA (Mar 10, 2010 7:49:37 PM)
hi cris and pete-

pete46 (Mar 10, 2010 7:51:19 PM)
so thats my news for today

pete46 (Mar 10, 2010 7:51:36 PM)
oh i also went and ordered a magnetic sign for my van

CRIS (Mar 10, 2010 7:52:09 PM)
a sign? what does it say?

pete46 (Mar 10, 2010 7:52:22 PM)
i have to go back to worcester and pick it up tomorrow

pete46 (Mar 10, 2010 7:53:04 PM)
it says Handicap van - requires 10' clearance - for ramp access

pete46 (Mar 10, 2010 7:53:20 PM)
or something similar i dont remember exactly

pete46 (Mar 10, 2010 7:53:48 PM)
i will put it on side door that ramp comes out of

CRIS (Mar 10, 2010 7:54:12 PM)
I have seen those magnetic signs...great invention....my cleaning lady had one to advertise

pete46 (Mar 10, 2010 7:54:29 PM)
otherwise if someone parks on the right of the van, when i'm not in it, i cant get in!

pete46 (Mar 10, 2010 7:54:59 PM)
and i cant have someone else move it because theres no drivers seat!

CRIS (Mar 10, 2010 7:55:53 PM)
do your handicap signs in Mass. say Van Accessible which I assume means more room?

pete46 (Mar 10, 2010 7:56:13 PM)
you mean in parking lots?

CRIS (Mar 10, 2010 7:56:25 PM)
yes

pete46 (Mar 10, 2010 7:57:05 PM)
the newer parking lots are great and usually have a lot of handicap pkg for vans with ramps

pete46 (Mar 10, 2010 7:57:45 PM)
but the older ones have less and also some of the spaces really dont allow enough room for the ramp

pete46 (Mar 10, 2010 7:58:28 PM)
and then other parking lots have some handicap parking but none for ramp access

pete46 (Mar 10, 2010 7:58:58 PM)
i never really gave it any thought before i got the van

pete46 (Mar 10, 2010 7:59:20 PM)
but now a big concern if i am going somewhere is the parking

pete46 (Mar 10, 2010 8:01:18 PM)
my ramp comes out the passenger rear sliding door. some come out the back. i think jims comes out the back

CRIS (Mar 10, 2010 8:01:19 PM)
I understand....I sure hope the sign gets the point across to these people who are rude

pete46 (Mar 10, 2010 8:02:31 PM)
and i hope the sign stays on. i had a smaller one that i think came off in the carwash

CRIS (Mar 10, 2010 8:03:15 PM)
and I hope no one steals it for their own purpose

pete46 (Mar 10, 2010 8:04:10 PM)
that would be pretty low!

CRIS (Mar 10, 2010 8:04:37 PM)
nothing surprises me these days

JIM_VA (Mar 10, 2010 8:05:29 PM)
amen

pete46 (Mar 10, 2010 8:05:49 PM)
thats true

pete46 (Mar 10, 2010 8:07:12 PM)
remember how i said i was welcoming new members of plm and giving them tht link to this chat room

CRIS (Mar 10, 2010 8:07:38 PM)
yes

pete46 (Mar 10, 2010 8:08:03 PM)
well that lbj that came on and left, was one that i gave the message to yesterday

CRIS (Mar 10, 2010 8:08:23 PM)
I wonder why they did not stay]

pete46 (Mar 10, 2010 8:09:10 PM)
its too bad he didnt stay longer byt some just dont know what to say

CRIS (Mar 10, 2010 8:10:53 PM)
next time you see him, ask him why he didn't stay

pete46 (Mar 10, 2010 8:11:18 PM)
and where am i going to see him? lol

CRIS (Mar 10, 2010 8:12:47 PM)
oh that right....there is no chat at that website

JIM_VA (Mar 10, 2010 8:13:19 PM)
i am going to try facebook

pete46 (Mar 10, 2010 8:13:25 PM)
no and he just joined and hasnt posted any info about himself

pete46 (Mar 10, 2010 8:13:33 PM)
thats a good idea jim

pete46 (Mar 10, 2010 8:14:14 PM)
there are many pals there

pete46 (Mar 10, 2010 8:14:48 PM)
jeannie is there, i dont think she goes to her chat room anymore

JIM_VA (Mar 10, 2010 8:14:56 PM)
who was it

pete46 (Mar 10, 2010 8:15:42 PM)
someone with user name lbj

CRIS (Mar 10, 2010 8:15:52 PM)
that MYMDA kind of fizzled out....these social networks just don't last sometimes

pete46 (Mar 10, 2010 8:16:01 PM)
logged in didnt say anything and logged out

pete46 (Mar 10, 2010 8:16:27 PM)
i never got involved with mymda

CRIS (Mar 10, 2010 8:17:00 PM)
I did, but did not get IT

pete46 (Mar 10, 2010 8:17:27 PM)
i joined i think but never really knew what it was about

CRIS (Mar 10, 2010 8:17:39 PM)
exactly

pete46 (Mar 10, 2010 8:18:17 PM)
it seem like myspace has died out somewhat, i never was a member of that

JIM_VA (Mar 10, 2010 8:18:17 PM)
i offered to help jeannie pay

pete46 (Mar 10, 2010 8:18:29 PM)
pay for what?

pete46 (Mar 10, 2010 8:18:48 PM)
she is big into mafia wars now

CRIS (Mar 10, 2010 8:18:49 PM)
me neither

JIM_VA (Mar 10, 2010 8:20:37 PM)
for her chat

pete46 (Mar 10, 2010 8:22:19 PM)
i didnt realize she had to pay for it is it expensive?

