ALS (Amyotrophic Lateral Sclerosis) Caregivers' Guide| MDA's ALS Division

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Home> Publications >ALS (Amyotrophic Lateral Sclerosis) Caregivers' Guide

Updated April 2011

This comprehensive guide offers more than 200 pages about topics of concern to caregivers of people with ALS — from emotional and financial concerns, to everyday care tasks and finding help. The book addresses topics such as nutrition, breathing, communication, finances, insurance accessibility and much more. It also includes comments from actual caregivers and those with ALS.

MDA ALS Caregiver’s Guide

• Acknowledgments

• Foreword

• Introduction

• 1 The ALS Caregiver

• 2 Daily Care of Your Loved One With ALS

• 3 Respiratory Issues

Assisted coughing

Invasive ventilation

• 4 Communication Issues

• 5 Nutrition Issues

Feeding Tubes

Resources

No part of this book may be reproduced in any form or by any means without the prior written permission of the publisher, excepting brief quotations used in connection with reviews written specifically for inclusion in a magazine, newspaper or website.

Free to families living with ALS who are registered with MDA, or $15. Call (800) 572-1717 or publications@mdausa.org.

MDA welcomes comments and suggestions on this publication.

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