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11/2005

Everyday Life With ALS: A Practical Guide

If you have ALS, or care for someone who does, this practical guide will answer many of your questions about equipment, therapies and accessibility that arise over the course of the disease.

 
 
 
 
  Chp. 1 - Equipment for Daily Living
  Chp. 2 - Saving Energy
  Chp. 3 - Home Modifications
  Chp. 4 - Mobility & Support Equipment
  Chp. 5 - Respiratory Issues
  Chp. 6 - Speech & Communication
  Chp. 7 - Transfers
  Chp. 8 - Exercise
  Chp. 9 - Exercise Instructions
  Chp. 10 - Resources

Chapter 3 - Home Modifications

Man and wife eating at kitchen table

ALS will also require some adaptations to your environment, both for safety and to accommodate to new equipment. Chapter 3 suggests how your home environment may be modified to help you to carry on your daily life.

Making Your Home More Accessible

Ramps

Portable or permanent … long or short … aluminum, fiberglass, wood or steel … wheelchair ramps are available in just about any size and type imaginable. A ramp is usually a cost-effective way to make an entrance to a home accessible or to eliminate the barriers created by a step, threshold or a small flight of stairs. For safety's sake, every home should have at least two accessible entryways/exits.

Modular aluminum ramps are a quick, easy solution for many situations. You can use them temporarily at your home, or take them along when visiting someone or even for getting into a restaurant or shop. One caution: They may have inadequate traction if the slope is greater than recommended.

Some portable ramps are built from lightweight materials like aluminum, and others fold to the size of a suitcase and have handles for carrying. Often, ramps can be custom- ordered to fit your needs.

If you’re building a ramp, the correct slope is a 1-inch rise for every 1 foot of run, and 2-inch side curbs for safety are essential. A variety of materials can be used for ramps, but keep in mind issues such as a surface that can get slippery when wet outdoors, and the considerable weight of a power wheelchair plus its occupant.

For example, you can build a ramp from plywood, but it should be coated with a mixture of outdoor paint and sand for traction. (Sandpaper adhesive strips won't hold up under the weight of a power wheelchair.) Treated hardwoods and manufactured materials like PakkaWood cost more but add durability.

If cost is an issue, your local MDA office, independent living center or Chamber of Commerce may have a list of organizations or programs that can assist with residential ramp installation and costs.


 
 
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