Before these respiratory complications emerge, your doctor will probably begin to discuss various methods and steps of respiratory support — ventilation. There are more options for assisted breathing today than ever before, some that can prolong life for several years.

Some experts say that assisted ventilation is the single most significant factor in the increased life expectancy of people with ALS in recent years.

You should give the question of ventilatory support serious thought in advance and put your wishes in writing so they’ll be known to your caregivers and medical team if you have a respiratory emergency. You may want to state your wishes formally in a medical directive; you can alter this document any time you change your mind.

Ventilators are now small, portable and quiet, but maintaining a person with one at home can be very expensive and taxing on caregivers.

Remember that your health care team and other professionals at the MDA clinic are there to help you understand your options and answer your questions as you make difficult decisions about ventilation. Be sure to discuss this subject in detail, including the options described here, so you can make your choices clear to your doctor and loved ones.

SPECIAL NOTE: It’s wise to think ahead about your choices and needs for respiratory help. Without planning, you could experience a respiratory crisis and have to make important decisions in an emergency situation.