sweetheaven (Mar 10, 2010 8:23:08 PM)
(This user has entered Living with ALS)

pete46 (Mar 10, 2010 8:23:23 PM)
hi sweets

sweetheaven (Mar 10, 2010 8:23:38 PM)
hello pete

CRIS (Mar 10, 2010 8:23:42 PM)
hi sweetheaven

pete46 (Mar 10, 2010 8:23:46 PM)
hows it goin

CRIS (Mar 10, 2010 8:24:54 PM)
how is the family?

sweetheaven (Mar 10, 2010 8:25:26 PM)
family is good I am in alot of pain

pete46 (Mar 10, 2010 8:25:40 PM)
so sorry to hear that

sweetheaven (Mar 10, 2010 8:26:17 PM)
its ok

CRIS (Mar 10, 2010 8:26:18 PM)
oh no....where is your pain

pete46 (Mar 10, 2010 8:26:21 PM)
celtics getting killed by the grizzlies 85-6

pete46 (Mar 10, 2010 8:26:27 PM)
85-67

sweetheaven (Mar 10, 2010 8:26:42 PM)
I was dx's with fibromyalgia class 3

JIM_VA (Mar 10, 2010 8:27:05 PM)
less than 100 per year

sweetheaven (Mar 10, 2010 8:27:24 PM)
what jim

pete46 (Mar 10, 2010 8:27:32 PM)
well some one is paying as its still running

CRIS (Mar 10, 2010 8:28:06 PM)
I understand that disease can be painful....are you on medication?

sweetheaven (Mar 10, 2010 8:28:15 PM)
yeah

sweetheaven (Mar 10, 2010 8:28:27 PM)
two pain medication

JIM_VA (Mar 10, 2010 8:28:34 PM)
hi sweet

sweetheaven (Mar 10, 2010 8:28:44 PM)
hi jim

sweetheaven (Mar 10, 2010 8:31:04 PM)
the bad part is cris with mmd and that not a good mixer at all

sweetheaven (Mar 10, 2010 8:34:30 PM)
(This user has left DigiChat)

CRIS (Mar 10, 2010 8:34:57 PM)
maybe she got booted

pete46 (Mar 10, 2010 8:36:55 PM)
maybe that happens

CRIS (Mar 10, 2010 8:37:31 PM)
brb

pete46 (Mar 10, 2010 8:37:36 PM)
k

JIM_VA (Mar 10, 2010 8:38:06 PM)
that is positive thinking

pete46 (Mar 10, 2010 8:38:21 PM)
i suppose

CRIS (Mar 10, 2010 8:44:32 PM)
back

pete46 (Mar 10, 2010 8:44:40 PM)
wb

JIM_VA (Mar 10, 2010 8:44:48 PM)
uconn men need some of those girls

CRIS (Mar 10, 2010 8:45:01 PM)
lol

JIM_VA (Mar 10, 2010 8:45:10 PM)
wb

pete46 (Mar 10, 2010 8:45:47 PM)
i think your right jim and the celtics could use them tonite too

pete46 (Mar 10, 2010 8:46:00 PM)
losing 107-81 now

CRIS (Mar 10, 2010 8:46:33 PM)
I heard from Jim West....did you?

JIM_VA (Mar 10, 2010 8:46:44 PM)
lol

pete46 (Mar 10, 2010 8:46:48 PM)
no not for a while

pete46 (Mar 10, 2010 8:46:56 PM)
hows he doing?

CRIS (Mar 10, 2010 8:47:37 PM)
he told me his insurance will be paying for the home health care and he may be going home next week....isn't that good news

pete46 (Mar 10, 2010 8:49:32 PM)
that is great

pete46 (Mar 10, 2010 8:49:47 PM)
he has gone through a lot

JIM_VA (Mar 10, 2010 8:50:23 PM)
i have to send him a note

CRIS (Mar 10, 2010 8:51:39 PM)
pete...are you going to W/C gang chat?

pete46 (Mar 10, 2010 8:52:20 PM)
later, i have to raise my legs for a while

pete46 (Mar 10, 2010 8:52:28 PM)
are you?

CRIS (Mar 10, 2010 8:53:00 PM)
yes, I should raise my legs too....will go later too

JIM_VA (Mar 10, 2010 8:53:03 PM)
i did 5 weeks in the hospital

pete46 (Mar 10, 2010 8:53:18 PM)
tomorrow nite going to eat with youngest son and girlfriend. steakhouse

pete46 (Mar 10, 2010 8:53:35 PM)
when you got vented jmi?

CRIS (Mar 10, 2010 8:53:40 PM)
thats a long time in the hospital...I have never spent an over nite in hospital

CRIS (Mar 10, 2010 8:54:31 PM)
that sounds like fun, pete....hope you have a wonderful time

pete46 (Mar 10, 2010 8:54:42 PM)
thanks

pete46 (Mar 10, 2010 8:54:59 PM)
i'm gonna go raise legs nowl

pete46 (Mar 10, 2010 8:55:10 PM)
bye jim, cris

JIM_VA (Mar 10, 2010 8:55:22 PM)
yes

CRIS (Mar 10, 2010 8:55:23 PM)
me too...bye pete and jim

CRIS (Mar 10, 2010 8:55:58 PM)
(This user has moved to qatest)

JIM_VA (Mar 10, 2010 8:56:15 PM)
bye y'all

JIM_VA (Mar 10, 2010 8:57:04 PM)
take care pete

JIM_VA (Mar 10, 2010 8:58:25 PM)
(This user has left DigiChat)

pete46 (Mar 10, 2010 9:44:21 PM)
(This user has left DigiChat)